Dr thinks I may have had a small seizure because of symptoms I had on Tuesday. I have to go see a Neuro. Right now my head hurts and I’m numb on my right side of my face just above my eyebrow. On Tuesday I was work and all of a sudden I got a sharp pain in my head then my face right side got tingling and numb I got like confused like I didn’t understand what people were saying. It lasted about 10 min but then my headache lasted until yesterday. I suffer from migraine headaches but this was far worst than my normal migraine. My of dr said it could have been a small seizure because of the confusion. This is all just so scary and frustrating. Missing work but truly can’t work with all my new symptoms. Help!
Hi Becca,
I've had seizures for years 2 forms Temporal-lobe and grandmal and seizures can give off terrible headaches it's when the electricity to the brain is to over loaded, it's best to see the neuro but the migraines could have got stronger or you could have had a mini stroke also....so your looking at 2 options on your symptoms because i've had strokes and i had antoher stroke as i joined the site and strokes cause confusion also but if it turns out to be either then it's most likely come from the Lupus.
Here's a link regarding Mini strokes
http://www.emedicinehealth.com/transient_ischemic_attack_mini-stroke/article_em.htm
((A large hug to you mate & i hope it's nothing serious)) Love Terri xxx
I have a complex migraine syndrome with similar symptoms- the migraine itself can cause crazy symptoms but at least is more treatable. So hopefully this will be your story as well. I used to have problems with speech, loss of vision, poor ballance with frequent falls and confusion- at times not even knowing where I was. So hang in there!! It can get better
Thank you for the info. And the encouraging words. Just want answers and get back to what I call a normal life.
Tez_20 said:
Hi Becca,
I’ve had seizures for years 2 forms Temporal-lobe and grandmal and seizures can give off terrible headaches it’s when the electricity to the brain is to over loaded, it’s best to see the neuro but the migraines could have got stronger or you could have had a mini stroke also…so your looking at 2 options on your symptoms because i’ve had strokes and i had antoher stroke as i joined the site and strokes cause confusion also but if it turns out to be either then it’s most likely come from the Lupus.
Here’s a link regarding Mini strokes
http://www.emedicinehealth.com/transient_ischemic_attack_mini-stroke/article_em.htm
((A large hug to you mate & i hope it’s nothing serious)) Love Terri xxx
Hi Becca,
Well i hope you get your answers on what's caused it, i really do and as soon as you find out will you update us please on your thread. xxx
You know my dr did mention that as well. Now that you said that. See confusion. Let me ask you after you suffer from a complex migraine do you get aggetated or anxious? I got that way and my co worker was saying that is not my character. They actually took me to the ER because my blood pressure was but it was because if the headache I had. Man all of this is crazy stuff. Just needing answers. The Neuro can’t see me till July so I wait. But if I have another episode of the same symptoms just going to go back to the ER. Thanks for the info. Love this site and the support it gives. I don’t feel so alone anymore. I just want to get back some normalcy of my life.
poobie said:
I have a complex migraine syndrome with similar symptoms- the migraine itself can cause crazy symptoms but at least is more treatable. So hopefully this will be your story as well. I used to have problems with speech, loss of vision, poor ballance with frequent falls and confusion- at times not even knowing where I was. So hang in there!! It can get better
Hi Becca,
Waiting for July is to long why as'nt your doctor got you an urgent appointment and besides that an MRI scan on the brain besides an EEG to make sure before hand.
It might be slight what happened to you in one way but it's still important regarding incase it happens again.
im sorry you are having to deal with this...i have been having weird neuro symptoms as well--like not recognizing my own car or feeling there is a room or something that i would normally turn toward even though there is not a room there. For example---I know there is not a bathroom directly off the kitchen at my sons's house, but my body/mind seems to want to turn there as if it were an old habit. Weird, huh? so far they say it it is either a small stroke, a seizure or "just Lupus" causing acclamation in my brain,.
oy vey
please let us know what you find out,
hug
Yep= personality changes too I would have periods of agitation and very irritable to the point I would not go around people - when I got like this I knew a headache was on the way Thank goodness the episodes didn't last very long All attributed to migraine I had MRIs EEGs and cerebral arteriograms- all normal
Hi Becca2673, I hope that you are feeling better today !!! I also have bad migraine headaches , i truely hate them . Last week i had one that lasted for about 3days , it really had me in the bed , not allowing me to move . Everyone (family members) wanted to take me to the hospital , but of course i didn't want to go , the only thing iwanted to do is stay in my bed with no noise. Lupus really but a bang on us that LIVE with LUPUS , am tried of this , and there is nothingwe can do but deal with it !!!! Make it you business to go see Neuro son - okay and i hope that they can help . take care ....Beverly L.
