Good morning"
Didn't sleep well last. Spent most of the night in the bathroom. I'm on a new medication and the dr it may cause constipation and said yipee it wil stop the diahrea.lol
I also know of a lot of people cured
They do a mazing things today Its been 5 years since he had the radiation for the prostate cancer. ae a good da eeryone/
Stay postive
xxxooo
Cindy
Whathappensinvegas,
Thank you for your support and words of kindness. And yes, this site and all of you have been great for me, not knowing much about this disease and being a little scared and unsure of what comes next. I did join the art lovers group! :) I am an artist and love all things art so I was really excited to see that group.
I see my Rheumatologist on Wednesday and then I'll find out which type of Lupus I have and what I can do for it besides the prednisone and Simponi that I currently take for my JRA. I do let my PCP know everything I'm taking, whether its herbal or prescription from another doctor. I always run everything by her first just to be safe. I will also let my Rheumy know everything herbal and prescription, alot has happened since my last visit. Thank you so much for welcoming me! :)
Ali
whathappensinvegas said:
I am really glad that you are able to keep such an up attitude. It's difficult when things just seem to keep piling up. It certainly is common that most people don't understand much about this disease until it affects them...even families tend to go only as far as the information on the Lupus Foundation website. It's so clinical that it's an absolute yawn. I have found that this site is truly one that allows you to ask questions, vent, share info, all without the fear of judgment or attitude.
We try to maintain positivity and share what has worked for us.
There are many Super groups under the groups tab...fee free to join any.
I am a former educator as well, so I understand the frustration of no longer being able to share your knowledge.
As to the herbal medicines, they are medicines as well. And while we have many people that use only herbal or a mix of Eastern and Western medicines, it's important that you inform your doctor as many things may cause unexpected interactions.
If, indeed, your diagnosis is Lupus we are here to help you and will continue to be as long as we need you.
If ever you need to vent in private you can PM myself or anyone other moderator. It's also helpful to send out friend invitations. This is very helpful in keeping the feelings of isolation at bay.
Welcome to our family,
DeAnne
Reet,
That is a really good Idea, I never thought of doing an excel spreadsheet...I'm not that organized ususally haha. That would be really helpful, and I get asked why I had to stop certain medications often as well. The meds I was taking when I was younger, I can't remember and since I've switched Rheumatologists and my old one had a paragraph summary of my entire medical history while he was my doctor! That's all he had for medical records so I have to try to remember all of the ones I've tried and what happened with each one, its been a pain in the butt, so that would be beneficial for sure! Thank you for the great idea!
I will have to check on the Journal from Glaxo Smith Klein, it sounds helpful as well. If I have time later, I'll just google it and see what I can come up with. :)
Thank you!
Ali
reet said:
Ali, I keep an excel spreadsheet with my medications and the dose, number of pills and who prescribed. I also of surgeries and procedures and the dates too. Drug allergies are on there. One thing I didn't do was put down the reason I had to stop taking certain prescriptions and I am asked that a lot. Put down any supplements too. I update this and always have a copy tucked in my wallet. I also print out that sheet for the doctor I will be seeing as a new patient.
There is also a journal that comes from Glaxo Smith Klein that is free you can request. Someone here put that on this site and I got nine recently and it is quite nice, Hopefully someone here will have more info on that for you.
Cindy,
Sorry to hear that you didn't sleep well. I guess at least you traded one problem for another? haha. I hope that your day turns out better than your night :) and that tonight you will get some rest! Yes they have come a long way with cancer treatments and medications! I'm amazed at what they can do now! Praying for you and your husband and that this week will be a great one! :)
Ali
freightliner said:
Good morning"
Didn't sleep well last. Spent most of the night in the bathroom. I'm on a new medication and the dr it may cause constipation and said yipee it wil stop the diahrea.lol
I also know of a lot of people cured
They do a mazing things today Its been 5 years since he had the radiation for the prostate cancer. ae a good da eeryone/Stay postive
xxxooo
Cindy