Hi, I was wondering if anyone gets hit by waves of nausea. I am on Plaquenil and Neurontin and thought I was doing better until this nausea hit me. It isn't constant - it comes and goes, sometimes keeping me up all night. Does anyone have this issue, and are there any suggestions on how to cope with it? I do take Omeprazole for GERD and am going through Tums and Pepto like crazy! Thanks so much in advance. This site has been so helpful. xxoo
Have you tried ginger? There's ginger tea and ginger gum to help with nausea. I think there are also ginger root supplements/capsules. Might be worth a try. Just make sure it doesn't interact with any of your medications before you buy any.
Hi, I'm on the exact same thing. I was getting nausea to and my doctor took me off of the Neurontin's and put me on Lyrica. I'm not having any problems with my stomach now. Ask your doctor about Lyrica.
Hello streyper,
Nausea is a side affect of plaquenil and the other meds your taking could be causing it also.
The link below explains about nausea and lupus and also including the gastrointestinal (GI) system including Gerd.
The link below is foods which can ease nausea and help prevent flare ups which cause the issue also.
http://www.lifescholarship.org/lupus-nutrition/
Terri :)
Thank you all. I have not tried ginger, but I do reach for a stick of peppermint gum when the upset first starts. I did not know they made ginger gum and will definitely look for it. JoJo8, I've been on Neurontin for at least seven or eight years now. Do you think I would suddenly react badly to it? I did try Lyrica, Cymbalta and Savella. None worked. I'm glad your tummy is better. Terri, I am just about to go to your link. Many thanks. I am not up to full dose of Plaquenil yet because it was bothering my GI system so much. I've been on 1/2 dose for about 2 years. I seem to ebb and flow with this nausea problem, and of course, on Easter Sunday...it's back. UGHHHH!!!
Wishing you all good days and good health. Thank you for taking the time to reach out. Lys :)
Hello Lys,
I hope the links help and nausa can be terrible i had it with plaquenil to start with but i still have it off and on due to theLupus besides having bad IBS besides alot of trouble from the sjogrens.
Regarding meds Lupus can reject them at any stage because meds/colds etc are all foreign bodies where Lupus is concerned and regarding Neurontin after 8yrs that could be the same plus it causes nausea and i've never seen a med carrying so many side affects.
http://www.drugs.com/sfx/neurontin-side-effects.html
Love Terri xxx
The links did help, Terri. Thanks so much. I also have IBS (yuk) and it seems to have gotten worse in the past few years.
The second paragraph you wrote was a real eye-opener. I never stopped to think that lupus can reject meds because it sees them as foreign bodies. I just figured that I've been on the meds for so long that it must be something else, but after reading all the side effects of Neurontin, I think it is time to look for an alternative.
I don't know how long you have had the diagnosis (I am coming up on three years), but I guess that I am so overwhelmed at times that I am not a really good advocate for myself. I know I should be better informed, and I do trust my medical team. There is just this feeling that I don't want to deal with it. I can push it to the background for only a little bit...it always comes back to bite me. One thing I am finding is that the lupus community is filled with really caring, helpful, wonderful people. Thank you again. I hope we can talk again soon. xxoo Lys
Hello Lys,
I am pleased the links helped and IBS is terrible they tested me first for coeliac disease which came back negative and i told the gastric specialist i hope you know Lupus can cause false readings which he agreed on but with furthur examination and tests it was IBS...I take 3 times daily Colofac tablets 135mg each and also Lactulose twice daily it's to help my bowels incase constipation kicks in.
Lupus medications themselves can last upto 2-5yrs the most to how they should before alot of people are moved onto something stronger...i've been on plaquenil two years but they've got where they're hardly working and i'm having black floaters in my left eye started last week and my rheumo is concerned with me being on them where my eyes are concerned with the sjogrens besides they need plugging now.
I was diagnosed in 2008 by my dermo as my psoriasis was mimicing ringworm nd he ran tests and found out i had Lupus besides DLE and extensive tests was run besides my body temp and with my history of epilepsy, strokes, DVT and more it was inherited i was born with it and i had ailments from a child anyway and my dermo told me to get my siblings tested and my youngest sister went straight away her bloods came in positive and she also as Roascea badly but just look how i could hav kept going without knowing but there's no help with me to much involved and the meds can harm me now more than help.
streyper it is hard to deal with but try not to push it aside...learn as much knowledge as you can on the condition besides what other issus it can cause....it's hard and it gets me down especially the more disability it's added onto me.
You've always got we...i have my hubby who understands besides takes a fare bit of crap off me with my temper but LWL as become my 2nd family and your all so much supportive.
