Did you have to quit work after you were dignosed with Lupus?
Hi Lia,
As you know i was born with it but when i left school at 16 i started taking illat 18 with seizures which the Lupus had caused, i asked if i could go back to work and i only lasted one day so lupus and it's ailments stopped my life early and i'm now 44.
A good many people have to finish work according to hours and how stressful it can become and i hope other member's are able to help you.
Love Terri xxx
I am so very sorry to hear that, my goodness you are so determined and have the drive to go on, I am taking this time off to see if I can adjust to the meds and get on a schelsue I know of people with luspus thatare still able to work, I dont know what God has in planned for me I know it is far more than what I can imagine,Take care.
I had to leave work which really sucked. I swear they should just automatically give people who have lupus ssi. Seeing as we never know when we are going to feel well.
Hello Lia,
I lost the drive to carry on years back till i met my hubby but now at times i feel like throwing the towel in and who would i hurt my hubby, although we all suffer one way or another with it and alot of problems are smiliar my mind reflects on those who love me but there's worse people off who have'nt a clue what day it is.
Your doing the right thing by adjusting to the meds and alot of people still work...it's all down to how bad the lupus is affecting your system and what work requires your mind and body.
Lia we're all tested in life but we carry on till our time comes.
You takecare also. xxxx
lia nuriddin said:
I am so very sorry to hear that, my goodness you are so determined and have the drive to go on, I am taking this time off to see if I can adjust to the meds and get on a schelsue I know of people with luspus thatare still able to work, I dont know what God has in planned for me I know it is far more than what I can imagine,Take care.
Sometimes if your older and diagnosed with Lupus it might be hard to get out of bed sometimes to go to work. Also the pain hits you and you cant walk. The meds make you sick and dizzy sometimes. With the sun being so brite amd the dark being so dark I cant stand to drive at nite, so I dont work as much or as long as I used to with Lupus.
Hi LupusSucks,
You've hit the nail on the head where Lupus affects us.
LupusSucks said:
Sometimes if your older and diagnosed with Lupus it might be hard to get out of bed sometimes to go to work. Also the pain hits you and you cant walk. The meds make you sick and dizzy sometimes. With the sun being so brite amd the dark being so dark I cant stand to drive at nite, so I dont work as much or as long as I used to with Lupus.
Hi Lia, I can tell you a little abput my sister's story...
She is 19yo and she graduated fro High school at 2010. The last year she took a free-time-year to get better with her Lupus. At december 2011, she decided she was going to University. Her classes would star at March 10th.
January and February were awful months for her going once and once more to the Hospital, aand at March 9th she was taking Rituxan.
Now, because of her Lupus, my sister cannot walk and is at the Hospital again (she was been at ICU a few times this year) but she could not got to University.... NOT A SINGLE DAY.
Many people with Lupus has to quit hteir jobs because of the disease: two of three lupus patients reported a complete or partial loss of their income because they no longer are unable to work fulltime due to complications of lupus and one in three have been temporarily disabled by the disease, and one in four currently receive disability payments (info from LFA).
So, take your time and try to see if you can deal with your Lupus and your job...
Only God will know.
Cheers!
I NEVER HAD ANYONE TO GIVE US STATS, I AM SO SORRY FOR YOUR SISTER HAVING LUPUS IT ,UST BE VERY HARD ON HER, YOU AND YOUR FAMILY i NEVER HAD ANYONE GIVE ME STATRS , WHAT IS LFA AND IF NEEDED HOW AND WHERE WOULD I GO FOR ASSISTANCE, I DONT UNDERSTAND WHEN PATIENTS ARE DIAGNOSED WITH THIS DISEASE WHY THEY DONT ALOW THEM TO SIGN UP FOR ASSISTANCE I CAN IMAGINE SO MANY PEOPLE ABUSE THE SYSTEM AND MAKE IT HARD FOR OTHERS.
pinkycito said:
Hi Lia, I can tell you a little abput my sister's story...
She is 19yo and she graduated fro High school at 2010. The last year she took a free-time-year to get better with her Lupus. At december 2011, she decided she was going to University. Her classes would star at March 10th.January and February were awful months for her going once and once more to the Hospital, aand at March 9th she was taking Rituxan.
Now, because of her Lupus, my sister cannot walk and is at the Hospital again (she was been at ICU a few times this year) but she could not got to University.... NOT A SINGLE DAY.
Many people with Lupus has to quit hteir jobs because of the disease: two of three lupus patients reported a complete or partial loss of their income because they no longer are unable to work fulltime due to complications of lupus and one in three have been temporarily disabled by the disease, and one in four currently receive disability payments (info from LFA).
So, take your time and try to see if you can deal with your Lupus and your job...
Only God will know.
Cheers!
Hi, again!
LFA is Lupus Fundation of America (lupus.org) They have a lot of info and stats about Lupus on their website!
And about the assistance, sorry butI cannot help you with that, because I'm from Chile so I dont' know how your system works.
I hope someone else can advice you about it.
Cheers!
From Chile :)
I had to quit before I was diagnosed. I was teaching yoga and it was getting harder and harder to breathe or move...i didn't know what was wrong. it got so bad that i had to cancel all classes...the giant task of getting diagnosed came after the fact
When I was diagnosed I didnt have to quit working. I simply could not work. I have not been able to work since last June. Every time I do go out and clean a house I end up looking like a lobster and I am in alot of pain the next day and it takes about 48 hours for me to recover from it... If you are abe to work thats awesome. Some of us can work some of us cant. it just depends on your lupus. Every case is so different from the next it is very hard to say...