Book Reviews

Hi Everyone,

We encourage you to recommend any book you loved reading. If you have one, kindly indicate the name of the book, author or maybe write a brief description about the book through the comments of this post. If you can add the link about the book, that would also be cool!

Thank you very much!

Scott

Suggestions:

Ben's Friends Recommendation:

We're In This Together: Stories & Tips from Patients with Rare Diseases

This book is a compilation of patient tips and stories to help others patients and loved ones get through this difficult time in life. Ben’s Friends is a “little Internet miracle” and we plan on continuing for many more years.

To help others locate the ebook easier, don't forget to give the ebook a 5-star rate review in Amazon. Strong positive review like 5-star bumps up the ebook in Google search results. Thanks!

Ann A's Recommendations:

1. How We Do Harm: A Doctor Breaks Ranks About Being Sick in America

How We Do Harm exposes the underbelly of healthcare today—the over treatment of the rich, the under treatment of the poor, the financial conflicts of interest that determine the care that physicians’ provide, insurance companies that don’t demand the best (or even the least expensive) care, and pharmaceutical companies concerned with selling drugs, regardless of whether they improve health or do harm.

2.If You Have to Wear an Ugly Dress, Learn to Accessorize: Guidance, Inspiration, and Hope for Women with Lupus, Scleroderma, and Other Autoimmune Illnesses
Chronic illness forces you to slow down and reexamine your values, your choices, and the way you define yourself. In If You Have to Wear an Ugly Dress, Learn to Accessorize, Linda McNamara and Karen Kemper offer companionship throughout the process, helping you face your challenges with dignity and grace.

3. Food Politics: How the Food Industry Influences Nutrition and Health (California Studies in Food and Culture)

We all witness, in advertising and on supermarket shelves, the fierce competition for our food dollars. In this engrossing exposé, Marion Nestle goes behind the scenes to reveal how the competition really works and how it affects our health. The abundance of food in the United States--enough calories to meet the needs of every man, woman, and child twice over--has a downside. Our over-efficient food industry must do everything possible to persuade people to eat more--more food, more often, and in larger portions--no matter what it does to waistlines or well-being.

4. Fat Chance: Beating the Odds Against Sugar, Processed Food, Obesity, and Disease

Robert Lustig’s 90-minute YouTube video “Sugar: The Bitter Truth”, has been viewed more than three million times. Now, in this much anticipated book, he documents the science and the politics that has led to the pandemic of chronic disease over the last 30 years.

5. Sugar Has 56 Names: A Shopper's Guide (A Penguin Special from Hudson Street Press)

Sugar hides behind many names in ingredient lists for some of the most common foods on our supermarket shelves. Some, like "evaporated cane juice" might be easy enough to puzzle out -- but what about the less obvious ones, like "agave"? In Sugar Has 56 Names, bestselling author of Fat Chance Rob Lustig provides a list of of ingredient names that food manufacturers use to disguise the sugar content of their products, as well as a do/do not eat list of foods. Concise and direct, Sugar Has 56 Names is an essential tool for smart shopping.

Mindy Wolff's Recommendation:

1.Dubois' Lupus Erythematosus and Related Syndromes Dubois' Lupus Erythematosus and Related Syndromes

Recognized for more than 45 years as the definitive text in the field, Dubois' Lupus Erythematosus and Related Syndromes strikes the perfect balance betweenbasic science and clinical expertise, providing the evidence-based findings, treatment consensuses, and practical clinical information you need toconfidently diagnose and manage SLE.

Everhope's Recommendation:

1. What I Learned Lying Down - Hope for the Chronically Ill

What I Learned Lying Down is an intimate account of the author’s journey through the devastating effects of lupus. Out of her experiences, she writes a moving story from more than a decade of chronic illness.

Siskiyosis Recommendations:

1. A Decade of Lupus: Selections from Lupus News

2. The Sun Is My Enemy: One Woman's Victory over Mysterious and Dreaded Disease - LUPUS

Faladora's Recommendation:

1. How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers

This life-affirming, instructive, and thoroughly inspiring book is a must-read for anyone who is - or who might one day be - sick. It can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or life-threatening illness. Authentic and graceful, How to be Sick reminds us of our endless inner freedom, even under high degrees of suffering and pain.

Pleasure-Reading Books:

Ballerina's Recommendations:

1. Cathy Lamb's Books:

If You Could See What I See

A Different Kind of Normal
Henry's Sisters
First day of the Rest of My Life
The Last Time I Was Me
Such A Pretty Face
Julia's Chocolates
Henry's Sisters Only Family Can Bring You Home

2. Still Alice
Still Alice is a compelling debut novel about a 50-year-old woman's sudden descent into early onset Alzheimer's disease, written by first-time author Lisa Genova, who holds a Ph. D in neuroscience from Harvard University.


