So I got results of a recent ANA and it was negative. However my urinalysis showed protein, blood, and leukocytes in my urine as well as a high CRP. So I have a renal ultrasound tomorrow at 9. In the past 2 months since this began, I have what I call kidney pain, I have had edema in the feet and hands and just started getting migraines (7 in the last 14 days). Anyone have any input on kidney issues that may be going on and if the renal ultrasound will help diagnose anything???
I dont have any advice but I will say a prayer for you. I hope someone comes along who knows more about this.
Thanks, me too!
How are you now? did you find out anything? I am praying for you.
Thanks for the prayer janice… I am ok, just completely fed up with healthcare…or lack there of. I had the ultrasound, it showed no stones, cysts or masses. Checked my urine, still have blood, protein and leukocytes, no bacteria. I am frustrated bc the drs response was painkillers for the pain. With no official diagnosis, I am not being treated for anything and am concerned my kidneys are becpming involved. My symptoms started a year and a half ago and since then I have 6 of the 11 diagnosing criteria, possibly 7 if there’s kidney probs which there appears to be. Problem is, none of the 6 I have are positive dna, ana etc, they are all negative so I feel like my drs aren’t looking seriously into lupus. I mean is it normal for a 30 year old to get pleurisy 3 times, sun rashes, new scaly patches on eyelids, new joint pain in hands and hip, migraines, have protein etc. In urine, have alopecia, have a total stranger ask if I have raynauds when looking at me, tremors in hands, amazing forgetfulness, etc…sorry to vent I am just so fed up inever thought id pray for bad bloodwork but I just want to start plaquenil and hopefully see some relief to the past year of hell. They are so willing to give predisone, cortizone shots and pain pills. Thanks for the ear to vent!
yes--this is the place to vent. I wonder if you could get any support from the Lupus Foundation. I remember reading somewhere that doctors in Dallas are trying to change the criteria for diagnosis. but I don't know anything more about it. I don't blame you at all for getting upset--it seems to me that they ought to be treating you for something regardless of the label they put on it. It sucks. And I don't want to sound like I a broken record, but I am praying for you and for all of us. I have my little butterfly prayer tree right beside the computer and I never forget to pray for you because your butterfly is there glittering in the lamplight.
Peaceful night to you and a brighter day tomorrow.
JConl3a said:
Thanks for the prayer janice... I am ok, just completely fed up with healthcare...or lack there of. I had the ultrasound, it showed no stones, cysts or masses. Checked my urine, still have blood, protein and leukocytes, no bacteria. I am frustrated bc the drs response was painkillers for the pain. With no official diagnosis, I am not being treated for anything and am concerned my kidneys are becpming involved. My symptoms started a year and a half ago and since then I have 6 of the 11 diagnosing criteria, possibly 7 if there's kidney probs which there appears to be. Problem is, none of the 6 I have are positive dna, ana etc, they are all negative so I feel like my drs aren't looking seriously into lupus. I mean is it normal for a 30 year old to get pleurisy 3 times, sun rashes, new scaly patches on eyelids, new joint pain in hands and hip, migraines, have protein etc. In urine, have alopecia, have a total stranger ask if I have raynauds when looking at me, tremors in hands, amazing forgetfulness, etc.....sorry to vent I am just so fed up :( inever thought id pray for bad bloodwork but I just want to start plaquenil and hopefully see some relief to the past year of hell. They are so willing to give predisone, cortizone shots and pain pills. Thanks for the ear to vent!