I feel so bad for you as you were so excited. Maybe next week will be better. I just feel so bad for you young ones with all your dreams ahead of you, but so much illness standing in your way.
All you can do is try, Dancermom had some good advice if you just can't physically do it.
I will be praying that can continue with your dream!
Hi there ! Stop! Slow down! Step Back ! Breath !and now Relax ! , okay now that you are at that point let's talk ? Am Beverly L., nice to meet you and Welcome to our family LIVING with LUPUS . I myself has dealt with LUPUS for now $year's and am not going to lie to you , LUPUS will take over and make you feel worthless. BUT now that i have said that , PLEAS understand am talking REALITY to only /experiecne , YOU CAN LIVE WITH LUPUS and feel ALMOST NORMAL !!! scouts honor!! it took me 1-2year's to manage this , it was hard (am not going to lie) , But my LUPUS(SLE) has been 2.5 year's under control to present day. Am blessed for the power of GOD!!!very Thankful considering where i was from the beginning of this journey of LUPUS . Okay ! enough of me , let's talk about YOU ? No one was able to give me the who's , do's and the don'ts , i had to find out thing's for myself (which there were sleepless nite's /day's )- NEVER knew anything aboutLUPUS . Finding out information was a BLUST , til one day at my doctor (lupus ) a lady walked up to me who joined up with my doctor team Advocate here in GEORGIA for the fight of LUPUS , that day is the day i became NORMAL again . Along with this i taught myself some simple thing's ; 1. I made a list of thing'sto do , 2. i made this list broke down to doing 3 thing's to do per d ,ay3. Now with doing these thing's -i had to do them and see how i felt while i was doing them , 4. Being REAL with yourself has to come from deep within (the do's and the don'ts played a MAJOR part ), 5. Realize that you will have to work your way to living SOME WHAT NORMAL , as the task of your list of thing's , (which mean REST plays another big part ) 6. shuting down ( I call this time out / RELOAD ), doing your tasks , does not mean you do them straight through , you will have to take time out breaks (like a job give you a 15min break )okay that's what am talking about ( it my seem like thing's will take all day to finish , and sometimes thing's won't get finished) don't beat yourself up about it , just KEEP IT MOVING put it first on the list for the next day , 7. REALITY , this is the funny part , YOU HAVE TO LEARN how to LAUGH at yourself and how the LUPUS affects everything that you do OR want to do -Making PLANS is not GOING TO HAPPEN at first -leave that COMPLETELY OFF of the list , 8. Stay on line here with us and talk /vent /cry/ get angry , REMEMBER that we all here have /had /are going through what you are now facing and that it is okay to do all of them WHENEVER , 9. To know that there are people AROUND THE WORLD at you finger tip to talk with at ANYTIME , oh my GOODNESS it is so beautiful ,10. THE last and final thing remember you can live with LUPUS , keep this in mind ," You have LUPUS and LUPUS don't have you , and DON"T do STRESSFUL THING'S: PEOPLE ,PLACES(did i say PEOPLE ?) , not stressing is going to be hard cause at this moment everything is counting on how You HANDLE EVERYTHING (STRESS). and this my friend has HELPED me to say again to you wishes and prayer's go out to you .You shall be okay just take it slow (NOT like a TURTTLE) but slow and relax along the way and keep as many appointments with your doctor if you enjoy that team make contact with them on everything be open and HONEST with them , and that my friend bring's me to a close ,i will t alk with you later ....Beverly L. P.S. sorry this was long....SMILE
Hey!!! it's NEVER a PROBLEM, that is WHY we are here to help and guide one another -smile anytime you want to talk just let your finger's do the typing and SOMEONE , SOMEWHERE will respond - it takes you to LOG in N go from there , smiles and hugs go to you ...Beverly L.
I had lupus for 8 years before diagnosed. The last 2, I knew what was, and joined a website. The best thing I learned about time management when in pain and exhausted was this: picture for yourself a big jar full of beautiful marbles . The marbles are your energy, ALL of your energy. When you do something, take out that many marbles. When your marbles are gone, you are out of energy. Some days I have enough marbles for a shower. Other days I can vacuum, cook and go to lunch. 20 or so years later, I still use this marble jar. You can only do what you have energy for, and pain takes a lot of energy. I still have to look at my energy level every day or hour and realize when I am working on zero energy. If I do that too much, I go into a flare, or have a bad couple of day. Also, lupus can hit you differently every day, and not knowing is stressful. Stress makes us sick. So remember to breathe, and I hope the new meds help. If you follow your dreams more slowly, you are still getting it done.
