Anyone suffer from random sores? When they first start its almost like acne but nothing there then its a terrible looking scab. Scalp face chest and most recently my arm and neck. What can I do for it? Is it related to lupus?
YES!!! All the time…usually a spot or 2 or 3 at a time. and they take for EVER to heal. weeks to a couple of years!!! I usually get them on my arms…sometimes on legs…used to have one or 2 on scalp…just spontaneous.
maybe because I always wear a hat now, that ones on scalp don’t happen very often now. have now idea if related to Lupus…I feel like everything is!!
1 Like
Mine are so painful and have the ugliest scab thick too can’t cover them to save my life! Right now I have one on my nose 3 on my scalp one on my arm and one on the back of my neck! It makes me so self conscious! I am scarred from them all over I honestly thought it was just acne until recently when I started noticing other symptoms at the same time!
Steen said:
YES!!! All the time…usually a spot or 2 or 3 at a time. and they take for EVER to heal. weeks to a couple of years!!! I usually get them on my arms…sometimes on legs…used to have one or 2 on scalp…just spontaneous.
maybe because I always wear a hat now, that ones on scalp don’t happen very often now. have now idea if related to Lupus…I feel like everything is!!
ABSOLLUTELY! I have pock marks all over from them taking so long to heal, and when part of me gets a tan,. the pock marks show up terribly because they don't tan. My siblings and Mom have lupus and we all get these sores, and the clear liquid inside burns like acid. Some of mine start as small as a pin head, then get bigger, but always deeper than normal sores. Ours are especially bad this past 7-10 days. We figured out why, but its controversial so I don't talk about it much. Electromagnetic frequencies. Solar flares. When the sun has more solar flares, all sorts of symptoms get worse, especially autoimmune, asthma, allergies and nerve pain. Europe has a report of solar flare activity along with the weather report every day because it's so reliable in predicting worsening chronic illness, but N. America doesn't seem to even know or believe it. Kind of like not believing air is there, because you can't see it. When I am suffering especially bad, I go to this page to look at the solar flare activity. http://www.swpc.noaa.gov/ It almost acts like a symptom predictor for me. On that page, go to the graph picture on the bottom left. It changes every 5 minutes. I can help you understand the graph better if you want, but the point where the graph stops, that's the level of solar flares happening right that moment. It has hours at the bottom, those are England time. As soon as one shows up, I dot some antibiotic liquid on it. The chemical name is clindamycin topical. It has a sponge type dabber on the bottle.Then I put a tiny dab of clearasil to dry it up, and a dab of cortisone to take away the redness and burn. I stopped getting pock marks when I learned that trick. I found that if I keep my face moisturized, I get fewer lupus sores there. As for the scabs, if you can keep ointment on it as much as possible to keep the scan away, you will have have less scarring. New first aid is teaching to keep all cuts, sores, burns covered in ointment to avoid scabbing and scarring.Antibiotic ointment would be cheaper than the clindamycin, not sure if it treats the same problem though.
i get them on my face! I have several knots under the skin, and when I have a flare they come up. Starts like a pimple, but much more sore. Then it blisters and scabs. Takes FOREVER to heal. They are mainly around my chin. I don't have near as many or as severe not that I am on plaquenil. If I miss a couple of days, they start getting inflamed.
I am not surprised at what you have found in your research. I do feel like mine is cyclical. But, I'm not sure what cycle I'm following. :) My dad, a retired police captain, swore by the power of the moon cycles in peoples behaviors.
Sheila W. said:
ABSOLLUTELY! I have pock marks all over from them taking so long to heal, and when part of me gets a tan,. the pock marks show up terribly because they don't tan. My siblings and Mom have lupus and we all get these sores, and the clear liquid inside burns like acid. Some of mine start as small as a pin head, then get bigger, but always deeper than normal sores. Ours are especially bad this past 7-10 days. We figured out why, but its controversial so I don't talk about it much. Electromagnetic frequencies. Solar flares. When the sun has more solar flares, all sorts of symptoms get worse, especially autoimmune, asthma, allergies and nerve pain. Europe has a report of solar flare activity along with the weather report every day because it's so reliable in predicting worsening chronic illness, but N. America doesn't seem to even know or believe it. Kind of like not believing air is there, because you can't see it. When I am suffering especially bad, I go to this page to look at the solar flare activity. http://www.swpc.noaa.gov/ It almost acts like a symptom predictor for me. On that page, go to the graph picture on the bottom left. It changes every 5 minutes. I can help you understand the graph better if you want, but the point where the graph stops, that's the level of solar flares happening right that moment. It has hours at the bottom, those are England time. As soon as one shows up, I dot some antibiotic liquid on it. The chemical name is clindamycin topical. It has a sponge type dabber on the bottle.Then I put a tiny dab of clearasil to dry it up, and a dab of cortisone to take away the redness and burn. I stopped getting pock marks when I learned that trick. I found that if I keep my face moisturized, I get fewer lupus sores there. As for the scabs, if you can keep ointment on it as much as possible to keep the scan away, you will have have less scarring. New first aid is teaching to keep all cuts, sores, burns covered in ointment to avoid scabbing and scarring.Antibiotic ointment would be cheaper than the clindamycin, not sure if it treats the same problem though.
Wow!! That is some really good information. I have struggled with these since I was 18 or 19 never found anything that worked, I guess because it isn’t acne? I’ll have to try that antibiotic ointment!!
artchick said:
I am not surprised at what you have found in your research. I do feel like mine is cyclical. But, I’m not sure what cycle I’m following.My dad, a retired police captain, swore by the power of the moon cycles in peoples behaviors.
