Oh no!!!! I just lost the post i was writing about this awful crappy pain and another pain was added to the list because my post disappeared and cannot be retrieved.
Drats!
I know this happens to pj sometimes too...is there a way to make the text-thieving varmit high tail it outta lupusville?
grrr
Pain pain pain
I wish we could put our heads together to come up with a better, more inclusive way to describe the pain we endure.
I always agonize over how to tell doc how much I hurt because I have different kinds of pain that hurt in their own way--they produce their own “vibration” the way a cello produces a vibration not like a drum or a trumpet and the combination of these different sounds effects the whole experience for good or ill.
Lets try, OK? Maybe in the near future people will say, “Pain used to be measured in a flat 1 to 10 gauge and we couldn’t treat it as effectively as we can now using the polyphonic pain indicator.”
For example:
My knees feel like they are crumbling; it feels like an earthquake in the Carlsbad Caverns only instead of the sharp stalactites jabbing into the rocky wall they are tearing and chewing up every shred of flesh left in my knees, or maybe like being stuck, naked in a crystal cave full of broken, jagged glass: no way to get of there without the gnashing of flesh and bone.
Could we say that that kind of pain, one that is no doubt destroying everything in its path a Destructivity scale? On a D. scale from 1 to 10, my pain is a 9 today.
Then there is the pain of flesh swelling, particularly the kind of pain caused when the heart does not pump well enough to prevent thick, stagnant fluid to pool at from the calves down to the ankles.
That hurts in a completely different way than the flesh-shredder. It needs to be measured in terms of heaviness and heat---like lava. Today I would say that the Lava Scale pain is at a 7.
Then I would need a way to factor in the way my poor feet feel like a dealapidated swing bridge across a bottomless pit. We could say that the bridge has 100 good boards left, but every step we take causes one to break, so how many steps could we take before the bridge collapses? I can only have 20 steps out of 100 before catastrophic collapse.
Then, of course there is the mental/emotional/spiritual factor which we have to filter the other pain though because if suffering comes with a good reason behind it, it neutralizes some of the raw measurement of physical pain. Right? Like child birth. We can deal with the pain in a different way because we know good is going to come of it.
See what I mean?
Can we mull it over together and come up with a polyphonic pain graph?
maybe it will be called the ben'sfrend's scale and will be what holistic healthcaregivers seekers will se to evaluate and effective treat future generation
HI JAN, HAPPENS 2 ME SOMETIMES TOO & IT SEEMS LIKE IT IS ALWAYS THE LONG POSTS THAT TAKE U SO LONG TO TYPE TOO, THAT STINKS....BUT MY BROTHER IS RIGHT, GUESS, WE HAVE TO MAKE SURE WE ARE FULLY CLICKED ON THE POST BUTTON 4 IT TO REGISTER & NOT DELETE IT....SOO. FRUSTRATING......I AGREE!! ANYWAY, LOOKING FORWARD TO SEEING THE POST WHEN U R UP TO TYPING IT AGAIN, :) ....{{HUGS}} SUZIE :0)
OH,I JUST SAW THAT U PUT IT UP, THOSE R COOL IDEAS, I DO LIKE THEM, MAYBE A GROUP SHOULD BE STARTED WITH THOSE COOL IDEAS OF URS.....YOU HAVE A GR8 IMAGINATION.....LET'S TRY TO DO THAT!! TODAY MY PAIN FFELS LIKE IT IS ON THE "ELEPHANT SCALE", KINDA LIKE A HUMONGO ELEPHANT IS SITTING ON MY WHOLE BODY CRUSHING IT, CAUSING A FEELING OF HEAVINESS & PAIN ALL OVER!! HATE THAT ELEPHANT THOUGH, LOL, AND I AM AN ANIMAL LOVER....NOT FOR THAT ELEPHANT TODAY!! UGH!!!! ;) SUZIE XO
janice said:
Pain pain pain
I wish we could put our heads together to come up with a better, more inclusive way to describe the pain we endure.
