I cannot thank you ENOUGH for letting me know this existed. I didn't realize there even was a groups page. I am a mom of 2 adorable kids (2 and 7m) and I was just diagnosed. I am nursing, and at times with 2 young kids and a demanding job its tough. My poor son doesn't understand why mommy can't play with him like she used to, and he's started favoring dad putting him to sleep, dressing him, etc. He's a good dad-- I just miss the special relationship we've had. Trying to find new ways to connect with him, and nurse my little lady as long as I can.
man oh man..... or should i say....lady oh lady ___ SMILE
I remember these times. My daughter and son are only 18 months apart...so i know the feeling.
Same scenario. Except my daughter is the oldest.
And that has to be tough... mom and son relationships are very clost mostly... so to see a shfting can be painful..especially for mom.
Well my only thing to add that may be of some use....
dedicated one thing a day that is only for you two.
Like the moment right after pajamas are on....
you give baby to dad for their own bonding time/
And mamybe commit to one book a night... and "1 good thing- 1 bad thing" conversation(kids actually love this)....even bedtime prayer if you guys pray.
I wish you the best... plase join us on the groups page.
I had NOBODY to talk to when i was going thru similar issues.
It hurt so bad to breast feed...and I didnt have 1 other Lupus mother to talk to.
So please.... lets chat away on our ladies page.
We are here supporting you.
And you can post anything and everything you'd like.
cbk42 said:
I cannot thank you ENOUGH for letting me know this existed. I didn't realize there even was a groups page. I am a mom of 2 adorable kids (2 and 7m) and I was just diagnosed. I am nursing, and at times with 2 young kids and a demanding job its tough. My poor son doesn't understand why mommy can't play with him like she used to, and he's started favoring dad putting him to sleep, dressing him, etc. He's a good dad-- I just miss the special relationship we've had. Trying to find new ways to connect with him, and nurse my little lady as long as I can.
I am 63, had 8 miscarriages and have 2 adopted sons. Had cancer 6 years ago and was diagnosed with Lupus 2 years ago. Everyday I wake up with a different problem, buldging dics in my neck, pain in shoulder and now going for MRI of my hip. I also have blockage in my heart. Live on pills and sleep when I am home. But I still work at BabiesR Us and love every 4 hours that I am there working with the best friends that help me throughout the work shift.
I am so glad your on this site.... ur experience...highs n lows of this sucky disease is needed.
I really appreacite you sharing......
Looking forward to future chats with you. I too currently live on pills... and enjoy working my partial shifts also. SMILE. I am 30 now. was diagnosed at 20.. but have had this my whole life. Lupus just was not known well in San Diego in the 80's.
They kept testing me for arthritis as a kid... when it was lupus the whole time.
Whatever. moving on.
I hope today is a good day... with some laughter in it.
I think that’s great!!! But I have to say I noticed a while ago that the majority of people I communicate with here seem to be women. I found this interesting because I wondered if women are more susceptible to lupus and if so , why?? Thanks again!!!
YES .... there are so many articles on this topic. 90% is women... and like me-black women... and asian and latina.... then caucasion/
so basically women with cultured ethnics.
Our food is different... so with regualr stress... we are more apt for the lupus to reveal itself.
But i think that the stats are changing as Life in america changes.
I will post some articles..becuase i dont know the answer to the "WHY" are women more suseptible.
Queenie said:
I think that's great!!! But I have to say I noticed a while ago that the majority of people I communicate with here seem to be women. I found this interesting because I wondered if women are more susceptible to lupus and if so , why?? Thanks again!!!!
I think that's great!!! But I have to say I noticed a while ago that the majority of people I communicate with here seem to be women. I found this interesting because I wondered if women are more susceptible to lupus and if so , why?? Thanks again!!!!
I am so glad your on this site.... ur experience...highs n lows of this sucky disease is needed.
I really appreacite you sharing......
Looking forward to future chats with you. I too currently live on pills... and enjoy working my partial shifts also. SMILE. I am 30 now. was diagnosed at 20.. but have had this my whole life. Lupus just was not known well in San Diego in the 80's.
They kept testing me for arthritis as a kid... when it was lupus the whole time.
Whatever. moving on.
I hope today is a good day... with some laughter in it.
I am glad I found this site, its very interested chatting with women who are going through the same feelings I am with this disease. Before I was diagnosed with Lupus , the doctors put me on 24 antibotics for one year for bronchitis. Never once checked my blood, just kept pumping me with antibotics. I then changed doctors, was told to go to an Indian doctor that friend was going to for years and she found something wrong with my blood and told me to find an Rheumatologist, I did, Dr Ceila Lopez Armstrong in Roswell, Ga who diagnosed me in Dec 2010. That was the beginning of Hell.
LupusSucks said:
LIFEwithLupus said:
@LUPUSsucks
You are a strong strong woman.
I am so glad your on this site.... ur experience...highs n lows of this sucky disease is needed.
I really appreacite you sharing......
Looking forward to future chats with you. I too currently live on pills... and enjoy working my partial shifts also. SMILE. I am 30 now. was diagnosed at 20.. but have had this my whole life. Lupus just was not known well in San Diego in the 80's.
They kept testing me for arthritis as a kid... when it was lupus the whole time.
Whatever. moving on.
I hope today is a good day... with some laughter in it.
all thse antibiotics!!! uggh. i know getting sick for you is not pretty at all.
well again i am glad ur here... and willing to chat!
LupusSucks said:
I am glad I found this site, its very interested chatting with women who are going through the same feelings I am with this disease. Before I was diagnosed with Lupus , the doctors put me on 24 antibotics for one year for bronchitis. Never once checked my blood, just kept pumping me with antibotics. I then changed doctors, was told to go to an Indian doctor that friend was going to for years and she found something wrong with my blood and told me to find an Rheumatologist, I did, Dr Ceila Lopez Armstrong in Roswell, Ga who diagnosed me in Dec 2010. That was the beginning of Hell.
LupusSucks said:
LIFEwithLupus said:
@LUPUSsucks
You are a strong strong woman.
I am so glad your on this site.... ur experience...highs n lows of this sucky disease is needed.
I really appreacite you sharing......
Looking forward to future chats with you. I too currently live on pills... and enjoy working my partial shifts also. SMILE. I am 30 now. was diagnosed at 20.. but have had this my whole life. Lupus just was not known well in San Diego in the 80's.
They kept testing me for arthritis as a kid... when it was lupus the whole time.
Whatever. moving on.
I hope today is a good day... with some laughter in it.
