Ok well this has been going on for 2 days now my legs & hips & lower back r killing me I can’t move without crying and walking too I tried heating pad hot bath god those where a mission to do and my pain meds don’t even work and I hate I mean hate goine to the er the all ways look @ me and treat me like I am some kinda of drugey trying to score it hurts and make me mad @ the same time so if anybody got any pointers cool but it really looks like I am going to have to call the peramedics yuuukkkiiii :’(
HI TINK....I AM SO SORRY U ARE GOING THRU ALL OF THIS & FEEL SO ALONE!! THAT IS TERRIBLE :(.....IF U ARE IN THAT BAD OF PAIN & DISCOMFORT THEN U DEF. NEED TO SEE A DOC., I TOTALLY UNDERSTAND HOW U FEEL BOUT GOING TO THE ER. WE ALL HAAATEEE THAT!! BUT YOU CAN'T STAY LIKE THIS, EITHER! THEY NEED TO FIND SOMETHING TO HELP YOU....SO DO WHAT U HAVE TO , JUST SO U CAN FEEL BETTER.....WE R HERE 4 U & PLS. KEEP US POSTED!! I WILL KEEP U IN MY PRAYERS & THOUGHTS!! FEEL BETTER & SENDING LOTS OF WELL WISHES TO U!! {{HUGS}} SUZIE XO
You definitely need to go to the ER, I know exactly how you feel about going. I get the same thing from the local hospital. You just have to remember that what they think is completely irrelevant when you feel the way you do. I recently had a similar flare up and I went in twice that week and even though it sucked, they did give me a major shot of some kind the last time and it took the edge off, so it’s worth it. I was just so out of it that I don’t remember what the shot was. Do your hips feel like they are sitting bone on bone? I couldn’t even stand for a couple of days, any pressure on both my knees and hips and lower back was unbearable and made cry like a baby.
Your not alone you have friends on the computer or the telephone. Thats the reason I have roomates living with me, I am never alone. They make me laugh a keep me company. Thanks I have them around when I fell last week on the deck. Keep in touch. We are only a finger away. Hope everythinggoes well.
Tink, i am so sorry that you are going thru so much pain.....OH how I can relate. The last few days my legs have been so painful and heavy they feel like tree trunks. Yet they are painful. My back hurts all the way up to my head. I had a migraine last night and had ot take an extra pill for that. I am off of my NSAIDs dus to my Kindey Disease so all I take for pain is Tylenol. It might as well just be Kool Aid!!!
I agree, if you continue to have so much pain you made need an injection of something. Have you ever had Toradal? It helps me sometimes. The only thing is sometimes, for some people, depending on your sysytem, it may not last very long. But it will get you over the hump.
Keep us posted and know that we are all thinking about you.
Mary
Hi tink, hay RELAX you causeing yourself to have FLARES . They can be / get really bad stop doing whatever you are over doing and do things in moderation ( little at a time ) , and if things don't get done as they usually do it's okay - just RELAX and DON'T STRESS. It started off like that for me and believe me going to the ER was not my thing , i got tired people saying okay it only arthritis and yes that was the case along with depression , and and LUPUS and GOD knows what else . So Please just RELAX even when you can't and take it easie ( TIME OUT is good ) ..... Beverly L.
P.S. the heating pad and heating bed matter cover are my best friends .....Bevrly L.
Tink, I am just reading this so i hope by now you have found a little comfort.
It seems like the one thing we all have in common is how much we hate going to er.
But sometimes we have to.
If I could i would
weave a luminous net of prayers and make a special cloak from the cloth; you could wear it if you have to go some place that is stressful, or you could wrap up in it when you hurt.
this special cloth would have little ties in it where the prayers are tied together and those ties would be make of that glittery snow-sparkle that you see when the moon shines on fresh fallen snow.
The cloak would have the ability to provide you with the perfect aroma therapy. Sometimes it might smell like mint, or lavender, or sandalwood and roses, or hyacinth...or whatever would relax your muscles, whatever soothes.
if you wanted to hear a lullaby you could scrunch a corner of the cloak into a little pillow and rest your head to listen to the songs that only you and the stars could hear; and it would be completely invisible to everyone but you and the angels.
