Hi Everyone....I haven't been on this site or the fibro one for a long time. Maybe it was because if I wasn't on the sites than I could deny the fact the something is wrong. Not sure.
I saw my primary doctors two weeks ago. A PFT was done which showed severe restriction as far as lung capacity. My heart murmur had also gotten louder. So I went to cardiologist and an echocardiogram was done. I have some mild regurgitation in all valves, but also in the conclusion the diagnosis of borderline pulmonary hypertension.
So I have done my homework trying to find out about this. Not easy. I got the name of a pulmonary doctor and I am still waiting to hear from the doctor who specifically treats this disorder. It is a grim diagnosis if I in fact have this rare disease. I tried to see if it was somehow related to lupus, but I haven't found very much on it in regards to lupus.
I feel horrible today. Everything hurts (fibro) and my finger joints are swollen.I have even actually considered going to ER which may give you some indication of how I feel. I hate hospitals and I am tired of being treated like I am crazy. But then I wonder why would I want to go...more money for them, they won't give me meds I need and I won't sleep at all there which will definitely make the fibro worse.
Are there times when you just want to throw in the towel? I am so tired of feeling horrible, spending money for doctors who don't know anything or care. I just wondered if anyone out there has a dx of pulmonary hypertension? I am going to lay down for a while and take something for the pain. I will check back periodically today to see if anyone posts anything.
Sorry it's been so long since I have been on. Sometimes it hurts too much to see the real picture.
Gentle hugs,
Nan