Stay strong 
Terri xxx
Streyper,
As Terri said, nausea is a side effect of many of the medications that are prescribed for Lupus. I, too, am on Plaquenil and do get nausea out of the blue. I take Zofran when I am really bad, but if you are having diarreah as well, you should inform your doctor. My doctor explained to me that if I am throwing up my meds or having severe diarreah, my medications are not making it into my system to help my Lupus. Makes sense.
Ginger tea, Ginger snaps (my personal choice) and Ginger caps are all good choices for natural nausea relief.
I hope some of these suggestions that others have posted help.
Feel better soon,
DeAnne
Streyper,
Make sure you check out the group for Gluten-free ideas and recipes...it has helped me immensely.
Terri is a wealth of info.
XOXO,
DeAnne
streyper said:
The links did help, Terri. Thanks so much. I also have IBS (yuk) and it seems to have gotten worse in the past few years.
The second paragraph you wrote was a real eye-opener. I never stopped to think that lupus can reject meds because it sees them as foreign bodies. I just figured that I've been on the meds for so long that it must be something else, but after reading all the side effects of Neurontin, I think it is time to look for an alternative.
I don't know how long you have had the diagnosis (I am coming up on three years), but I guess that I am so overwhelmed at times that I am not a really good advocate for myself. I know I should be better informed, and I do trust my medical team. There is just this feeling that I don't want to deal with it. I can push it to the background for only a little bit...it always comes back to bite me. One thing I am finding is that the lupus community is filled with really caring, helpful, wonderful people. Thank you again. I hope we can talk again soon. xxoo Lys
Hello Elyse,
Joining the Gluten group on the main page which DeAnne started may help you in many ways like she's said, as so many have contributed about Gluten...it's worth ago if it will help you.
How are you feeling today?
Love Terri :)
Hi Terri,
Funny you should mention that! About three months ago, my doc started me on a gluten-free, grain-free, sugar-free and processed food-free diet. I've been eating 80% fruits and vegetables and 20% protein. I tested negative for celiac disease, but no matter. One of my docs feels strongly about a gluten-free, junk food free and sugar free diet for a healthier autoimmune system. I really believe it has helped. I'm feeling better today, thank you. I had an appetite last night (finally!) and ate a delicious Easter dinner that my husband prepared. How are you doing today? xxoo
Tez_20 said:
Hello Elyse,
Joining the Gluten group on the main page which DeAnne started may help you in many ways like she's said, as so many have contributed about Gluten...it's worth ago if it will help you.
How are you feeling today?
Love Terri :)
Thanks DeAnne. I will talk to my doctor about the nausea. Initially, he cut back the Plaquenil to see if that helped and it did. He raised the Plaquenil again and I thought I was tolerating it pretty well until recently. I am going to a local natural food store to purchase ginger tablets. Yes, I do have problems with diarrhea also, but now it isn't what I would call severe. Three months ago, it was awful. I just never know what every day will bring. I'm sure you understand that! Thanks for the advice. xxoo Elyse
whathappensinvegas said:
Streyper,
As Terri said, nausea is a side effect of many of the medications that are prescribed for Lupus. I, too, am on Plaquenil and do get nausea out of the blue. I take Zofran when I am really bad, but if you are having diarreah as well, you should inform your doctor. My doctor explained to me that if I am throwing up my meds or having severe diarreah, my medications are not making it into my system to help my Lupus. Makes sense.
Ginger tea, Ginger snaps (my personal choice) and Ginger caps are all good choices for natural nausea relief.
I hope some of these suggestions that others have posted help.
Feel better soon,
DeAnne
Oh my gosh Terri - you have had such a difficult time. You're right, I have to face this head-on and learn as much as I can. I have a wonderful and supportive husband that has always helped around the house (even before I got sick) and I know I am very lucky. Sometimes the depression and accepting this new life really get to me...xxoo
Tez_20 said:
Hello Lys,
I am pleased the links helped and IBS is terrible they tested me first for coeliac disease which came back negative and i told the gastric specialist i hope you know Lupus can cause false readings which he agreed on but with furthur examination and tests it was IBS...I take 3 times daily Colofac tablets 135mg each and also Lactulose twice daily it's to help my bowels incase constipation kicks in.
Lupus medications themselves can last upto 2-5yrs the most to how they should before alot of people are moved onto something stronger...i've been on plaquenil two years but they've got where they're hardly working and i'm having black floaters in my left eye started last week and my rheumo is concerned with me being on them where my eyes are concerned with the sjogrens besides they need plugging now.
