Had a long day at doctor but at least had no negative news after a detailed catscan of my lungs. My pulmonary guy read results of scan and reported that my interstitial lung disease has not worsened. It's not better, but it's not worse. Have to consider that good news I guess. He continues to emphasize the importance of palliative care, which concentrates on the symptoms and making the patient as comfortable as possible rather than focusing on a cure, of which there seems to be none. My remaining hope for the lupus and interstitial lung is benlysta, which I have just started. Hope it can bring at least some improvement.
Hope everyone is doing well and suffering as little as possible.
Thomas Franklin