I always agonize over how to tell doc how much I hurt because I have different kinds of pain that hurt in their own way--they produce their own “vibration” the way a cello produces a vibration not like a drum or a trumpet and the combination of these different sounds effects the whole experience for good or ill.
Lets try, OK? Maybe in the near future people will say, “Pain used to be measured in a flat 1 to 10 gauge and we couldn’t treat it as effectively as we can now using the polyphonic pain indicator.”
For example:
My knees feel like they are crumbling; it feels like an earthquake in the Carlsbad Caverns only instead of the sharp stalactites jabbing into the rocky wall they are tearing and chewing up every shred of flesh left in my knees, or maybe like being stuck, naked in a crystal cave full of broken, jagged glass: no way to get of there without the gnashing of flesh and bone.
Could we say that that kind of pain, one that is no doubt destroying everything in its path a Destructivity scale? On a D. scale from 1 to 10, my pain is a 9 today.
Then there is the pain of flesh swelling, particularly the kind of pain caused when the does not pump well enough to prevent thick, stagnant fluid to pool at from the calves down to the ankles.
That hurts in a completely different way than the flesh-shredder. It needs to be measured in terms of heaviness and heat---like lava. Today I would say that the Lava Scale pain is at a 7.
Then I would need a way to factor in the way my poor feet feel like a dealapidated swing bridge across a bottomless pit. We could say that the bridge has 100 good boards left, but every we take causes one to break, so how many steps could we take before the bridge collapses? I can only have 20 steps out of 100 before catastrophic collapse.
Then, of course there is the mental/emotional/spiritual factor which we have to filter the other pain though because if suffering comes with a good reason behind it, it neutralizes some of the raw measurement of physical pain. Right? Like . We can deal with the pain in a different way because we know good is going to come of it.
See what I mean?
Can we mull it over together and come up with a polyphonic pain graph?
Ok so lets test it today:
D: factor: 9
LavaTemp:is 2, Lava Heavines: 5......total 16-
ems: e: 10, m: 9:, s:9 ...total 28+
Bridge: still have 50 good boards left for today---50+
so, 78-16= 62. hmmm. this might work bc once i processed it I felt better---once i saw the positives (bridge and high emotional mental spritual, aka ems...each one 1-10, so 8 and 9 are high positives, and 50 out of 100 is a fair positive count for bridge that starts out with 100 good boards every time you measure, so even thou my pain levels were high they are less uncomfortable because of the positives! see how cool it can be?
o but i forgot suzie's elephant---lets put a lead coat on it too bc the fatigue is a...well, its just awful.
so the overall elephant wearing lead coat scale is 10, 10 being the heaviest.
so my ewlc for today is 5. and that is a negative quality so I need to subtract 5 points from ,my total.
62-5=57. Still not bad
U r gr8 Jan, u make me :) even when I feel HORRIBLE, Well I will sum this day up with a BIG FAT "10" on most scales, but have to say the fatigue is a "20". if that is even possible, wish I felt better, I AM SICK & TIRED of being SICK & TIRED! U all know what I mean!! We will all be OK....we're in this together at least!! {{HUGS}} Suzie :0)
I am so sorry you had a painful and exhausting day. I will be praying for you. I had a wonderful first visit with the physical therapist and i am goin to write a blog about it so I can share it with everyone. it was really great
hugs
janice said:
Today my scores are:
D: 6
Lh 7
Lh2:8
ewlc:9
-----------30 +
e: 2, m:2, s:4 +
total from the 1-10 scales 38
Bridge: 5
+ 1 bonus point for filling out thing ? dont know what to call it yet
total score is
__________
43+1= 44
Any score under 50 needs to raise a red flag---not necessarily confine one to bed, but to be aware that we have special needs and tlc on a day when our total score is under 50
So 44 out of 100 is an indicator that i need to use caution today: get more rest, drink water, and be kind to my mind.
D: 10
Lh: 5
LW:7
ewlc: 10
ems: e:2, m:1, s:2
bridge4
10+5+7+4=26
26+4+30 1 point for filling it out: 31. My total well being right now is 31 out of 100 possible.
Red Flag