Cellcept

General
1

Hello everyone!

I have SLE, Sjogrens and Fibromyalgia. My rheumy just started me on Cellcept. Anyone here care to share their experience with this drug. Side effects etc...little nervous about starting..

Thanks Cheryl

2

Hi Cheryl and welcome to the group. I’ve been on Cellcept for 4 years now, and have had nothing in the way of side effects. I feel it has been a great help in my illnesses. Don’t be scared. Even though I know everyone is different in their illnesses and how they react to different medications. I hope it works well for you.

Cam

3

I have been on CellCept now for 6 months. I have not had any side effects and my flares have been almost none. i am still on the plaquenil as well. But it seems to be doing well for me. I am on 2000 mg per day.

4

I've been on Cellcept for over a year now. It really helped me after suffering from severe and acute peripheral neuropathy. You can use steroids with it if you flare but I've not needed them. I'm on 1gm twice a day and this dose seems to be just right for me. I had some nausea to start but now if I eat within an hour after taking the med my nausea is kept at bay. I'm grateful for the positive results I have had. Good luck to you. I'm hoping you too will find that perfect balance.

5

I have been on Cellcept for 2 1/2 yrs. The only side effects has been some stomach stuff. But in time it has gotten better. I still have some flares, but this med has worked the best of all the others. I am on the max 3000mg a day. I am still on plaquenil, prednisone 4mg, and Benlysta is my latest. Best of luck to you, it's always scary trying a new med when you read the side effects.

6

So it’s best to eat after taking the cellcept? How long after I take it should I eat? So most of you take it on an empty stomach?

7

I haven't had any stomach issues with this at all and I usually take it on an empty stomach but every person is different. Cellcept has helped me more than any other medication I have tried. I am finally off of prednisone which at my highest dosage was 80 mg. Took forever to wean myself off of it.

8

I've been on it for several yrs for Lupus Nephritis 1000 Mg. At first I had stomach upset but I'm use to it. So far so good, no kidney problems since I've been on it. I take milk of Mag 1/2 he before the Cellcept, seems to work.

9



OC GAL said:

I've been on it for several yrs for Lupus Nephritis 1000 Mg. At first I had stomach upset but I'm use to it. So far so good, no kidney problems since I've been on it. I take milk of Mag 1/2 he before the Cellcept, seems to work.

10

I have DM with a side of pulmonary fibrosis. I have been on Cellcept for just over a year along with prednisone, plaquenil and a bucket load of supplements. To date this cocktail has kept everything relatively under control. I have noticed no side effects from the Cellcept and believe it is a great med option. Good luck.

11

For best absorption it’s best to wait an hour before eating. Also I don’t take calcium or antacids at the same time as the cellcept.

12

Thanks Cameron for your reply and words of encouragement!

Cameron said:

Hi Cheryl and welcome to the group. I've been on Cellcept for 4 years now, and have had nothing in the way of side effects. I feel it has been a great help in my illnesses. Don't be scared. Even though I know everyone is different in their illnesses and how they react to different medications. I hope it works well for you.

Cam
13

Sanrien

yes my rheumy still wants me to take the Plaquenil twice a day and still on Prednisone 30 mg a day, about to start dosing down to 20 mg a day starting tomorrow.

Sanrien said:

I have been on CellCept now for 6 months. I have not had any side effects and my flares have been almost none. i am still on the plaquenil as well. But it seems to be doing well for me. I am on 2000 mg per day.

14

OC Gal thank you for reply!

OC GAL said:

I've been on it for several yrs for Lupus Nephritis 1000 Mg. At first I had stomach upset but I'm use to it. So far so good, no kidney problems since I've been on it. I take milk of Mag 1/2 he before the Cellcept, seems to work.

15

Thanks MicWal I hope it works well too. So tired of feeling horribly bad all the time!

MicWal said:

I have DM with a side of pulmonary fibrosis. I have been on Cellcept for just over a year along with prednisone, plaquenil and a bucket load of supplements. To date this cocktail has kept everything relatively under control. I have noticed no side effects from the Cellcept and believe it is a great med option. Good luck.

16

Thanks muckyduck for your reply! He starting on the lowest dose. I hope it does work and no crummy side effects!

muckyduck said:

I've been on Cellcept for over a year now. It really helped me after suffering from severe and acute peripheral neuropathy. You can use steroids with it if you flare but I've not needed them. I'm on 1gm twice a day and this dose seems to be just right for me. I had some nausea to start but now if I eat within an hour after taking the med my nausea is kept at bay. I'm grateful for the positive results I have had. Good luck to you. I'm hoping you too will find that perfect balance.

17

Hello! I’ve been on Cellcept for 2 years. I’m currently on 2000mg a day & it’s worked wonders!! I still have to pace myself & rest a lot but have seen a huge improvement overall! My only complaint is that I have an ongoing sinus infection that I can’t seem to get rid of. I also will get very nauseous if I take it on an empty stomach so my rheumy has me take it with food. The 1st 3 weeks on it was like having severe morning sickness 24/7 but it gradually went away. Be aware of any infections you may have & don’t mess around with contacting your doctor, infections can get out of hand very quick. Don’t be scared though, just take care of yourself. Good luck!!

Hugs,
Renee