Oh my gosh yes! My rheumatologist totally dismissed my hand clumsiness. I have also been getting my speech mixed up, reversing letters to where I have to stop and think about each word so I am pronouncing them correctly. Also, twice I started talking and jibberish came out. This really worries me. Anyone experienced this?
Yes yes yes. Me too. I can’t speak. The words are there, I see pictures of what I’m trying to say and even see the word I’m trying to say but I can’t get it out of my mouth. And yes I’m dismissed as if it’s nothing.
Thanks Susan . This disease it so baffling. I am constantly on guard wondering if every little thing could be a symptom of Lupus. This support group is so wonderful as it kind of reassures me I’m not crazy! Nicole
I thought it was just me. I am always dropping things! I also am always missing the reach on a shelf which makes me bang my hand/wrist on a the missed shelf or I just miss a door and bang my hand against it. It's is so frustrating! The more I try to protect my hands the more I seem to bang them!
Absolutely. Agree with both of you. Very frustrating.
Like many of you I have the same issues, dropping things, poor dexterity! Difficulty separating papers! I say things in reverse or can’t think of the correct word to use (moreso if talking to a large group of people). I used to be excellent in spelling but now I second guess and have difficulty spelling medical terms correctly. I occasionally have hand shakiness I noticed it’s worse when on higher doses of prednisone and when I am extremely tired. Lastly my balance is totally unpredictable when I change to a standing position!
oh sweetie i know exactly how you are feeling , just take it one day at a time god bless you....purrs..catspaw1955
I’ve been getting this- it’s like my hand is shaky, but it’s usually not. I have tfouble when yo
I have trouble when people give me change- they let go of the money and I drop some of the coins.
Hands,my own personal hell..I always assumed because of the kind of work I did for a living I was suffering from a bad case of carpial tunnel in both hands.However that was not the he case..I spent years in pain in my left wrist,wearing hand braces for support and to ease the pain I had way to many cortisone shots in that wrist and it finally made the bone in my wrist die,pretty friggin scary..I had surgery to scrape out all the dead bone,he put in a child size plastic prosthetic piece to replace the dead bone and fused my wrist with a titanium plate.I spent 6 months 6 casts last year..pain free in that hand and wrist,However I'm pretty damm useless with that hand,I have a custom brace made for it when the cast came off..I'm still wearing it..as for my right hand,it's so painful most days I would kill for a cortisone shot just to take the pain away..I try to find things to simplify my challenges with my hand..I have scissors all over the house,they help with many things,like cutting up salad instead of chopping..I drop so many things in a day I just laugh at myself..I had cancer surgery as well last year so I'm still trying to play catch up..my body is tired,it's a tired I can't expain..and my arms are so weak it ridiculous..and to be honest,I'm just sick of all..whatever you all do,stay away from cortisone shots,the long term side effects are not good..I had to resort to pumps for all shampoo,dish soap Ect..beauty supply..I also had to hire someone to come do some of the things around my home I can no longer do..also the iPad or a tablet is a lot easier to use than a computer..try to rest your hands as much as you can,that probably sounds weird and it's hard to rest your hands.The hand surgeon actually told me to try and rest them as much as I can,but really you need your hands for pretty much everything..Heat on them also helps with the pain,but not so good for the inflammation..any kind of cold therapy makes the pain worse,so no chance of an ice pack to bring the swelling down..A double edge sword "hua"..looking for a better day tomorrow,that's all we can hope for..take care of yourself as best as you can..celeste
Yes, I fumble. Drop things, can’t type or grip well. Fling things and have trouble doing my own hair! Can’t play Lego’s with my kid. My hands don’t work right. That’s something I say everyday
I have the same problem! Im ALWAYS dropping things! And it's as if my hands can't work sometimes
SavvanahGurl, I know what you mean and am sorry that it's plaguing you! I don't know if it's the meds I'm taking, which are for fibro, but I can't keep anything in my hands on some days.
I was having one of those days yesterday! And why is it that we always seem to be handling important documents while struggling to pick them up off the floor, only to have them drop down on it another 2 or so times. And then it's so hard to get the hand ON the paperwork and then to GRAB the paperwork. Boy, I personally feel that this is one of the most humiliating things I've personally gone through. Hate it! But, then again, at least we still have hands for grabbing!
Please take care. And maybe one of those sticks with a working claw at the end of it might be a good idea for the both of us? It can grab things with its claw-like "fingers." Works well, too!
Yes, it’s relatively new. I think I picked something up but I wasn’t holding as tightly as I thought. If I go through a drive through For food, I’ve twice dropped the change (embarrassing!!) I am also developing arthritis in my hands, suddenly. And my rheum has me squeeze his hands when I see him, maybe that’s significant. I have popped at least one tendon in the back of my hand. My doc said that is typical of lupus and RA., the tendons get very thin and it can’t be repaired. I also have had my fingers get what they call trigger finger, my finger won’t unbend easily. I’d say hand problems are common in lupus, i’m glad you brought it up.
I find that I keep get sore muscles at the base of my thumbs from time to time. First time I'd been using a wire cutter to make floral displays for my workplace. The following day, I had a trigger thumb, just like Jane describes. It didn't go away either, until I got a cortosone shot. But it bothers me on and off each winter.
Jane, popping a tendon sounds dreadful! Is it as bad as it sounds? Is it much harder to use your hand? And it can't be fixed? not good,not good at all.
This is good to know, Sheila. Thank you!
Sheila W. said:
I have this quite often, it happens when lupus inflames the nerves in your spine, so you can get symptoms much like M.S. It's called Central nervous system involvement.
Sonbathing and Susan Roberts,
I don't feel so bad now. I have talked to the doctor before about my having issues with my speech and with trying to think of the words to use or names of people I know or remember conversations I've had with people. People will tell me that I told them something and I have no recollection of the conversation whatsoever. Even after they give me all the details it still doesn't come back to me. So very frustrating!!! He pretty much just acted as if I never said anything about it. I was referred to a neurologist because I'd been having headaches and tremors but the MRI came back fine and the neurologists isn't concerned because I'm no longer having the headaches. So I feel like my concerns have been dismissed. I feel like if my blood work ups or tests don't show what the doctors feel like it should show then my complaints are dismissed.
I'm sorry you are having these issues; however, I'm glad I'm not crazy. I think the worst part is know that my doctor is so intelligent, highly recommended, supposed to be one of the best rheumy's in my area and participates in research with the NIH for autoimmune diseases but yet can't give me the answers I feel I need. :-/