Hi Mary,
I'm sorry you're going through all this, and you are much more mature than your roommates : ) Lupus has made you stronger than your peers, there are many who would have run home already by now. Take a few moments in your day to stop and meditate. Clear your mind if only for 1 or 2 minutes. Take one day at a time, that's all you can do. You are in my thoughts and know that you are loved : )
Trisha
thanks trisha
i'm trying to do my crochet again since my hands aren't to horribly affected yet and their strong because of my asl (that's what i'm majoring in :D)
lupus does make me stronger than others but sometimes i'm not so strong to always fight it
i'm doing much better today though now that ive gotten my meds my mom and boyfriend have both noticed a difference. I think my pleurisy is acting up though so that kinda sucks but at least i'm in a better mindset to handle it
it's another bad day with my roommates. i try to be positive and nice and they both are just leave me alone idc it's like if i texted them saying i was in the hospital i really don't think they would flinch. I'm working on finding some better people to surround myself with, but it takes time determine those good for me and those not. I'm very picky about my friends because i know who i'm around is who i tend to act like so surrounding myself with people who smoke, drink, cuss, act snoody or anything like that is not good for me. i'm doing my best to limit my stress and i'm sure it'll help when i get away from the 2 roommates who are being rude
Mary
"asl" is that American sign language?
It was a few years ago for me : p, but I clearly remember my roommate from Hell in college. I spent an entire year with it. I put up with if for about 7 or 8 months and I finally blew up at her. I got tired of them drinking 6 nights out of 7, and eating my food and their friends coming and eating my food and she commented on what I was eating once. I was always heavy and that day was the day. I screamed at her, I lived off campus and everyone heard it. I was always the nice sweet one, I didn't know all the guys on our block intimately like the rest of the girls in my neighborhood, and I didn't get mad at anyone. Until that day.
I like what you said about knowing that who you surround yourself with is who you tend to act like. When I made the honor society in 9th grade, my teacher lectured us about that before we went to the high school. (At that time, my high school was so big, it was grade 10,11 and 12)
I may be older than you. but I do understand.
Love to you, Trisha
mom came and picked me up friday
she about killed my roommates
actually she went off on one of them cuz i was putting stuff in the car as i was doing the house chores i needed to do and she kept say mary you need to do this and they were hinting at me doing my other roommates chores (the one i get along with) mom finally got sick of it and said have we left yet? no i didn't think so her stuff will get done before we leave
i only have 2 more weeks left with them and then i'll be moved to either a one bedroom flat (trying to get off stairs) or over to an actual dorm until one becomes available
either way i'll be away from them
i'm home for a week and mom moved so i get to sleep on the couch :/ but last night i got to sleep in moms bed and she took the couch and i was very excited i got a real bed for a night but this morning i am not a happy camper
up and down all night in pain...my shoulder keeps popping my wrist is just being difficult and hurts my back was making it so there was noway to be comfy and now my ankle is beginning to act up again
im running out of things to do it's only so long before i get a tolerance to certain pain meds
any tips
Hi Mary,
We are all here in the same boat. I'm sorry, your roommates were so insensitive, my boss did the same thing, then transferred me to another section of the job. I say, just own it. It can be hard to have Lupus, when people don't understand its origin and what that means to them. Just, see if you can get a room change if you are really stressed out. Or see if you can stay home for a semester and just get yourself together emotionally. See if a therapist can help you understand your health and how to adjust to this illness. Don't let people off the hook for making you feel bad, call them on their bad behavior and join some clubs on campus, surround yourself with positive people and those whom are very supportive with your illness. Focus on your health, classes and studies, if that means taking less classes, then do it.
Lupus has taught me to take much better care of myself and my emotion, health and social life. Remember, you are going to be the center of your own health care.