Hi Julie......I'm SO tired and have been spending lots of time in the bed trying to rest. The CellCept and allergies are kicking my butt.
Hope everyone is doing well.....LOVE YOU! Lori
It could have been reason why your husband acted so poorly is he has been worried severely about you especially since his mother died. Some people, and i would say especially men, take years to grieve all the way since they feel so uncomfortable with those kind of feelings.
Maybe at dinner it was neutral place ..you got sick...so shook him up and he finally was honest about his feelings.
I am tired you are so fatigued. One thing my therapist always said for me to do was get out in sunshine..of course not in high points since you might be sun sensitive..but just to get some Vit D and be outside for just 20 minutes.
My first rheum had said to me to try not to stay in bed all day even on bad days. To try and get up and just do one thing...but to get up and out of bed . He said laying in bed just gets depressing and that is why he said to try and get up.. so you feel better. I found he was right..both of them have been.
I get how hard it is. I did much better job of it when i lived by myself. Now my husband is back and he is ill too plus has always had depression. Before it was always me that got us out and about. With him here sleeping 3/4 day/night has been depressing to me. I finally just had to push myself to go out and walk dogs like i did before he was here. I have found i feel better.
But boy it is hard...i hurt and do not sleep so feel tired so easy to sit and read or watch tv with him while he is up. Or say i am going to wait because his dog..whom i cannot take with me for ..just too big..needs a walk so i say wait for him than i end up not going. My dogs are upset i feel worse just is not good for me.
sorry this turned into rant from me in way...but maybe it will help you i hope. i just hope he stays nice and you feel well enough to get out bed...go dinner or movie..both maybe!
Hello Lori,
How are you my dear friend in your health, as i do hope your ok plus how you feeling with your kidneys besides?
Your loving friend always :) xxx
Teri how r u feelin. Im still prayin for all on LWL. Hopin u r better. Keep that positive vibe. U rock!
Hello Sue,
I try to keep positive best i can but christ mate my legs are getting worse with pain/cracking ankles and toes and still getting over this flu.
The neighbour had it for 5wks and as now got it bad again...oh bless you mate about Urock.
Hugs & kisses Terri xxx
Sue said:
Teri how r u feelin. Im still prayin for all on LWL. Hopin u r better. Keep that positive vibe. U rock!
Teri r u using good cream for those feet and toes. Can someone go to the market for u? Now with this last post I’m worried for u. R u eating? Drink lots of fluids Please let me know how u r doing. Trying to send u something, bit PayPal is messing with me, sorry. Prayers for u n I have u on a prayer chain via my sister (when she gets the message). Thanks and please take care of u!
How are you doing Terri????? Hope everyone is OK today!
Much love,
Lori
Just hang in there !!! Things will work itself out ...Beverly L.
siskiyousis said:
It could have been reason why your husband acted so poorly is he has been worried severely about you especially since his mother died. Some people, and i would say especially men, take years to grieve all the way since they feel so uncomfortable with those kind of feelings.
Maybe at dinner it was neutral place ..you got sick...so shook him up and he finally was honest about his feelings.
I am tired you are so fatigued. One thing my therapist always said for me to do was get out in sunshine..of course not in high points since you might be sun sensitive..but just to get some Vit D and be outside for just 20 minutes.
My first rheum had said to me to try not to stay in bed all day even on bad days. To try and get up and just do one thing...but to get up and out of bed . He said laying in bed just gets depressing and that is why he said to try and get up.. so you feel better. I found he was right..both of them have been.
I get how hard it is. I did much better job of it when i lived by myself. Now my husband is back and he is ill too plus has always had depression. Before it was always me that got us out and about. With him here sleeping 3/4 day/night has been depressing to me. I finally just had to push myself to go out and walk dogs like i did before he was here. I have found i feel better.
But boy it is hard...i hurt and do not sleep so feel tired so easy to sit and read or watch tv with him while he is up. Or say i am going to wait because his dog..whom i cannot take with me for ..just too big..needs a walk so i say wait for him than i end up not going. My dogs are upset i feel worse just is not good for me.
sorry this turned into rant from me in way...but maybe it will help you i hope. i just hope he stays nice and you feel well enough to get out bed...go dinner or movie..both maybe!
Hi Sue,
All i use on my feet is coconut butter as i love he soft feeling it leaves but i acutally think my osteoarthritis is spreading...my youngest sister who as Lupus and found out this year, she's 41 and when she was 20 she had all pains in her toes she was finally sent to the hospital to get them x-rayed all her toes had broken through osteoparosis, my eldest sister as it and i have cervical spondylosis and my dad had both these issues and my mom had proper RA bad besides...so he passed it on in a nice way 
I have fluids now besides eating proper got no choice with my IBS and sjogrens how it's affecting me bad.
You takecare also mate Terri :)
Sue said:
Teri r u using good cream for those feet and toes. Can someone go to the market for u? Now with this last post I'm worried for u. R u eating? Drink lots of fluids Please let me know how u r doing. Trying to send u something, bit PayPal is messing with me, sorry. Prayers for u n I have u on a prayer chain via my sister (when she gets the message). Thanks and please take care of u!
Hello Lori,
The flu's easing slowly leaving my right lung aching but nothing afreash mate, legs still hurt plus spasms still occuring and my left keeps swelling more than the right...come the 30th of the month and i'll know what's going on more and Lori i've chatted with ste i'm going to except the trial for the infusion as i've got nothing to lose no more.
Never mind me though mate how are you've asked several times and i do worry about you, you know...so please update me.
Terri xxx
loriken214 said:
How are you doing Terri????? Hope everyone is OK today!
Much love,
Lori
Man oh man you’ve got it sister! Please keep up the good fight! These people need your positivity. I’m prayin. Please please take good care!
Hello Sue,
I have two sister's and the eldest is in spain somewhere but it was my dermo who told me to tell my siblings to get tested and as soon as kim had her bloods done they came back positive and she also as Roacea bad and is using steriod creams for that.
All we can do is carry on and never let it mentally take we down.
I hope your days not to bad mate. :) xxx
Sue said:
Man oh man you've got it sister! Please keep up the good fight! These people need your positivity. I'm prayin. Please please take good care!