Does anyone have trouble with swelling? I have woken up several times and felt/looked like a tick ready to pop! I have really watched my salt intake but seems the least bit can do this? First visit to rheumy on August 14th, can't get here fast enough!!
Hi yes I have this and I’m on tablets for it but my legs still haven’t gone down especially when it’s hot weather it’s nothing to do with salt I stopped mine but still didn’t make a difference it must be part of lupus good luck with rheumy
Sharon xxx
Thank you for your responses, I appreciate it! It all makes sense now. When out in the sun if only for a few minutes I can literally feel my cheeks swell and face feels like it is on fire. Fun times ahead geez! I have had to wait 4 months to get in to see a rheumatologist. August 14th is my first appointment. I'm so happy to have found this sight to learn more of what to expect. I've had many strange symptoms for about a year but never connected the dots until I finally dragged myself to my primary doc with a facial rash that wouldn't go away for 3 months. I chalked up my muscle, joint pain to lack of activity and age. Attributed my severe fatigue to hypothyroid. The dots are connecting lol. Trying to keep a positive attitude but I CAN'T get sick I have to care for my very ill husband!! I really appreciate the support system here, Thank you!!
Face, feet, hands. Meds, heat and sun make it worse.
Yes heat and sun make it worse, also stress can really play havoc with lupus. You mentioned your husband is very ill, mine keeps getting kidney stones that obstruct the kidney, he's been really sick the last year or so, more than in the previous 30 years. I know the stress I'm feeling is pretty intense, and its really not good for me. I keep telling myself you have to hold it together for his sake, if he see's me falling apart it will just scare him more than he already is. Like you I keep telling myself I can't get any sicker, I've got to take care of him, I hope you do well, just remember if you don't take care of yourself, whose going to look after hubby. You will find all kinds of support here, anytime day or night.
yes all the time i never noticed if is because of the sun or not i know stress always makes mine worse , i don't think there has been a day in the last 5 years that i did not have some kind of swelling on some part of my body, it is the worst it has ever been right now my whole body from head to toe has been swollen for over a week now.i am also in allot of pain everywhere so i think this is the start of a really bad flare, but i decided not to let this bring me down anymore. i hope your swelling has gone down, i was also thinking i wounder if the seasons make a difference with lupus because it seems allot of people have the same things that happen around the same time. it is funny how never noticed the light made a difference but when i am on my lunch at work i go to an office and turn off the lights because they bother me i never connected the two (the swelling and the light) before but i think i am on to something, i also have a huge window where my office is and i am the only one who shuts the blinds even when someone sits where i sit they always open them but i have to keep them closed.