Do you ever wish you could take a vacation from Lupus? Just a little time to remember what life used to be like? To make plans without worrying about meds/sun/pain? To just live?
It seems like it would be nice… Because our reality is to hard to bare at times. I am trying to get through this but a vacation would be a wonderful thing to experience once more…
Yes!! It’s been so long I can’t remember what no pain feels like. Just for a day…
I had a two day mini holiday last weekend. Enjoyed myself & loved being with dear pals. Last 3 days I've had bronchitis & very sore throat & body aches & pains. Lupus? Just 'the bug' like half the Gold Coast has at present? Who knows? I'm glad I went away but wondering if Lupus & Drugs I'm on will prolong my 'bug'. Kaz xo
I wouldn’t know what normal is since I’ve been fighting this since I was a child. I just thought everyone hurt everyday so I never thought to complain. It wasn’t until I was pregnant with my first that I found out what normal felt like. It was quite a shock. When I told my doctor in surprise that I didn’t hurt anywhere he was shocked because I had never told him how much pain I was in. We both laugh about it now because now I’m very vocal about needing pain relief…lol If I could have one thing it would be the energy that normal people have. Pain I can deal with but not having energy is soooo frustrating. But a vacation would be nice.
Yes. I SO agree. Would love a vacation from Lupus; howver, the end of that vacation would depress me more than before it. It would make me want to be like I used to even more. I already find myself in denial every time I may have an ‘ok’ day I start thinking that this wasn’t Lupus after all and I am starting to finally feel better. So … I guess in the long run I’ll just have to deal with the Lupus now and look forward to when I can be even better than I used to be when I’m done here and enjoying the afterlife with God ( and my husband, Jim). Ahhh. That will be the day!
I would love a vacation from this, even just a few hours would be great. I live with this 24/7 like the rest of us, I try not to think or dwell on it, it is what it is. It's gone from bad to worse to I didn't know it could be this bad. I'm just dealing with it anymore, one day at at time.