3. Breaking Night: A Memoir of Forgiveness, Survival, and My Journey from Homeless to Harvard
Breaking Night is the stunning memoir of a young woman who at age fifteen was living on the streets, and who eventually made it into Harvard.


4. I Shall Live: Surviving Against All Odds, 1939-1945 (A Touchstone book)
One of many remarkable stories in the author's life during World War II. With his strong determination to live, he survived the S.S. hunt for Jews, five concentration camps, and the Sachsenhausen death march.

Nates Tired Mom Recommendation:

1. Mary Higgin Clark's Books

Daddy's Gone a Hunting
I've Got You Under My Skin
I'll Walk Alone (Basic)
The Lost Years

Ann A's Recommendations:

1. I Am Number Four: The Lost Files: The Last Days of Lorien

In this stunning 144-page prequel novella to the New York Times bestselling I Am Number Four series, discover what really happened in the final days of the doomed planet from the eyes of Sandor—who would go on to become the reluctant Cêpan to Number Nine.

2. The Southern Sisters Mystery

3. Karin Slaughter's Books

4. The Will Trent Series 6-Book Bundle: Triptych, Fractured, Undone, Broken, Fallen, Criminal

New York Times bestselling author Karin Slaughter is acclaimed for her novels of heart-stopping suspense, edge-of-your-seat intrigue, and richly imagined characters. And when Slaughter created detective Will Trent she broke the mold. While displaying an uncanny knack for reading people, solving puzzles, and cracking cases at the Georgia Bureau of Investigation, Detective Trent navigates the varied relationships with the women in his life: vice cop Angie Polaski, supervisor Amanda Wagner, partner Faith Mitchell, and Dr. Sara Linton.

5. Lorien Legacies (Series) by Pittacus Lore

6. Touchstones: Essays on Spirituality and Healing

Throughout TOUCHSTONES, there is something that will resonate with the reader and touch those wounded places that need a soft space to land. Robin creates a healing landscape with her stories and places it on the heart as a salve that mends us in the broken places.

7. How Can You NOT Laugh at a Time Like This?: Reclaim Your Health with Humor, Creativity, and Grit

Under the stress of multiple illnesses and constant health ''care,'' Ulbrich one day snapped and became the Singing Patient. She channeled her hard won victories, set about reclaiming her health, and penned How Can You NOT Laugh at a Time Like This?, a collection of short, inspiring, funny essays that help people thrive and celebrate life despite illness.

Siskiyousis' Recommendations:

1. Confessions of an Rx Drug Pusher

As a former sales representative in the pharmaceutical industry for several years, Olsen learned firsthand how an unprecedented number of lethal drugs are unleashed in the United States market, but her most heartrending education into the dangers of antidepressants would come as a victim and ultimately, as a survivor. Rigorously researched and documented, Confessions of an Rx Drug Pusher is a moving human drama that shares one woman’s unforgettable journey of faith, forgiveness, and healing.

2. A Yellow Raft in Blue Water: A Novel

Michael Dorris has crafted a fierce saga of three generations of Indian women, beset by hardships and torn by angry secrets, yet inextricably joined by the bonds of kinship. Starting in the present day and moving backward, the novel is told in the voices of the three women: fifteen-year-old part-black Rayona; her American Indian mother, Christine, consumed by tenderness and resentment toward those she loves; and the fierce and mysterious Ida, mother and grandmother whose haunting secrets, betrayals, and dreams echo through the years, braiding together the strands of the shared past.

3. All the Pretty Horses (The Border Trilogy, Book 1)

The national bestseller and the first volume in Cormac McCarthy's Border Trilogy, All the Pretty Horses is the tale of John Grady Cole, who at sixteen finds himself at the end of a long line of Texas ranchers, cut off from the only life he has ever imagined for himself. With two companions, he sets off for Mexico on a sometimes idyllic, sometimes comic journey to a place where dreams are paid for in blood.

4. The Road

The Road is the profoundly moving story of a journey. It boldly imagines a future in which no hope remains, but in which the father and his son, "each the other's world entire," are sustained by love. Awesome in the totality of its vision, it is an unflinching meditation on the worst and the best that we are capable of: ultimate destructiveness, desperate tenacity, and the tenderness that keeps two people alive in the face of total devastation.

5. The Sword of Truth, Boxed Set I, Books 1-3: Wizard's First Rule, Blood of the Fold ,Stone of Tears

Terry Goodkind, author of the brilliant bestsellers Wizard's First Rule and Stone of Tears, has created his most masterful epic yet, a sumptuous feast of magic and excitement replete with the wonders of his unique fantasy vision.

6. Life of Pi

The son of a zookeeper, Pi Patel has an encyclopedic knowledge of animal behavior and a fervent love of stories. When Pi is sixteen, his family emigrates from India to North America aboard a Japanese cargo ship, along with their zoo animals bound for new homes.

