Hi Jenni
I was so sick Wednesday, it started as 'just a cold'. I felt so miserable, I went back to bed and slept for hours. I hurt so bad, and my legs and arms felt warm but I was freezing. I've been really sensitive to the weather changes, and this hit me really hard. I felt useless, but it passed. I'm feeling better. If I compare myself to before lupus - I could feel useless, but if I compare myself to Wednesday - I feel pretty good. I hope you are feeling better : )
Beverly, this made me laugh. IPads, laptops, phones, whatever....I am always losing something I wrote too! Thanks for the laugh.
Beverly L. said:
Hi, I wrote a very nice and long response to you , but am on my iPad and it has been having a mind of it's own lately (it erased it , and I can't really remember what I said in the response-smile or LOL I am), but anyway, keep your faith strong ,pray, believe, and hope, has been a good comfort zone for me, we are all god's children and he will not Allow nothing to happen that he knows that we can't bare....Beverly L. susanjs said:Yes - I also feel useless most of the time. I'm 68 and am living on a VERY limited income. I can't afford to do much and the lupus doesn't allow me to anyway. I was just told by a fairly new friend (from the building I live in) that I am too unreliable to be a good friend. I have thought about volunteering, but cannot guarantee reliability. So, I sit here and use up resources and wonder what this is all about...
Yes i also feel useless especially since i had to quit my job now over 15 yrs ago. I get that it was best thing for me but still i felt/ feel bad that i cannot support myself.
Right now, my house is in worse condition ever! I am too ashamed to have someone come over and clean it plus that french mastiff my husband brought in does not get along well with strangers so worry about that despite my husband saying in the past the dog has been find with others who came to the house where he was previously staying. On walks he has growled at few people and snapped once.
So yes i feel helpless and i also have flares but due to having so many diseases that it feels like one constant flare also. I had someone come over to replace washer so we cleaned that am and i was in tears after few hours of housework. I get that we should do a little every day but my husband sits all day or only walks the dog and leaves most of house cleaning to me....as he says he just does not care since he also does not feel well. Well i do care and try to get him to help a little but am told i am nagging so now keep my mouth shut and try off and on....most of messes though are his and if i move or toss stuff he gets angry so no win situation.
Sorry....sound like am whining and apologize it is just very frustrating.
Been there...I know....
Hi, am not married , but i know how you feel ! My male friend does the same thing , maybe it is a man thing? Anyway just keep your head and spirits up, cause there is really nothing that we can really do - Lupus has a way of controlling us at times!...Beverly L.
siskiyousis said:
Yes i also feel useless especially since i had to quit my job now over 15 yrs ago. I get that it was best thing for me but still i felt/ feel bad that i cannot support myself.
Right now, my house is in worse condition ever! I am too ashamed to have someone come over and clean it plus that french mastiff my husband brought in does not get along well with strangers so worry about that despite my husband saying in the past the dog has been find with others who came to the house where he was previously staying. On walks he has growled at few people and snapped once.
So yes i feel helpless and i also have flares but due to having so many diseases that it feels like one constant flare also. I had someone come over to replace washer so we cleaned that am and i was in tears after few hours of housework. I get that we should do a little every day but my husband sits all day or only walks the dog and leaves most of house cleaning to me....as he says he just does not care since he also does not feel well. Well i do care and try to get him to help a little but am told i am nagging so now keep my mouth shut and try off and on....most of messes though are his and if i move or toss stuff he gets angry so no win situation.
Sorry....sound like am whining and apologize it is just very frustrating.