By chance is your face sagging on that side still a bit? If so Bell's Palsy is temporary condition that can mimic seizure or stroke but it is harmless...just look like stroke person for some months. I have had migraines so bad that I had to shut out all talk from people ...where listening was painful and confusing like you say. I get cluster migraines. Not too often.
You also sound like old neighbor who had nerve damage in her face....very painful and due to pain she could not listen to them it was too much. But i do have good friend who has been suffering from seizures...as well has have had 2 dogs. my friend always totally blacks out...but there are all kinds of milder seizures...my dogs, first one had grand mal..where she wake me up or come near me and i could feel that her electrical was off. The 2nd did not have that warning but was more intense....first was from liver that was too small size of basset hound eventually healed itself. The other dog they never knew what caused them and they stopped as fast as they appeared...so we all think something environmental started them.
My friend also got migraines...very bad ones ..we both had the auras before hand. SHe never had auras before a seizure as of now and she has had them now over 12 years. She usually wakes up and just is confused since she does not know how she got on ground...even crashed her truck once. SO do not drive....if doc thinks you have had seizure by law he is required here in US to notify DMV and take your license. You must be clear for 6 months or year before you can drive again....good reasoning.
Another friend..just thought about him...they thought he was having seizures but was heart....many things make you so confused you cannot speak well while it is happening so i hope they do a check your entire body.
I have read of Lupus now affecting the brain .....so another place to look into. This is fairly new area so many docs will not know much about it but science is there on line...just go to reliable sites.
also most seizures do not last that long...kill you if they did! seems very long while you are in it or watching but most last few minutes at most. My 2nd dog would not stop the seizure and we had to take to Vet who treated her as emergency patient to get them to stop..Thank fully worked but as he told me if they kept up like that she would die....you don't die from seizure itself but what it is doing to heart, brain by electrical system in your body.
if lasted ten minutes sure they would have rushed you to emergency immediately! Plus, you would have been so exhausted that huge effort to talk for good half hour to hour or maybe longer even. My friend after her grand mals ...she have to take half hour helicopter ride and even than it was difficult to speak....
BUT THIS IS something every person should know...if you get bad headache.....worse than normal call 911 good chance you are having stroke and if they get you in ER fast they can treat the stroke so you have hardly any side effects ...could save your life too!
I hope you are okay and just was bad migraine.....they really hurt horribly bad ...most people must just lay still and wait for them to pass in dark room...i know i am like that too..no talk, noise or light till gone.. and you puke lol!
well good luck i hope you do not mind me using my dogs info...just they are very similar to people i found out after reading on grand mal seizures for my first dog and for my friend . I also worked with a man for 20 years who had epilepsy and never once had seizure all those years i worked with him...so they can control it now days if it is that.
Good luck let us know how tests go
Hi Becca,
How you feeling now mate since you last added to your thread...i hope there's abit of improvement to make you feel better.
Love Terri xxx
Hi i had cerebral lupus 10 years ago. Which resulted in the same symptoms. I had seizures where I was out of it for hours. It is scary but it sounds like your on to it early. i havnt had a seizure for 10 years. Good luck
Hi Georgie,
That's good news you've not had any in 10yrs...i hope they can sort Becca early as you stand a better chance. xxx
Georgie said:
Hi i had cerebral lupus 10 years ago. Which resulted in the same symptoms. I had seizures where I was out of it for hours. It is scary but it sounds like your on to it early. i havnt had a seizure for 10 years. Good luck :)
I do suffer from seizures. They are not electrically charged like epilepsy. I also have Chiari Malformation though seizures started bad enough for medicine right after brain surgery. Not sure which one of my illnesses are causing them but I would like to know if Lupus is in any way linked...... Good Luck and I will pray for you.
