Hi I have Lupus and Fibromylgia, like everyone else I go through flares, I recently lost my disability because I tried to go back 2 work, was unable 2 work FT, so I was working 2 and 3 6 hour days, I have filed for reinstatement with my dr support, but have no money coming in because had 2 stop working dye 2 bad flare. I suppose 2 lose Medicare @ end of month and don’t have any other insurance. Going 4 biopsy of breast tomorrow 2 add more stress 2 my life on top of inflamatory IBS. Any ideas if I can get help fighting the disability claim?
I would get a disability lawyer. I got mine really quick by using a lawyer. They get paid after you get your check. It worked out great for me. Good luck it’s such a rough road trying to live with no income. I think it’s ridiculous the amount if time they require. They (the powers that be)should have to try to live like that and be sick at the same time! They would never make it. It’s so frustrating. Prayers for your quick reinstatement!
I personally would contact lawyer. Hopefully SSDI lawyer might take you on but since it is complicated I am not sure but all you can do is call and ask. You might call SSDI and ask about if SSDI lawyers are required to still take your case even though it is more complicated. This way you might at least know legally what they is expected. I also would not just take the first answer from SSDI,unless it is yes. Maker sure you get name or why to document who you spoke with in SSDI.
I also start documenting anything to do with SSDI and either side of your case, one that you worked when accepting SSDI and now trying to reinstate it. I can see how working might work in your favor if you let them know ahead of time that you had a job and were trying to work...if you never told them, i can see how it can not be so good. But a decent lawyer should be able to help you. If legally SSDI do not, you might start calling all free legal services, plus you might have lawyer assigned to you if charged. Some public defenders are actually very good if you can get them to care about your case. So try.
I hope as to your health, that all goes well. Maybe since your doctor is supportive he might give you some very cheap health care until this is straighten out. IBS, eating as healthy as possible is all i can suggest. Avoid all trigger foods and i get stress triggers it. I sincerely wish you the best.
Just remember to start documenting everything..keep it all in one notebook. That can be lifesaver
You can check to see if there are clinical studies available in your area. At lwast you would be seen by a doctor and get a few dollars and maybe some meds.
Thank u for the link 
Thought that you could work at least part time while on disability. I get fliers from SS office regarding that about once a year. Anyway - I agree with the other comments - you should get an attorney. Have you tried asking SS case worker what you can do?
Regarding your biopsy and flares - I am sending best wishes & healing thoughts & prayers your way. Also - most hospitals & some clinics have programs to help pay a portion -to - all medical costs. You just have to ask a patient advocate or patient services if they have assistance available. I am in Kansas and hospital group that I applied to was Helping Hands. I filled out a questionnaire & attached a letter of why I was in need of assistance. They covered cost of my hysterectomy. It was my aunt that worked at that hospital that told me of the program. It would be worth a shot to ask & apply if available. Good Luck & try and stay as positive as you can.
Try not to worry about things you have no control over because stress will make you flare or it will make your flares worse. Sounds like your on the right path, reinstatement with your Dr's support although it may help to obtain a lawyer. I tried going back to work part time after two years off because I ran out of things to occupy my time {community stuff} and got bored after awhile, but I realized that I would not be able to work because minial work was too strenuous because of my lupus. Ive become a little more depressed because theres not much I can do anymore. I have to learn to ask others for help. I can hardly get my own grocerys. Asking for help is something that we will eventually have to do. Hopefully there are agencys where you are that will help you with whatever assistance you need. Ask for help, dont stay in stress mode, Pray for strenghth, patience and reinstatement. Good Luck
It’s ironic that I’m reading this tonight because i have been suffering with stomach pain constipation for 2 months afraid to go to the doctor. I finally went after i lost close to 20 pounds he gave me some type of acid reducer/pain medication but I don’t think that helped but I did stop eating whole wheat bread and bran muffins. 4 days ago the pain stopped and I went to the bathroom without a laxative. I went to work and did not connect the pain and the other symptoms with the bread and sugar lo and behold I began to experience the symptoms after only 2 days of eating the bread and the muffin. Thank you it will not happen again I will be gluten free from this point on bless you
I am so sorry you are going through this obstacle it is bad enough to have this disease now know funds, I was just laid off from my job as a phone operator they said my position was phased out,I have worked for this company for 12 years and get the boot,I have been trying to put applications in online but to my prevail nothing, I wont give up and neither should you, God bless you and good luck and keep fighting for what is yours, you didn't ask for this disease ,but do ask and fight for your disability
Sorry to hear this, try calling the lupus foundation , or your state rep. There has to be some information ., hope that things work out for you!..Beverly L.