7. The Kite Runner

The Kite Runner is a novel about friendship and betrayal, and about the price of loyalty. It is about the bonds between fathers and sons, and the power of fathers over sons—their love, their sacrifices, and their lies. Written against a backdrop of history that has not been told in fiction before, The Kite Runnerdescribes the rich culture and beauty of a land in the process of being destroyed. But through the devastation, Khaled Hosseini offers hope: through the novel’s faith in the power of reading and storytelling, and in the possibilities he shows us for redemption.

Jen's Recommendation

1. Illusions: The Adventures of a Reluctant Messiah

In Illusions, the unforgettable follow-up to his phenomenal bestseller Jonathan Livingston Seagull,Richard Bach takes to the air to discover the ageless truths that give our souls wings: that people don't need airplanes to soar...that even the darkest clouds have meaning once we lift ourselves above them... and that messiahs can be found in the unlikeliest places--like hay fields, one-traffic-light midwestern towns, and most of all, deep within ourselves.


Mindy, that book originally cost $160!! Was it one for a class? Just curious as it normally books priced that much are educational books. You can now get it for $25 roughly. It does sound like excellent book and especially for someone newly diagnosed!

THANKS to all referring books that are available on Book Readers!! Such as Nook or Kindle!!

"Confession of an Rx Drug Pusher" by Gwen Olsen...excellent as to finding out truth about pharmaceutical sells plus Gwen ends up taking her own life in a very dramatic way..so two stories going on within this non fiction book.

"A Decade of Lupus Selections" by Henrietta Aladjem

Henrietta Aladjem was this wonderful woman...one of the few out there helping others with lupus when i was diagnosed.

She wrote one of the first books about lupus called, 'The Sun Is My Enemy"

Even though this will be outdated as to some treatment the truth behind the articles and questions from those with Lupus will still be helpful.

She was so supportive that she would answer each letter or phone call made to her as there were no computers yet or very few. I just remember her as a one of the great women leaders in Lupus! Here is link about her and her life

http://www.boston.com/news/globe/obituaries/articles/2005/11/17/hen...

For a great read, both these books i own and have reread numerous times,

"Yellow Raft On Blue Water" by Michael Dorris ( he was married to louise erdrich another excellent author)

"All the Pretty Horses" or any of his books including "The Road", Cormac McCarthy

If you just would like to read a fun book...for days when the old noggin not working so well...it is fantasy book

"The Sword Of Truth by Terry Goodkind", It was made into TV series and you can watch it on Hulu or Netflix( or both?!)

Now what i would like to know.....i will not bring my reader into the bath as i am afraid of dropping it. Does anyone have solution to this problem? I greatly appreciate it!

Oh and Anne, i also read younger reads as i agree, some are very wonderful,fun as well as have some serious issues dealt with in the books! Thanks i have had that series recommended to me so now i will get to it!

OH if you have not read yet "Life of PI" or "the Kite Runner"...both are excellent and sure i will be rereading them as well.

Of course there are the classics too....dickens and jane austen always joys to read!!

sorry..books been passion and at least one thing i can do still...i do have days my eyes just do not allow me to read due to dry eyes and another issue..but most days..yahooo! thanks for all recommendations!

All of these books sound very interesting. My name is Joel Drucker. My wife, Joan Edwards, was diagnosed with lupus in 1981 and eventually died from lupus-related complications in 2010. I'm a writer and have devoted extensive time writing about Joan and various aspects of lupus, including work now on a longer piece called "Love & Laughter on the Fault Line" based on a talk I've given to lupus groups.

Writer Flannery O'Connor died from lupus too, but as Joan and I often noted, it's tricky and perhaps even misguided to try and read into O'Connor's stories for signs of lupus. Then again, I saw something once that described O'Connor's stories as being about people accused of a crime they didn't commit. Joan said, "That's exactly what it means to have lupus."

I've previously posted my "Love & Laughter" talk but if anyone in this group is interested in seeing it again, please let me know.

Thank you,

Joel Drucker

Richard bach ~ Illusions

Book changed my life.

It would be great id this discussion could be linked to the book club group some way.

I have found some sites that ship for cheap or free, and a place where you can trade books.

