Good morning all. I just started imuran. I’m soooo fatigued. I have been. I think my disease is so uncontrolled right now. Since I started it, my joints seem to hurt worse. Is this normal until the dosage gets built up? I hate the fatigue. It’s like I can’t get enough sleep and when I wake up I just stay in that half awake fog all day. It’s driving me crazy. That was happening before the imuran though so I’m hoping the drug will eventually help it. What is your experience with imuran?
I was on imuran it was horrible if your feeling like this u need to change ur meds
I take Imuran 200mg (100mg am & 100mg pm). Initially was on 100mg & this had no real impact on my Lupus. Increased to 150mg & some improvements experienced (hair started to regrow lesions decreased). Increased to 200mg & now a few months later I am in my first remission after 2 & 1/2 years of uncontrolled S.L.E.
Tiredness as you describe is most likely Lupus not Imuran. Joint pain ditto. However you have to speak with your doctor. Best of luck to you. Kaz xo
I have been on Imuran for years. I honestly cannot identify the side effects caused by the medication, or my SLE and other health problems. I hope over time you will begin to feel better. Sounds as though you may be in a flair, are you running a high temp? Let your doctor know any “new” symptoms. They very well may not have anything to do with Imuran. Good luck to you. There is support for you here when you need it. God bless.
Imuran didn't work for me. Prayers that it works for you!
Lori
I’ve been on Imuran 50mg now for 2 months. I too and very tired. I was diagnosed with chronic fatigue syndrome. After trying numerous medications ive done well with adderal. It has really helped with my fatigue. I really haven’t seen a big change in my pain or my acheiness. I just started it approx 2 months ago. And I’ve just stopped my prednisone. So I’m waiting to see how I’ll feel now. I’d like to hear if anyone else has been going thru the same thing?
I've been taking the drug 14 years. No side affects, except upset stomach if I don't take Zantac and with some food. I had liver involvement. I was put on the med immediately after being dxed.
I was on adderall too a few years ago with my fibro dx. It was wonderful! I felt normal again. I developed tachycardia and had to go off the drug. I miss it.
Have you tried anything else? They have other meds. Provigil/nuvigil (sp). My hubby was same as you but now he can take it again he has MS! FATIGUE IS BAD! changes entire life! Feel free to text me 9049932288.
I spent 2 months on Imuran experiencing daily nausea,vomiting and diarrhea and no improvement. Taking it in the evening minimized my public dashes for bathrooms. Switched to Cellcept which has been much more tolerable,also much more expensive. It is worth anything to feel better at this point,you just have to keep experimenting until you find what works best for you. I am also on Placquinel with no side effects so far. So far the only thing that has made me feel better is prednisone,but I am down to 5mg now and it does not seem help much at that level. Still searching for the magic combination.
I had difficulty in the beginning. My doctor has labs on me every 2 weeks to check my blood count,kidneys & liver It’s now working, no more harsh joint pain anymore. It’s helped me a lot. I was seriously upset in the beginning bcuz of the side effects but it now works. I hope you can find what helps you. Best of luck
I was on Imuran for about a month it gave me heart palpations and I had to get off of it, it also made me feel tired all the time and my muscles felt like I was walking in deep mud all day.
Good Luck