I am so discouraged. I have been on a downward spiral for about the past 2 years. I have such pain that never seems to be under control that I just don't want to do anything.
I am trying to work 40 hours a week, but it is getting harder. I am 58 and still want to work, but I am just about ready to throw in the towel. Hase anyone else had to deal with these issues?
I had A difficult time recognizing my limitations but finally i applied for SSD and was approved. At the present i work part time so i still feel as though i can contribute to society and at the same time ian rest and try to remain as healthy as ppossible . I’m 62. It’s hard but us humans can adjust to almost any situation
Thank you for your reply. I have been thinking about SSD. I have been researching this option.
I have been in the same situation for a few years. I keep struggling on to work full time even though I have to spend the weekends and evenings in bed and it takes everything and more to do it. I am again thinking I need to apply for long term disability or go part time. I am 33 so it is very hard to think about not working but it is taking a huge toll on me and my family. It is tough for sure.
I was diagnosed at 32 years old & at the time I had worked 40 hours a week but after a year or two doing that, I had the hardest time keeping up & would spend the weekends and evenings recooperating. Luckily my workplace let me work 4 days a week instead of 5 & that has helped tremendously. There are times that I wish I could work 3 days a week but insurance is an issue since my husband doesn’t have it offered at his workplace & he has to go through mine. I’m 39 years old now & am too thinking about SSD in case I can no longer work as much as I do. I do want to hold off on doing that because I still believe I have some work life left in me. But it’s really hard sometimes.
I went through the same thing as Escape33. I’ve been working 40 hours a week all my adult life. For the last 6 years or so I’d work my 40 hours a week. Would come home after work and go to bed. Spent most weekends in bed as well. I’ve been struggling with Lupus since age 19. Doctors finally diagnosed it when I was 29. I’ll be turning 57 in a couple of weeks. Last year it hit so hard I had to stop working. The pain & stiffness is horrible. I can’t walk very far or move too much without gasping for breath. Taking a shower is a nightmare. By the time I’m done I’m gasping for breath, in so much pain I have to go lay down. It’s ridiculous. I’m still trying to get SSD. At this point, I’m waiting on a hearing date. I’m so sorry you’re going through all this. I feel your pain, literally. Good luck to you & God bless.
Bello! Sorry to hear that you are gong through this for that long!! It’s hardware at times, moré so tan usual . Lupus does so much to us, and mate everything seremos imposible to live at times. But we have Trinidad positve to live. Yes! We all here can relate -smile. Holding on to the pastmake iterad alzo, just wanting to do the things that we use to and Being who were Is so far Behind us make us a total mess. Hope that you feel better soon! Don’t give up ? Tale care…Beverly L.
Grammie Kate
It's like you read my mind.... I have really been struggling this week with exactly these issues. It has been 3 months since I have returned to full time work. I have learned that a commute, working full time,and many times over time as well it not a good combination. I emailed my job coach, and decided to return to a job search again in June. The commute has to go, I spend almost 2 hours a day, when I could be using that time to go to the gym, even if its only a few times a week. I don't like the environment, the women who talk about each other, and the new temp that just started this week - Get a life people.
Does anyone else have trouble adjusting to daylight savings? Ok, I'm from Indiana and we went to daylight savings kicking and screaming... I don't like it. My symptoms increased, my fatigue increased, my mood decreased.. ... This was the worst week, and I'm so glad that its over... I've warned my kids - I need to rest this weekend. Sorry for the rant. I realize that in order for something positive - I have to get the negative out of my life, its too emotionally and physically draining for me. We should write a book about the phases of Lupus?