Thanks for all the prayers after taking the weekend to re group, relax, sleep and give the med. Time to work. Today was much better not nearly as exhausted and I feel like I can go home and actually do some homework!!
Hi! Taking a break sometimes ,is REALLY needed (eventhough we don't have the time , a 20-30 min. , NEVER fails) . LUPUS require's this - sorry to say this , but IT IS THE TRUTH !!! Slow everything to your PACE !!, that's how it work's -smile . It can be done and the adjustments come slow , but as the time pass you will become comfrotable with the progress !!! Yeah sound like that won't or can't happen , well am a WITNESS to it ( remember i told you of the lady that i met at my doctor office the frist time ?) And thing's for me since have been GREAT (at time's LUPUS try to step in to the spot lite- I quickly REST and i mean REST ) . Am not far from your stage because LIFE/Time does not wait , nor STOP. Happy to hear that you had some day's to rest and regroupSMILE's .talk with you and remember You are Never ALONE...Beverly L.
I’ve been on a break from school since I was diagnosed a few months ago. In a perfect world I would be applying to Veterinary school this year, but in reality I’ve not even finished undergrad. There is nothing as frustrating as being passionate about something and all in, but your body just can’t do it. I wish there was a magic way to do everything my mind wants to do.
So sorry to hear this! It is really hard! I just had a friend who left for Vet school so I can only imagine having to give up that dream and put it on hold for awhile. I wish you the best of luck as you go through this. It is not easy at all!
kendratatum said:
I've been on a break from school since I was diagnosed a few months ago. In a perfect world I would be applying to Veterinary school this year, but in reality I've not even finished undergrad. There is nothing as frustrating as being passionate about something and all in, but your body just can't do it. I wish there was a magic way to do everything my mind wants to do.
Can you speak to you school councilor and see if there are any other acomadations that could be made due to your disability? See if you can brainstorm some ideas that would make your life easier and maybe the school can acomadate.
For me, back to school always mean back to being sick, in pain, and even more exhausted than normal. I have been going for nine years and I hope this will be the last, but of course if the lupus becomes too much than that always means I'm set back again. I had some obstacles to over come with school before I was diagnosed with lupus which is why I had to go part-time and it's taking me longer. But when I was diagnosed with lupus 4 years ago it has made it nearly unbearable to continue.
All I can say is hold in there, I know exactly how you feel, and try not to feel guilty or stressed if you have to change plans due to your health! I'm not saying quit school, but don't beat yourself up if you fall short of expectations. I know personally I've always been a perfectionist and so even though I was going part-time I went above and beyond in each class...you know like a "B" was unacceptable lol but now a B with the way I feel everyday is just fine. I know how much it sucks to have the will, the mental drive, the "want" and then feel like your body just won't let you keep up. Don't get frustrated and keep that drive for the days when your body feels better.
You can always find ways around it, find another profession you want to get into that allows you to go to school online, and perhaps take tests at school that way you can be in the school atmosphere a little bit. I know its disheartening to try and not be able to do it though. I work from home so really its true, you have to balance your life with it as best as possible.
Hello, Lovekel &MT411, both of you gave some very uplifting infor., that's why i love it here , even though am not in school that was some very good words of encouragement am going to keep that in my mind also and use this advice myself ...Beverly L.
I don't think you should give up your dream, maybe just postpone it. First you should get all your pain under somewhat control. Keep on the doctor, and keep a journal of what is going on. Have the doctor read your journal. You do have limitation, and it truly sucks. I think maybe one class at a time. I know it will take forever, but you'll get to your dream. We are sick and can't do things that healthy people do. I accepted this fact, and I find ways around it. I still have a full live just at a slower pace now. Best wishes and please don't give up...
We all understand how you feel. I am sorry that you might have to drop out of school, a fun and growing part of one's life that should not be missed. Keep fighting and try to concentrate on school on the days when you feel somewhat better. I know that isn't so easy to do, particularly if you have continuous bad days, but you have to try. It sounds like you are firmly aligned against lupus and are determined not to let it win. Keep the faith.