Anissa
Wow I too have chiari malformation but i have not had surgery. Its not bad enough to have surgery it was found by chance from an MRI I had when they found my brain tumors that are benign (meningnomas). My ex mother n law has chiari too but she had the surgery. I don’t remember if she had seizures but I will ask her. I’m praying that the episode I had was the complex migraine! Dont think I can handle the seizures. I love my independence and don’t think I can handle depending on someone else. Thanks for the info and as soon as I find what it is that’s happening I’ll let u know!
zipperhead said:
I do suffer from seizures. They are not electrically charged like epilepsy. I also have Chiari Malformation though seizures started bad enough for medicine right after brain surgery. Not sure which one of my illnesses are causing them but I would like to know if Lupus is in any way linked… Good Luck and I will pray for you.
Anissa
Hello Anissa,
Lupus if you have it can cause seizure's as it caused my two lots. xxx
zipperhead said:
I do suffer from seizures. They are not electrically charged like epilepsy. I also have Chiari Malformation though seizures started bad enough for medicine right after brain surgery. Not sure which one of my illnesses are causing them but I would like to know if Lupus is in any way linked...... Good Luck and I will pray for you.
Anissa
Hi Becca,
I pray and hope for you that you don't start having seizures....when mine started i was drugged alot but was having 18 and more a day and when i reached 29 as i was to frightened to go out as i was going in the road anyway besides coma's and a wake up call happened out the blue and i thought i can't keep on living like this and since that day i've never looked back.....it was the best thing which hit me and life carries on with seizures or not and now when i have one what ever the consequences from one happens but life carries on.
Thinking of you dearly love Terri xxx
Becca2673 said:
Wow I too have chiari malformation but i have not had surgery. Its not bad enough to have surgery it was found by chance from an MRI I had when they found my brain tumors that are benign (meningnomas). My ex mother n law has chiari too but she had the surgery. I don't remember if she had seizures but I will ask her. I'm praying that the episode I had was the complex migraine! Dont think I can handle the seizures. I love my independence and don't think I can handle depending on someone else. Thanks for the info and as soon as I find what it is that's happening I'll let u know!
zipperhead said:I do suffer from seizures. They are not electrically charged like epilepsy. I also have Chiari Malformation though seizures started bad enough for medicine right after brain surgery. Not sure which one of my illnesses are causing them but I would like to know if Lupus is in any way linked...... Good Luck and I will pray for you.
Anissa
to Georgie,
Since i have had to deal with seizures due to friends, family and even my animals..one thing i know that if seizure last more than few minutes....even if you have one for 30 sec than stop but keep going back into a seizure this can and will kill you if you do not get immediate help.
From what i read...you sound more like migraines but i do know there are many symptoms for all the various things that can go wrong with our brains and they are constantly learning since it is area that they still do not know much about.
I hope your test is negative for seizures since than most likely you will not be able to drive up to one year free of seizures. This is a good idea if you think about it...what if you had one while driving and killed innocent family? we all feel so horrible !
I also know how hard it is to depend on others to get rides to doctors etc especially when you do not feel well and taking bus can take often more than twice as long as if you did drive. Hopefully there are some fast transit services such as subways in your area as well.
Yea i saw and since have read about lupus and the brain. My problem was doctors had me on too many drugs ....and many antidepressants can create what we call brain freezes...like lightning striking your brain for few seconds if you forget or are lowering dose of them. I hate antidepressants due to this side affect and find it amusing that many of doctors who prescribe them do not know or acknowledge the freeze feeling...but good doctors are now that so many of us have described exact same thing.
I hope you find out it is just a migraine...which is painful enough on it's own but at least you don't need surgery etc or cannot drive at all . GOOD LUCK lg
Tez_20 said:
Hi Georgie,
That's good news you've not had any in 10yrs...i hope they can sort Becca early as you stand a better chance. xxx
Georgie said:Hi i had cerebral lupus 10 years ago. Which resulted in the same symptoms. I had seizures where I was out of it for hours. It is scary but it sounds like your on to it early. i havnt had a seizure for 10 years. Good luck :)