THERE IS A LUPUS APP! No Kidding!

General
1

WHOA: THERE IS A LUPUS APP that helps keep appointments, list of what to discuss at appts, etc: https://play.google.com/store/apps/details?id=com.svtech.lupus&reviewId=17577504539025763045

2

I downloaded that app a few months ago. It initially looked good but I had nothing but problems with it crashing / freezing up on me. ( May have just been my phone & not the app itself )

I found another one that does just about the same things, it's not specific to lupus but you can enter all the same info & share it with your Dr. There is a Free version and The Med Helper Pro version for $3.99. I use the free version and am very happy with it.

https://play.google.com/store/apps/details?id=com.earthflare.android.medhelper.lite

Im all about apps to help me survive - the more we know the better. Thanks for sharing

3

Nice one Julie...this should help members out great :)

4

Ben's Friends has a very simple app in itunes that allows you to navigate to the site on mobile. https://itunes.apple.com/us/app/bens-friends-patient-support/id635734053?mt=8

we're working on doing more cool stuff with our app soon :)

5

HELLO JUJU, I HOPE YOU ARE DOING WELL. I AM NOT SO SMART WHEN IT COMES TO COMPUTERS. I DO HAVE A KINDEL, AND THE PC DESKTOP. WHAT DOES THE APP DO?? PLEASE EXCUSE MY IGNORANCE.

'PLEASE EXPLAIN THE BENEFIT OF HAVING AN APP. ADDING IT TO A CELL PHONE OR A KINDEL. I WOULD APPRECIATE YOUR DESCRIBING THE BENEFITS OF HAVING AN APP. ESPECIALLY A LUPUS APP.

I HAVE HAD LUPUS SINCE 1982, AND BEFORE I WAS DX, THEY SAID I WAS NUTS. AFTER UCLA HOSPITAL IN CALIFORNIA, MY HUSBAND AND MYSELF WERE GIVEN THE TASK OF TRYING TO FIGURE OUT HOW I GOT LUPUS?? WE NEVER DID FIND OUT WHY? BUT IT DID BREAK UP MY MARRIAGE. THE BLOOD WORK SHOWED A FALSE POSITIVE SEFALIS (vernearl disease). HE WAS THINKING I WAS CHEATING ON HIM AFTER THE BLOOD WORK. NO ONE EXPLAINED ANYTHING TO US. IT WAS A REAL MESS!!!! ANYWAY PLEASE EXPLAIN ABOUT THE POSIBLE THINGS THAT CAN BE DONE BY HAVING AN APP.

THANKS VERY MUCH

MICKEYITALY3

6

Hi Michele,

If you click on the link here... https://play.google.com/store/apps/details?id=com.svtech.lupus&reviewId=17577504539025763045

It will take you to the full description of the app.

and here is a link to another app that I like https://play.google.com/store/apps/details?id=com.earthflare.android.medhelper.lite

I hope this helps you to understand them.

MICHELE MCNEILL said:

HELLO JUJU, I HOPE YOU ARE DOING WELL. I AM NOT SO SMART WHEN IT COMES TO COMPUTERS. I DO HAVE A KINDEL, AND THE PC DESKTOP. WHAT DOES THE APP DO?? PLEASE EXCUSE MY IGNORANCE.

'PLEASE EXPLAIN THE BENEFIT OF HAVING AN APP. ADDING IT TO A CELL PHONE OR A KINDEL. I WOULD APPRECIATE YOUR DESCRIBING THE BENEFITS OF HAVING AN APP. ESPECIALLY A LUPUS APP.

I HAVE HAD LUPUS SINCE 1982, AND BEFORE I WAS DX, THEY SAID I WAS NUTS. AFTER UCLA HOSPITAL IN CALIFORNIA, MY HUSBAND AND MYSELF WERE GIVEN THE TASK OF TRYING TO FIGURE OUT HOW I GOT LUPUS?? WE NEVER DID FIND OUT WHY? BUT IT DID BREAK UP MY MARRIAGE. THE BLOOD WORK SHOWED A FALSE POSITIVE SEFALIS (vernearl disease). HE WAS THINKING I WAS CHEATING ON HIM AFTER THE BLOOD WORK. NO ONE EXPLAINED ANYTHING TO US. IT WAS A REAL MESS!!!! ANYWAY PLEASE EXPLAIN ABOUT THE POSIBLE THINGS THAT CAN BE DONE BY HAVING AN APP.

THANKS VERY MUCH

MICKEYITALY3

7

There is also a Fibromyalgia app