This company offers world wide free shipping on books, sent out within 48 hours.
http://www.bookdepository.co.uk/
Here is a book company that I found that will ship a book anywhere in the world for about $4. http://www.betterworldbooks.com/
Here are 2 wonderful ways to get books. The first one is a book trading group. If you are looking for a book, you list it, and if a person has it, they will send it to you! Then if you ever have a book, you can list it and another person might ask for it, but you don't have to have a book in order to ask for a book. http://bookmooch.com/
That was a miracle for me to find the site because any book getting shipped to me in Canada is $12, so I can't even afford the shipping, much less the book AND the shipping.
Then there are also E-books. If you google "free e-books" you will be led to sites with hundreds of free e-books. Any online bookstore like amazon.com etc. will also offer an e-version of a book at a much lower price than the real book.
Happy reading!
Sheila

I highly recommend the book “How To Be Sick” by Toni Bernhard! She has severe chronic fatigue syndrome (which basically doesn’t have any treatments to control or reduce it like we are lucky to have!) Since she went from being a law professor and avid meditation retreat-goer but now spends the majority of her time in bed, the book confronts the issue of losing a life she once knew head-on. She does so by discussing how she has applied her Buddhist/meditation practice to the illness and bedridden state itself, going into it rather than remaining stuck on the externals she longs for. Yet she also acknowledges just how much pain and longing there is, and even has a delightful dry wit along with her suggestions for how to deal with unhelpful comments, judgments or doctors.

It’s not necessary to be into meditation to enjoy and benefit from the book, though it may inspire you to take up the practice :wink: It is simply her context for understanding, but it could apply easily to a more Christian basis or simply a thought-process regarding the disease and your sense of self within it. A must-read, and amazingly thorough although it’s brief (great because you can read the whole thing without being totally exhausted!)It’s also inspiring to me that she wrote it while battling with the extreme fatigue she has (in fact, one of the hurtful/unhelpful comments she mentions is, “you can’t be that sick if you’re writing a book.” What about the reverse, a supportive “wow, I’m so amazed you can press onward through all your fatigue and suffering to share wisdom with others!” Is it that hard to be nice? Is it really so hard to get that we are fighters and winners in a hard battle? I would imagine that comment arises from jealousy and a sense of under-accomplishment within their own full health… But I digress.)

Aside from enjoyment and identification with her in reading it, you will have practical skills managing your own mind’s response to your illness, limitations, and the additional pain that can be caused by others. Once you have a successful mind-frame regarding your illness and role within it, it should be much simpler to find how you wish to fulfill your existence, beginning with remaining calm and comfortable with your reality despite the emptiness and desperation illness and loss a former life naturally brings with it! This is a strong antidote :slight_smile: Happy reading!

Lots of great suggestions here, not sure where to start! I love reading and also a bit of a movie fan. My most recent movie was Nebraska, which was such a heartwarming story. What one son did for his Dad was priceless. Also liked Dallas Buyer's Club, very emotional on many levels and sad but true story. Currently reading A Lupus Handbook: These are the faces of Lupus by A.G. Moore

LupanCatwoman's Recommendation:

The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families by Donald E. Thomas, Jr. M.D. FACP, FACR

This book was just released in May 2014, in large paperback format, and is 874 pages. A John Hopkins Press Health Book, I pre-purchased on Amazon. It runs about $28-$30 in cost. Likely I have read just about every book out there regarding Lupus. Dr. Thomas' book is incredible--the most current and *readable* book available in my opinion. Certainly, there are some chapters you don't need to read (for me an example would be "Becoming Pregnant"), but overall you will find many of your questions answered. The book covers EVERYTHING (e.g. how to read test results related to lupus treatment, the latest on Benlysta, etc.). As Dr. Thomas (a rheumatologist at Walter Reed Hospital in Baltimore, MD) states in his important Preface: "Keep reading this preface! I suspect that most modern readers in our fast-paced, social networking world do not read the preface to a book. They would rather dive right in, But if you or someone you care about has lupus, the information and advise in this preface could be lifesaving. Did you know that..." I learned lots of new info including: how it was discovered that Plaquenil helps people with lupus, include sulfa antibiotics on your allergy list, do not take Echinacea (herbal supplement used to treat colds). There are many pictures and tables which give additional insight. This is a great book for anyone with lupus. Dr. Thomas developed a passionate interest in lupus: "I saw a young woman ravaged by severe kidney disease from lupus, and I watched the troubling complications that she experienced from high doses of steroids. I felt a sense of sadness and helplessness in caring for this young person who should have been living her dreams and aspirations instead of spending days in a hospital bed." This happened over 20 years ago and stirred Dr. Thomas to spend his career on studying, treating and eradicating lupus. I say read this book!

there's another really great book out there called sick and tired of being sick and tired, its put out by the lupus foundation, I bought it several years ago and while reading it I felt as if the author was living my life it was a great read.

Here's an awesome book called "The Lupus Encyclopedia". It's 900 pages and published by Johns-Hopkins Press. Written by Dr. Donald E. Thomas Jr. It is a great price for 900 pages at $25.90 for paperback, and $19 for the kindle edition..Click on the colored title to be taken to where you can preview it or buy it.

Lupancatwoman,

I'm so sorry that I duplicated your recommendation. I thought I looked through the recent posts to see if it was here, but I didn't see it until now.