O look! I saw the blanket maker going out to gather sparkle...I think she's working on your blanket
Janice
That’s beautiful, I’m going to copy it, I hope you don’t mind!
Please when you get over this flare try to get a rheummy doc,so when you get flares you can go directly to him/her to get a shot for some relief. ER.s are rough to go to during these times.
When you are not feeling too bad put exercise into your daily scheduleto see if this will help the joints from locking up. This has helped me alot I have flares but haven'nt suffered from locked joints this past year thanks to 5 days one hour exercising.
But it appears that some pain will always be our constant companion. (lol)
God bless you and I hope you feel better.
awww thanks...im glad you liked it
Catharine said:
Janice
That's beautiful, I'm going to copy it, I hope you don't mind!
Hi there tink, we havent spoken before, but i know how you feel. I used to live on my own for quite some time, and its hard coping with something so painful when you are on your own, its just nice to be able to share how you are feeling. And yes i agree some hospitals do treat patients who are asking for help with pain, as though they are druggies, its this automatic suspicion. When that happens to you, it must make you feel so awful. I have been mistaken for a druggie before in a store, as they saw i had lost some teeth and looked not well, and just made the assumption i must be on drugs, i was fuming and told it to them straight, what was wrong with me, they soon had to apologise. Its so horrible when the pain gets to that level where its hard to walk, and we are in tears. I have been there many times, so i know what you are talking about. I sometimes lay awake with pain and thump the mattress in sort of abit of frustration maybe and also there isnt alot else we can do, is there? And as you have said you have tried everything. Have you tried using a T.E.N.S machine, its a transelectrical nerve stimulator, and it makes the body produce its own sources of morphine by stimulating the right areas when you have it on you. I dont know if you already know about them or have tried them at all. I have one, and its a small portable one, and it has a clip for putting on a belt or on the clothes if you need to. I found it invaluable when i was in hospital, as i was in so much pain and they would forget to get my pain killers out, as they needed two staff to get them as they were controlled drugs, they would get busy and sometimes my meds would be two hours late, which drove me and my husband up the wall, he tried explaining to them by them leaving it, its making my pain ten times worse or more, but they didnt seem to care, all they kept saying was they didnt have the staff to dish it out right now, and had to wait until another qualified person would come on to work, so why cant they borrow someone from a ward for those five minutes to get their patients sorted, or maybe why dont the govement get more staff back on and stop these stupid cutbacks at the moment, its making the hospital staff more uptight and they dont have enough time for everyone. In the end they did start to get it to me on time, as my specialist said i had to have my pain meds at certain times etc. I think some of the hospital staff do think that you take pain meds for the sake of it, and dont really need them. I dont think that they realise how painful that Lupus can get, as alot of the textbooks tell them what Lupus is, but it can be managed with medication, it doesnt really say how bad it can get unless they really look into it alot deeper. Stay strong as you know who you are and what you need. And i am so pleased you have come on LWL to talk, it will help for sure, talking to others who understand. Do you read at all, in between the bad times, or have any other hobbies that you are able to do? Going back to the T.E.N.S machines, some doctors have them to loan out if you dont want to go and buy one and find its not for you. I think you just have to try and be strong and tell these people exactly how it is? Dont let them walk all over you and make you feel bad like this, you are worth it? I know its not easy when you are not well, we tend to give in more dont we? Have you got a good Rhuematologist, and doctor, if so ask one of them to provide you with something stronger for pain, as whatever you are on at the moment clearly isnt working. I really feel for you, i have been where you are many a time. If you do feel really bad then maybe hospital is the best place for you where you can get some tests and get reassessed by a pain team, is there a pain clinic at the hospital you go to, as they can be quite helpful. Anyway i wont go on anymore, but just to let you know any time you want to talk feel free to message me, add me as a friend if you would like to, i know its hard at the moment, and i am thinking of you. Be good to yourself, take care, and please look after yourself, love and hugs Astrid40xoxo