Hi I’m a 34 year old mom of three children age 13/12/7 years old my husband works a lot so I take care of pretty much everything I had Lupus symptoms For a long time my PCP ignored it even though I told him multiple times how I was feeling it wasn’t until I started getting bad rashes on my skin and went to dermatology was tested through biopsy and blood my body just feels beet down sometimes I want to talk and have a conversation with my husband because he is my rock but but it feels like he isn’t listening or understanding me I’m overwhelmed over worked and now depressed I’m stiff like the tin man from Wizzard Of Oz and so many other symptoms the list goes on but I don’t know a lot about lupus my doctor gave me a pamphlet and told me what I have nothing about it I’m not educated on it she referred me to a rheumatologist who could help me out I’m just looking for friendly people to chat with who can help me understand what I am going through so I can help other people thank you for hearing my story
Hi sweetie pie.You sound a little overwhelmed and i got the same treatment from my gp and rheumy.I wasnt given a leaflet about it i was told to"google it"Of course i only discovered it was lupus when i was invited to this site.I am truely sorry people in your life dont understand i certainly can relate.I am still learning myself about lupus but this site is a supportive one and im normally on nearly 24/7 so send me a message anytime if you would like to chat :)
So what kind of tests do the rhematoligst do to determine what’s going on
Well i had a lot of blood tests done and a full body mri.I am not sure about other tests i am sorry
Good Morning, Sweetie Pie! You've definitely come to the right place to find relatable people who you could talk to. Sorry to hear about all of the emotions you're dealing with, I can definitely relate to you on that aspect. It sucks but because our loved ones aren't in our shoes, it's a little bit harder for them to completely understand what we go through and how we're feeling. I've had Lupus 10+ years, and even though my sisters and parents are understanding, there are times when they forget I have Lupus or they still just don't understand at times. Sitting down with your husband is definitely worth the shot, whether you feel he is listening or not. Communication is so vital with relationships in general and with Lupus. There's also the chance the he doesn't really know how to deal with the way your feeling or anything of the sort. Maybe when you go to see your rheumatologist, see if your husband can go with you to the appointment.. Or even beforehand, a great place for more information is www.lupus.org, maybe have some information compiled up for if/when you decide to sit down with your husband?? Best of luck to you, and please feel free to keep us posted!