Has anyone taken cellcept and experienced back pain? I’m interested in hearing any experiences anyone can share regarding the side effects. I had expected the nausea and stomach upset which subsided with time but it has recently occurred to me that some of my other symptoms worsening joint pain (fibromyalgia symptoms) back pain, severe lower back/tail bone pain, etc…may be med related. Thanks for anything you can share. With so many meds sometimes its hard to put all the peices of the puzzle together.
I just recently stopped taking it (I needed to get my back injected) and since I’ve stopped it my body has stopped aching all over, I have more energy, and I’ve stopped getting weird skin issues. My joints still hurt, particularly with the colder weather moving in but I don’t feel like someone beat me with a baseball bat anymore. I never connected the cellcept with how bad my fibro was until your post so there could be something to it.
Have been taking 2000mg Cell Cept for about 5 months now (previously on Imuran but it was damaging my liver). I feel a little bit clearer mentally. Joint pains about the same, blood work improving, skin issues about the same also. Sorry I cant give you any exact information. I hope it goes well for you. Kaz x
for me, cellcept = diarrhea.
my dr wants me to go back on cellcept because of my high inflammation, but first I am trying a nutritional plan and some holistic dentistry. I'm not in crisis (kidney function still good, no other organs affected) so I figure I can give this nutritional cleanse program a chance before resorting to cellcept again. The long-term potential effects of cellcept scare me.
I mean, we gotta do SOMETHING. we can't ignore lupus. it doesn't just go away if you ignore it. Which is why I've been on prednisone 3 times (and cellcept 2 years, and placquenil 1 year, and numerous other drugs).
but to answer your question, I have not correlated back pain to cellcept.
my chronic pain resides in my shoulders. And it has, thank you God, cleared up with the nutrition plan.
Hopefully my inflammmation is coming down too. (Need new lab work!)
I just got back on cellcept after about a year,switched to cytoxin last October. . My rhuemy put me back on it temporarily until i get a clearer understanding from a new pulmanologist about my inflammatory lung disease. It helps with my brain fog,fatigue,small joint inflammation ,plursily and lung function. . I just started having pancreantitis in the past few months so hopefully it helps that too!
I took cellcept for quite a while before they decided to try benlysta, and I never experienced back pain as a result of the cellcept. Prednisone is another story altogether. I had to take high volumes of prednisone for a while, and the result was four fractured vertebrae. It seems prednisone is extremely hard on the bones. It took several months at lower doses of prednisone to ease the back pain and allow to stop sleeping in a reclining chair. But the cellcept never caused a back pain problem for me.
Thomas Franklin
Carla Ulbrich said:
for me, cellcept = diarrhea.
my dr wants me to go back on cellcept because of my high inflammation, but first I am trying a nutritional plan and some holistic dentistry. I'm not in crisis (kidney function still good, no other organs affected) so I figure I can give this nutritional cleanse program a chance before resorting to cellcept again. The long-term potential effects of cellcept scare me.
I mean, we gotta do SOMETHING. we can't ignore lupus. it doesn't just go away if you ignore it. Which is why I've been on prednisone 3 times (and cellcept 2 years, and placquenil 1 year, and numerous other drugs).
but to answer your question, I have not correlated back pain to cellcept.
my chronic pain resides in my shoulders. And it has, thank you God, cleared up with the nutrition plan.
Hopefully my inflammmation is coming down too. (Need new lab work!)
what can of nutritional plan is it? I have lupus & fibro, recently diagnose with arthisis in the neck but shoulders especially the left one has me in tears. In in therapy for my neck but I don't know what's going on with my shoulders. Pain meds don't work like it use to. I just need some freaking relief.
I also have taken cellcept and experienced nausea and backaches. So many different medications, it becomes
so confusing trying to understand what side effect belongs to what medication.
I took cellceptt. Some nausea, not much. It made me exhausted, lethargic. I lost weight because nothing tasted good except fruit and ice cream. And it didn’t help me. I s,lasted 6 months. Benlysta was about the same, less nausea. It helped some things.
It's super-clean food, easy to fix and easily digested.
If you want to have a quick chat about it, give me a call! (908) 616-3482
I've been on it for 2 months and it has got my chronic pain level down to ZERO most days.
I occasionally need an advil for PMS, but I used to take 2 percocet and sleep sitting up.
It's like - where was this solution for the last 20 years?!
aisa64 said:
what can of nutritional plan is it? I have lupus & fibro, recently diagnose with arthisis in the neck but shoulders especially the left one has me in tears. In in therapy for my neck but I don't know what's going on with my shoulders. Pain meds don't work like it use to. I just need some freaking relief.