I had my second benlysta treatment this week and all seems to have gone well. No ill effects, although my interstitial lung disease forced me into an emergency room visit Saturday morning after a night of hard breathing caused me to make the 911 call. The doctors there upped the prednisone to 40 MG for a few more days and also put me on antibiotic called amoxicillin for a week. I was not even admitted to hospital as I was the week before. Recovered nicely and even went to dinner that night at Carrabba's. Feeling pretty good Sunday morning.
Will got for next benlysta session in about another week. My rheumatologist hopes it will not only help with the lupus but also aid my lung condition. Here's hoping for the best.
glad you are feeling better, but have to ask were you hospitalized for an infection in your lungs? I'm very interested in whether the benlysta will actually help your lung disease, so far nothing has helped my interstitial lung disease.
I too have interstitial lung disease and have been on benlysta for the last 6 months. it has definitely helped with my fatigue and aches and pains, but not the lungs. Because I was feeling better, I started to try to taper off of the 10 mg of prednisone that I have been stuck on and as soon as I started to decrease - my coughing returned. The only thing that helps my lungs is the dreaded prednisone - I don't think I will ever get off of it! We have talked about rituxan, but my insurance company would not cover it. Good luck to you - hope you continue to feel better!
They gave me antibiotics in case there was an infection. I don't think there was. I just had a flare-up with more difficult breathing and lightheadedness. They upped prednisone to 40 MG from 15 for four days and then want me to taper down. Don't know if benlysta will help lungs.
Thomas Franklin
hopeful said:
glad you are feeling better, but have to ask were you hospitalized for an infection in your lungs? I'm very interested in whether the benlysta will actually help your lung disease, so far nothing has helped my interstitial lung disease.
Good luck to you will hold good thoughts. take care of yourself.
Thomas Franklin said:
They gave me antibiotics in case there was an infection. I don't think there was. I just had a flare-up with more difficult breathing and lightheadedness. They upped prednisone to 40 MG from 15 for four days and then want me to taper down. Don't know if benlysta will help lungs.
Thomas Franklin
hopeful said:
glad you are feeling better, but have to ask were you hospitalized for an infection in your lungs? I'm very interested in whether the benlysta will actually help your lung disease, so far nothing has helped my interstitial lung disease.