Sheila W. said:ABSOLLUTELY! I have pock marks all over from them taking so long to heal, and when part of me gets a tan,. the pock marks show up terribly because they don’t tan. My siblings and Mom have lupus and we all get these sores, and the clear liquid inside burns like acid. Some of mine start as small as a pin head, then get bigger, but always deeper than normal sores. Ours are especially bad this past 7-10 days. We figured out why, but its controversial so I don’t talk about it much. Electromagnetic frequencies. Solar flares. When the sun has more solar flares, all sorts of symptoms get worse, especially autoimmune, asthma, allergies and nerve pain. Europe has a report of solar flare activity along with the weather report every day because it’s so reliable in predicting worsening chronic illness, but N. America doesn’t seem to even know or believe it. Kind of like not believing air is there, because you can’t see it. When I am suffering especially bad, I go to this page to look at the solar flare activity. http://www.swpc.noaa.gov/ It almost acts like a symptom predictor for me. On that page, go to the graph picture on the bottom left. It changes every 5 minutes. I can help you understand the graph better if you want, but the point where the graph stops, that’s the level of solar flares happening right that moment. It has hours at the bottom, those are England time. As soon as one shows up, I dot some antibiotic liquid on it. The chemical name is clindamycin topical. It has a sponge type dabber on the bottle.Then I put a tiny dab of clearasil to dry it up, and a dab of cortisone to take away the redness and burn. I stopped getting pock marks when I learned that trick. I found that if I keep my face moisturized, I get fewer lupus sores there. As for the scabs, if you can keep ointment on it as much as possible to keep the scan away, you will have have less scarring. New first aid is teaching to keep all cuts, sores, burns covered in ointment to avoid scabbing and scarring.Antibiotic ointment would be cheaper than the clindamycin, not sure if it treats the same problem though.
I am so glad I’m not alone!! I’ve literally never known anyone who knew exactly what I was talking about!!
This is exactly how mine do!
artchick said:
i get them on my face! I have several knots under the skin, and when I have a flare they come up. Starts like a pimple, but much more sore. Then it blisters and scabs. Takes FOREVER to heal. They are mainly around my chin. I don’t have near as many or as severe not that I am on plaquenil. If I miss a couple of days, they start getting inflamed.
hi i get lupus lesions on my face , when i get stressed out , i have found putting triple antibiotic cream put on helps them to heal really fast......and it is definetly LUPUS LESIONS.....also it helps so it does not leave a scar......huggs.....purrs..catspaw1955
Hi!, yes , it maybe part of Lupus . It comes different forms n u never know what to expect, LOL… hang in there and don’t stress . They go away by themselves. …Beverly L.
I forgot to tell you that my dermatologist gave me a prescription for Elidel. It is awesome! when it feels like one of my cysts under the skin is getting inflamed, I put that cream on and they calm down almost immediately. It's not a miracle cure, but it does ease the pain. Hugs!
Does anyone remember BGO cream?
Celestel - were u tested for lupus? I’ve not been tested yet but I really don’t have any doubts about what’s wrong with me. I do dread bringing it up to the Dr though for fear of being looked at as crazy. I will post my pics of my sores and scars to compare.
take the ANA test it will show if you have LUPUS of RHUEMETOID ARTHRITIS.....they are both auto immune diseases purrs..catspaw1955
I get scaly sores on my scalp all the time, which I tend to pick at. They drive me crazy. They also cause bald spots in the areas where they are but my rheumy won't even look at them. I also get sores in my mouth sometimes. She has diagnosed me with connective tissue disease, not lupus. She said that I tested positive for Lupus and RA but didn't have all the proteins for either.... but she never explained what that meant. My joints are getting worse buy the day and I keep telling her but she doesn't seem to hear that either. My short-term memory is also shot!
I think I might have these sores as well? I've never left them alone long enough to see how they progress... I end up scratching and squeezing the darn things. I usually get them on my face, but I've also had a couple on my scalp. They look like cysts, but when I try to pop them, nothing comes out, they just get more inflamed. After that, the skin on top peels, oozes a bit of clear liquid, and scabs. Is that what other people have been experiencing?
that sounds like mine. I found a description online in a medical paper somewhere that fit mine perfectly. It was called a "thumb tack" scab. it was attached in one spot like a follicle and was loose all around. gross, I know. :(
LMidg said:
I think I might have these sores as well? I've never left them alone long enough to see how they progress... I end up scratching and squeezing the darn things. I usually get them on my face, but I've also had a couple on my scalp. They look like cysts, but when I try to pop them, nothing comes out, they just get more inflamed. After that, the skin on top peels, oozes a bit of clear liquid, and scabs. Is that what other people have been experiencing?
That sounds exactly like what happens to my sores. Was the paper specific to Lupus?
artchick said:
that sounds like mine. I found a description online in a medical paper somewhere that fit mine perfectly. It was called a "thumb tack" scab. it was attached in one spot like a follicle and was loose all around. gross, I know. :(
I tried to find it again, but I haven't had any luck. I can't remember much about it except there was a picture that look just like the crusty nasty things I get and the description of being like a thumbtack scab. I'll see if I can google it today. I've got 3 of my dormant cysts starting to come up and getting red. It's so frustrating.
LMidg said:
That sounds exactly like what happens to my sores. Was the paper specific to Lupus?
artchick said:that sounds like mine. I found a description online in a medical paper somewhere that fit mine perfectly. It was called a "thumb tack" scab. it was attached in one spot like a follicle and was loose all around. gross, I know. :(