I would like to know if anyone was working when they found out they had lupus and continued?Anyone had to wait awhile and went back or anyone due to lupus was working and had to stop?
Hi Lia I was working and just had my baby when I found out I had lupus and I continue to work till this day…its been day I dont wanna work because of a flare up or headaches or just pain period but I have to work because if I dont work my kids dont eat and im not letting that happen, I need my insurance also so I have to work… Its hard sometimes but if you have to do it you will… I love my kids to death that even when im shaking and super dizzy I still work… I only make 10dllrs an hr and I have to pat rent, lights, diapers, food, my medicine it self its over 300dllrs a month, and xtra stuff for my kids so my money its tight every month that if I dont work one day it means I wont be able to buy my meds…but everybody its different and we all handle it different some people can handle the bn pain more than others and some have more flare ups than others… But if you dont have the need to go back to work then I will say dont go untill you get better…i wish you the best my friend…be strong and god bless…love Dunnia…
I too work with Lupus, however, I was able to modify my work schedule to using ADA guidelines. Dunnia, maybe you can do the same, go to ADA.gov and see your rights. If all else fails I'll go on disability but that is a last resort for me.
Dunnia said:
Hi Lia I was working and just had my baby when I found out I had lupus and I continue to work till this day...its been day I dont wanna work because of a flare up or headaches or just pain period but I have to work because if I dont work my kids dont eat and im not letting that happen, I need my insurance also so I have to work.... Its hard sometimes but if you have to do it you will... I love my kids to death that even when im shaking and super dizzy I still work.... I only make 10dllrs an hr and I have to pat rent, lights, diapers, food, my medicine it self its over 300dllrs a month, and xtra stuff for my kids so my money its tight every month that if I dont work one day it means I wont be able to buy my meds....but everybody its different and we all handle it different some people can handle the bn pain more than others and some have more flare ups than others.... But if you dont have the need to go back to work then I will say dont go untill you get better....i wish you the best my friend...be strong and god bless....love Dunnia...
Hi Lia since my official dignosis I have worked but missed several days using sick leave until that was used up. I am currently on FMLA and will return in August. The only way I could afford that is because I belong to a sick bank wihich became active a month after I was off (off 3 months). It only last 45 days do I also took my reserve pay early (money teachers set aside so they get paid in the summer). I am being very frugile so that I am okay until I return back to work. I considered it Gods grace because I had many flares working in such a stressful environment. I have considered LTD as a next sep if needed then retirement disability and SSD.
Yep have worked for 40 years - occasionally I have had to take breaks due to flares but mostly able to work
At the time I found out that I had the illness, only one of our 5 was still in high school. I continued teaching all day,came home, collapsed on the sofa, took a nap, then got up and graded papers and conpleted preparation for the next day. Then I gradually cut back - fewer classes, part time, substituted, etc. Then one day it dawned on me I must quit and take care of myself. Like some of the girls who have no choice, my husband was providing for me. Less stress has definitely helped me with my issues. I used to dread each day but somehow got through it with God's help and strength. I couldn't work today if I wanted to... For me the answer came at each stage of my illness and as the symptom increased. Praying for wisdom for you..Sometimes it takes a couple of years for disability to kick in....many things to take into account. Trust God...He will direct your path my friend! Praying for you! Faye
Yes to all!
Yes, I was working and continued to work for 10 yrs until I was no longer able. That was more devastating than my diagnosis. Giving up a job I loved and being home sick all the time. I went into a major depression, I felt like I let my family down by not being able to provide the income we so depended on.
Yes I was working when I was diagnosed, and had to stop. And it has been down hill since then, still waiting for my approval for ssi. Many blessings and hugs.
Thanks so much for your inout and sharing your situation, I have been providing care for myself and mom me I been working 32 years, taking care mom for over a decade,If I dont work we dont eat or have shelter,I am on a short term leave of absence it ends in sept and the long term kicks in I dont know how long that is, with the new meds for my heart and the reactions I am having I do agree I dont think I need to go back unless I am on a scheldue with my meds.I had a ok day today and I hope all is well with you and yours , how old are you kids ?Take care of yourself and the little ones.
