I'm writing this because I was wondering if anyone experiences what I've been feeling. Last night I had a bad case of insomnia not even my seroquil put me out. I finally fell asleep at 4am. Today I had an evening appointment and I woke up so groggy weak and irritable.... I just want to lay in silence. I'm too tired to hear the noise of the t.v or music...but I don't feel like sleeping either. I just lay in bed ...I been reading and writing, but right now my brain feels too mixed up. I feel like I'm in a physical limbo... I slept later I had an evening appointment and lately even with a good nights sleep I find myself wanting to just lay in silence...This usually use to happen during bad flare ups when I was working and I would just shut down after work, but it happens no matter how much rest I get now... I was wondering if its both the lupus and fibromyalgia together making me feel this way or some side effect of the Neurontin I'm on or the combo of all meds ugh....
Neurontin can make you fuzzy headed but usually diminishes over time
Maybe it’s depression
I too have that experience, I just had that feeling last night after coming out of a bad flare. My knees were warm to the touch and swollen, making it impossible to walk. I woke up at 3:00am and started to blog, then I watched tv until I fell asleep and I just woke up at 9:09 am feeling groggy and irritable from not sleeping last night. I am not on any sleeping med, I attribute the feeling to a bad flare. Sorry, using so many "I" starters in sentences, but, simple expression is best for me after a flare.
I was on 900 mg of Neurontin a day and trying to work. After my neck surgery, it was reduced to 300 mg a day and I take it at night. My mind is so much clearer on the reduced Neurotin...I didn't even realize how much it was impacting my daily life until I backed off on the quantity. I feel like my work suffered as did my personal life...glad to have my head and mind back. The meds could definitiely be causing the fuzzy and disoriented feeling...even when my body "got used to the Neurotin" it adapted, but once off, I realized how much it was still impacting me. Good Luck and I hope you get a better nights sleep tonight!
I also can just actually enjoy the quiet of no tv. I was on gabapentin I think that is the same drug. I was only able to 100mgs as I slept all the time. I went off and went to lexapro antidepressant . Today I am on prednisone and plaquinel . I am always amazed at how many lupies can work.
I take 900mg of neurontin right before I go to bed. It helps me sleep, but I do feel a bit groggy in the mornings for a bit. If you are taking it during the day, I would think it could cause a bit of sluggishness. When I go through a flare, or if I am exhausted from doing to much, I just want to crash in bed where it's dark and quiet. ;)
Oh yes, I have felt, and continue to feel that overwhelming fatigue. My Rheumatologist said that fatigue is one of the hardest things to combat. Perhaps, if you’re able to take a nap, both a.m., and p.m. that could help. Otherwise try your best to curtail your appointments. Sleeping has always been a problem for me, and the Pednisone certainly is no help. Wish I could give you more of a hopeful outlook, just being honest as to what I have found to be true for me. Wishing for better results for you, sincerely.
I also have a sleep disorder. I never had a problem sleeping before Lupus but now i If I get 4 hrs sleep without waking up it's a miracle. I stopped taking sleeping pills because I didn't like the side effects, groogy, unpleasant dreams. I've tried Melatonin, sleepy time herbal teas with little improvement. I'm going to ask my Rheumatologist if I should have a sleep study to find out why I can't sleep. I believe Lupus maybe the cause of this but a sleep study should diagnosis it. Not being able to sleep for long periods of time is not good & affects your health. Hope you get an answer so you sleep better.
I woke up once or twice every night, I normally can fall back to sleep and it's getting better, I thought it was the prednisone or my night time restroom time because of the kidney problem, I did not realized it could be out of lupus. I will try to research on it. Take care.
I was having trouble staying asleep once I got to sleep, at times with the help of a tranquilizer so my Rhuemy said that people who have Lupus often have insomnia and he prescribed Trazadone which is an antidepressant and it has worked for me. Take care!
Wow! I think you need to let your doctor know about this as soon as possible!!? Maybe the doctor need to adjust your meds? This really sound strange, Please call /go see the doctor ? Take care of yourself and keep resting as much as possible!..Beverly L.
I experience this as well. Not sure if myThyroid medicine for Hashimotos is the culprit, or 44 yr old hormones or stress or the the Lupus. I push myself to work out in a Zumba class and at home with chores and help my parents son and husband with their needs but I still find myself up until 3 a.m. without a nap in the day. I've started to eliminate just one day of my Levothyroxine med to see if it helps because I get racing heart with pain once in awhile and I generally sleep better once I've done this.