Hi everyone…I was just diagnosed with lupus yesterday, and my rheumatologist thinks I might also have fibromyalgia overlapping.
I’m really scared
I’m in SO, SO much pain. My dr. put me on neurotin and I have been on plaquenil for a few weeks. I told him that I am literally up every night, in tears from the pain. He gave me ultram and Tylenol 3 in the past. The ultram makes me so sick, shakey and literally drop everything I touch. I HATED the way I felt. The Tylenol 3 does not touch my pain. And to top it all off, I have stomach ulcers and cannot handle NSAIDs.
I am not sleeping from this pain. I am up crying until I pass out. I don’t know how much more I can take. I kept asking him for another plan or if there is something else I can do. But, no. I just feel helpless. I don’t see him until Decemeber and cannot fathom suffering in this pain until I see him again. What can I do I do for the pain? I am army wits end.
It can take a while for the meds to get in your systems. Some doctors will put you on a low dose antidepressant at night that will help you sleep. Some members report relief with a warm bath with lavender or epsisalt before bed really help. A new mattress may help if you have had yours for a while Some times it takes a while to find the right combination of meds and to find what works with your life style.
I also moderate on the fibro site if you would like to join us their.
Jenna, please do consider also joining our Fibro site as well. I also moderate there with purplebutterfly. There are many wonderful members there who have developed good coping strategies for their Fibro pain. Also I wanted to mention mindfulness and Tai-Chi as stress management techniques. Stress is a major cause of pain flares and it’s important to get a handle on it. I was a little skeptical of both therapies at first, but have found them very helpful.
I have found that Tai-Chi has helped me in a few different ways. I have Fibromyalgia and it helps to stretch and release tight muscles and surrounding fascia and, essentially, reduces my pain. It also provides me with a wonderful way to manage stress as it is very calming. If I can stay on top of stress, I can manage pain flares.
Hugs,
Laurie
pontovirgula said:
I have an orthopedic pillow for my legs. Sometimes I lay my arms between a soft long pillow and another small one between the knees. Fresh smooth bed linen and less heavy blankets also seem to help. I wish you're meds start working...
(Laurie, could you give more details about your experience with tai chi?)
I take a bath almost every night. It helps a little. I will definitely check out the fibro site.