Dunnia said:
Hi Lia I was working and just had my baby when I found out I had lupus and I continue to work till this day...its been day I dont wanna work because of a flare up or headaches or just pain period but I have to work because if I dont work my kids dont eat and im not letting that happen, I need my insurance also so I have to work.... Its hard sometimes but if you have to do it you will... I love my kids to death that even when im shaking and super dizzy I still work.... I only make 10dllrs an hr and I have to pat rent, lights, diapers, food, my medicine it self its over 300dllrs a month, and xtra stuff for my kids so my money its tight every month that if I dont work one day it means I wont be able to buy my meds....but everybody its different and we all handle it different some people can handle the bn pain more than others and some have more flare ups than others.... But if you dont have the need to go back to work then I will say dont go untill you get better....i wish you the best my friend...be strong and god bless....love Dunnia...
HI I am on short term medical leave too ,as of Sept 3 it will turn into long term medical leave, I dont want to go back to work unless I have my meds on scheldue and right now they keep changing my meds, flares are still new to mew I just found out about lupus on april 21 of this year.I dont know if you ever get use to lupus I feel as of right now you take one day at a time, sometimes every hour at a time , my name is Lia and your is ? Someone said they used website called ada.gov where you can find out your rights.Take care of yourself and God bless you.
Hi Lia since my official dignosis I have worked but missed several days using sick leave until that was used up. I am currently on FMLA and will return in August. The only way I could afford that is because I belong to a sick bank wihich became active a month after I was off (off 3 months). It only last 45 days do I also took my reserve pay early (money teachers set aside so they get paid in the summer). I am being very frugile so that I am okay until I return back to work. I considered it Gods grace because I had many flares working in such a stressful environment. I have considered LTD as a next sep if needed then retirement disability and SSD.
I wish you all the best and hope life and obstacles get better, Lord is the only one that has a plan for us.take care.
fighter said:
Yes I was working when I was diagnosed, and had to stop. And it has been down hill since then, still waiting for my approval for ssi. Many blessings and hugs.
I can relate to wanting to go back to work and letting your love ones down I have been taking care of my mom for over a decade I am on a short term medical leave that ends sept 3 and the long term would kick in I am still adjusting to the meds they keep changing them I want to get on scheldue I donot want to go back and have a set back ,this illness has been more than a adjustment I pray to God I can be happy again I long so much to be loved and my mom can be releived from all her pains, I wish you and yours well.
Bluesgirl32 said:
Yes, I was working and continued to work for 10 yrs until I was no longer able. That was more devastating than my diagnosis. Giving up a job I loved and being home sick all the time. I went into a major depression, I felt like I let my family down by not being able to provide the income we so depended on.
lia nuriddin said:
HI I am on short term medical leave too ,as of Sept 3 it will turn into long term medical leave, I dont want to go back to work unless I have my meds on scheldue and right now they keep changing my meds, flares are still new to mew I just found out about lupus on april 21 of this year.I dont know if you ever get use to lupus I feel as of right now you take one day at a time, sometimes every hour at a time , my name is Lia and your is ? Someone said they used website called ada.gov where you can find out your rights.Take care of yourself and God bless you.Hi Lia since my official dignosis I have worked but missed several days using sick leave until that was used up. I am currently on FMLA and will return in August. The only way I could afford that is because I belong to a sick bank wihich became active a month after I was off (off 3 months). It only last 45 days do I also took my reserve pay early (money teachers set aside so they get paid in the summer). I am being very frugile so that I am okay until I return back to work. I considered it Gods grace because I had many flares working in such a stressful environment. I have considered LTD as a next sep if needed then retirement disability and SSD.
I want to work so much,I am on short term medical leave I have until Sept 3 and then long term medical leave would kick in I have been working for over 30 years , it is so hard to give up my livelyhood especially since I have providing care for my mom for a decade now, I want to be able to go back to work healthy and you are right God will guide me and I am asking him for that as well as strength.
