new symptom, i do have the butterfly rash on my face now, i know how dumb this sounds but it has been there just not this vibrant and i just realized this must be why my face looks this way, i see the doc on the 18th of june, i took pics in case it changes, and i still have the black eye but i do have something new, my throat is so dry i cant swollow, i cant even finish a sentence without having to try and swollow or have a sip-i am also having a hard time eating and swallowing what could this be, i have changed nothing. i have dry eyes too ,feel like i have sand in them and a lot of pressure-guess i need to see an eye doctor
have you ever been tested for Sjogrens? Here's a link to find out more if you like: http://www.sjogrens.org/home/about-sjogrens-syndrome/symptoms
Hope you get some answers soon :)
Rosie
Sounds like symptoms of Sjogrens. Hope you get some answers and some relief at your appointment.
I have the same problem. I use Biotene rinse for my mouth & Restasis for dry eyes. I have Sjogrens an autoimmune disorder causing decrease tears & dry mouth & throat. This can cause dental caries so needs to be addressed with your Dr. Hope this helps
Get a good eye drop like Systane or Octiva or Refresh and use them several times a day. You eye feels like sandpaper due to the dryness. I have one eye that doesn't blink and I also have sjrogren's so this is what the opthomologist and doctors have told me to do. I drink lots of water but I still have trouble with food getting caught and choking. I am trying to remember to slow down eating and to take much smaller bites. Seeing the doctor is still the best advice but until you can get in try the eye drops. Don't get Visine or one of those cheaper brands because they are actually not very good for your eyes, so I was told. Good Luck!
from what i understand i was tested for that by blood test but what the heck else could it be, yes, i can hardly swollow food, i wake up like this, i drink and it is better then it comes back, i go to rheumy june 18th i dont know why the heck she wont give me a diagnosis if the blood test dont show anything, i have every symptom, i just give up-i use biotene and octiva, and still have it but it helps a little, i just got that on my own cause my doctor is an idiot.
OC GAL said:
I have the same problem. I use Biotene rinse for my mouth & Restasis for dry eyes. I have Sjogrens an autoimmune disorder causing decrease tears & dry mouth & throat. This can cause dental caries so needs to be addressed with your Dr. Hope this helps
i meant restasis, been using that a while, still have some problems now and then but just got biotene,my teeth are in bad shape but i go to dentist they just seem to be falling out like my hair
kel said:
from what i understand i was tested for that by blood test but what the heck else could it be, yes, i can hardly swollow food, i wake up like this, i drink and it is better then it comes back, i go to rheumy june 18th i dont know why the heck she wont give me a diagnosis if the blood test dont show anything, i have every symptom, i just give up-i use biotene and octiva, and still have it but it helps a little, i just got that on my own cause my doctor is an idiot.
OC GAL said:I have the same problem. I use Biotene rinse for my mouth & Restasis for dry eyes. I have Sjogrens an autoimmune disorder causing decrease tears & dry mouth & throat. This can cause dental caries so needs to be addressed with your Dr. Hope this helps
This is part of the disease and Sjorgens syndrome. I keep water by my bedside all night long. Also always have something to drink where ever I go for the dry mouth. In the night I will get the "can not swallow' problem, but I can drink water and that improves the sensation right away
I was just told recently I have Sjorgens Syndrome as well. I had my tonsils out in November hoping to stop all the dry/strep throat, tonsillitis, but I still get the same symptoms. Plus, I don't know what medications you're on, but those can cause dry mouth as well. My doctor told me I will more than likely have a permanent raspy voice here soon. Although some people at work call it my Demi Moore voice :)
Gentle hugs you get some relief.
i have been tested and all has come back normal, i am just so disgusted and i havent started any new meds lately so i cant link it to any of that, the meds i am on i have been taking years or months i just dont feel like it could be that, did you all test positive on the sjorgens a and b-i am looking at my test results and it says mine were in normal range, that was november 2012
I know I had to have skin biopsy on my inside lip and that is what dx'd my sjogrens' for sure. Not a blood test. Also my opthamalogist (not optometrist) does a special tissue type test to determine how dry my eyes are at my 6 month checkups. I have had to keep bottled water with me at all times for over 20 years now, no cure but helps the symptoms. Also have a script for restasis. Good luck. and Hugs. ~Mare
I have just joined here after a recent dx of lupus. One of my first symptoms was dry mouth and really sore tongue. dry throat too, but not as bad as yours. I found this product called xylimelts made by Orahealth. I bought from vitacost.com They are lozenges that stick in your mouth shile you are sleeping and help with dry mouth and throat. I have only used them the last three nights but i see a big difference in my dry mouth and throat.
Please ask your doctor about getting pilocarpine. It is so wonderful for dry mouth.
Hi, try to limit salt on your food until you go to the doctor. That might help? What meds., are you taking, that might have something to do with it-maybe? Make sure that you don’t miss that appointment, hope you feel better soon…Beverly L.