I was diagnosed in 2008 by my dermo as my psoriasis was mimicing ringworm nd he ran tests and found out i had Lupus besides DLE and extensive tests was run besides my body temp and with my history of epilepsy, strokes, DVT and more it was inherited i was born with it and i had ailments from a child anyway and my dermo told me to get my siblings tested and my youngest sister went straight away her bloods came in positive and she also as Roascea badly but just look how i could hav kept going without knowing but there's no help with me to much involved and the meds can harm me now more than help.
streyper it is hard to deal with but try not to push it aside...learn as much knowledge as you can on the condition besides what other issus it can cause....it's hard and it gets me down especially the more disability it's added onto me.
You've always got we...i have my hubby who understands besides takes a fare bit of crap off me with my temper but LWL as become my 2nd family and your all so much supportive.
Stay strong
Terri xxx
Streyper,
It sounds like you have a good "game plan" in place. I hope that some of these suggestions help.
I don't have celiac disease either, although I know many members do. I have noticed, however, that taking much of the "junk" out of my diet has enabled me to tolerate my meds better and making sure those stay down is sort of a priority.
Hope you are feeling better today.
XOXO,
DeAnne
Hello Elyse,
Sorry i'm abit late replying :)
Well the Gluten will help your IBS besides eating like your doing does help Lupus in the system besides and so many members eat like it.
I still eat how i've always done what i like but certain foods i've had to cut out through bad irritation to the IBS and also foods i have a game swallowing with the sjogrens because when it gets trapped the pain is terrible but i always have chocolate daily because i have low sugar and to try and keep it to 4.0 the most i need the stuff.
I hope your keeping slightly better today, all my love :) xxx
streyper said:
Hi Terri,
Funny you should mention that! About three months ago, my doc started me on a gluten-free, grain-free, sugar-free and processed food-free diet. I've been eating 80% fruits and vegetables and 20% protein. I tested negative for celiac disease, but no matter. One of my docs feels strongly about a gluten-free, junk food free and sugar free diet for a healthier autoimmune system. I really believe it has helped. I'm feeling better today, thank you. I had an appetite last night (finally!) and ate a delicious Easter dinner that my husband prepared. How are you doing today? xxoo
Tez_20 said:Hello Elyse,
Joining the Gluten group on the main page which DeAnne started may help you in many ways like she's said, as so many have contributed about Gluten...it's worth ago if it will help you.
How are you feeling today?
Love Terri :)
Hello Elyse,
Besides myself having difficult times other members do and there's a few on here like myself where there's no help for them regarding meds...so ailments just keep on multiplying.
To me it's a disease and although i get down with it like other's, it's a disease where you can't afford to let it beat you and knowledge is good when you come to see specialist's...my first rheumo and me had it out and he sent a letter to my GP stating it was wrong me talking in medical terms but my dermo was great and got me with some one who is great and more up market on the knowledge of Lupus...my hubby is the same as yours can't do enough but it gets me down him being older and i feel useless at times and if my todds-paralasis hits me then everything as t be done for me toilet etc...it's a good job he's a broad minded bloke.
Love Terri :) xxx
streyper said:
Oh my gosh Terri - you have had such a difficult time. You're right, I have to face this head-on and learn as much as I can. I have a wonderful and supportive husband that has always helped around the house (even before I got sick) and I know I am very lucky. Sometimes the depression and accepting this new life really get to me...xxoo
Tez_20 said:Hello Lys,
I am pleased the links helped and IBS is terrible they tested me first for coeliac disease which came back negative and i told the gastric specialist i hope you know Lupus can cause false readings which he agreed on but with furthur examination and tests it was IBS...I take 3 times daily Colofac tablets 135mg each and also Lactulose twice daily it's to help my bowels incase constipation kicks in.
Lupus medications themselves can last upto 2-5yrs the most to how they should before alot of people are moved onto something stronger...i've been on plaquenil two years but they've got where they're hardly working and i'm having black floaters in my left eye started last week and my rheumo is concerned with me being on them where my eyes are concerned with the sjogrens besides they need plugging now.
I was diagnosed in 2008 by my dermo as my psoriasis was mimicing ringworm nd he ran tests and found out i had Lupus besides DLE and extensive tests was run besides my body temp and with my history of epilepsy, strokes, DVT and more it was inherited i was born with it and i had ailments from a child anyway and my dermo told me to get my siblings tested and my youngest sister went straight away her bloods came in positive and she also as Roascea badly but just look how i could hav kept going without knowing but there's no help with me to much involved and the meds can harm me now more than help.
streyper it is hard to deal with but try not to push it aside...learn as much knowledge as you can on the condition besides what other issus it can cause....it's hard and it gets me down especially the more disability it's added onto me.
You've always got we...i have my hubby who understands besides takes a fare bit of crap off me with my temper but LWL as become my 2nd family and your all so much supportive.
Stay strong Terri xxx