Faye said:
At the time I found out that I had the illness, only one of our 5 was still in high school. I continued teaching all day,came home, collapsed on the sofa, took a nap, then got up and graded papers and conpleted preparation for the next day. Then I gradually cut back - fewer classes, part time, substituted, etc. Then one day it dawned on me I must quit and take care of myself. Like some of the girls who have no choice, my husband was providing for me. Less stress has definitely helped me with my issues. I used to dread each day but somehow got through it with God's help and strength. I couldn't work today if I wanted to... For me the answer came at each stage of my illness and as the symptom increased. Praying for wisdom for you..Sometimes it takes a couple of years for disability to kick in....many things to take into account. Trust God...He will direct your path my friend! Praying for you! Faye
I am working too. Most days are better than not. But luckily my boss is nice about everything. I have saved my sick and vacation days for times wgen I can’t go. It sucks. I haven’t been really diagnosed with anything yet. But I know I need to work! Otherwise it would make me way depressed! Hope everything starts looking up for u!
I am still working must admit that my boss is very understanding. He is leanant when I cant where shoes and battle to walk. Gets a lot of support form my collueges. Even clients
Did you try ADA accommodations? I am a teacher too Lia, and the ADA accommodations gives me an extra period free and reduces the amount of classes and students I am responsible for. The reduced or "modified" schedule as ADA refers to it, is a life saver. I give more quality instruction with the students and the delayed schedule helps me when my meds were changing due to finding the combo that works for me.
See if your Principal and HR are able to give you a modified schedule. Well, they have to its federal law. Then return to work. I am very active and yes I feel sluggish at times and my face is huge at times, but I still remain active. This is the only way I know how to cope, if I stay home, I might become over consumed with the illness and become worse.
Check into ADA accommodations. http://www.eeoc.gov/policy/docs/accommodation.html#requesting
Don't succumb to this illness too early. There is a member online whom has worked in education 43 years after diagnosis, she is my hero and whom I keep in my mind when I feel like "whoa its me" so maybe her story can inspire you too
lia nuriddin said:
lia nuriddin said:HI I am on short term medical leave too ,as of Sept 3 it will turn into long term medical leave, I dont want to go back to work unless I have my meds on scheldue and right now they keep changing my meds, flares are still new to mew I just found out about lupus on april 21 of this year.I dont know if you ever get use to lupus I feel as of right now you take one day at a time, sometimes every hour at a time , my name is Lia and your is ? Someone said they used website called ada.gov where you can find out your rights.Take care of yourself and God bless you.Hi Lia since my official dignosis I have worked but missed several days using sick leave until that was used up. I am currently on FMLA and will return in August. The only way I could afford that is because I belong to a sick bank wihich became active a month after I was off (off 3 months). It only last 45 days do I also took my reserve pay early (money teachers set aside so they get paid in the summer). I am being very frugile so that I am okay until I return back to work. I considered it Gods grace because I had many flares working in such a stressful environment. I have considered LTD as a next sep if needed then retirement disability and SSD.
Faye, how long did you teach after your diagnosis?
Faye said:
At the time I found out that I had the illness, only one of our 5 was still in high school. I continued teaching all day,came home, collapsed on the sofa, took a nap, then got up and graded papers and conpleted preparation for the next day. Then I gradually cut back - fewer classes, part time, substituted, etc. Then one day it dawned on me I must quit and take care of myself. Like some of the girls who have no choice, my husband was providing for me. Less stress has definitely helped me with my issues. I used to dread each day but somehow got through it with God's help and strength. I couldn't work today if I wanted to... For me the answer came at each stage of my illness and as the symptom increased. Praying for wisdom for you..Sometimes it takes a couple of years for disability to kick in....many things to take into account. Trust God...He will direct your path my friend! Praying for you! Faye
Yah Ann you are my hero.... I aspire to be like you. (seriously)
Ann A. said:
I was working and had an infant son. Went back to school and worked,had another kid, more school more work worked until retirenent 43 years btwn dx and retirement