My biggest complaint all the time is my extreme exhaustion. I think I deal better with the pain than I do this constant feeling that I just want to lie down. I feel so drained. My doctor has checked my thyroid and it is fine so she says if we can beat it with rest then we will treat it with drugs. I am so hesitant to take meds because before I was “officially” diagnosed with Lupus and Sjogrens I was put on tons of different drugs. I felt toxic just from taking them. I never researched them. I just took the doctor at their word. I was desperate and I figured they knew how to fix me. One drug, Pristiq, is still part of my daily routine, not because I like it, but because I can not get off it. It is a horrible drug. I have requested the help of my doctor to get me off it but even she is afraid of what the side effects of the withdraw process will do to me. She says she wants me to see a psychiatrists to get me off it. I am down to only my plaquenil, pristiq, Vit D, and now Nuvigil. I have prescriptions for neurontin, meloxican, prednisone, and xanax- but I don’t take them unless I feel a flare coming. (Plus-my RX insurance sucks and I can’t afford to take them all the time) I had another 10 or fifteen other things- prescription, herbal, and OTC I used to take as well- but I’ve narrowed it down to the ones I absolutely can not function without.
So, back to my original question. ..Should I continue to take this medicine? I have read that it is basically the same drug as the provigil- which did nothing for me. If someone else has had success let me know. I just can’t afford to take it if it will never help me.
Cassie, I took adderall from 2000 to 2008 to fight the fatigue and make my brain work before I received a diagnosis. One day I woke up in 2008 and it stopped working. My psychiatrist has tried me on neurotin and after three weeks I became extremely depressed, angry and wanted to die. I stopped taking and it took three mos. for me to feel psychologically better. Later we tried nuvigil. Felt great for 2-3 days then ended up in bed exhausted and feeling like I burned some of my life force up, if that makes since… I realize that I have delayed reactions to almost all meds. Wish I had something better to offer you. I have been stuck in this place for 3 yrs now. I have to be close to a bed so I can lay down on short notice. ((hugs))
Cassie, I took adderall from 2000 to 2008 to fight the fatigue and make my brain work before I received a diagnosis. One day I woke up in 2008 and it stopped working. My psychiatrist has tried me on neurotin and after three weeks I became extremely depressed, angry and wanted to die. I stopped taking and it took three mos. for me to feel psychologically better. Later we tried nuvigil. Felt great for 2-3 days then ended up in bed exhausted and feeling like I burned some of my life force up, if that makes since… I realize that I have delayed reactions to almost all meds. Wish I had something better to offer you. I have been stuck in this place for 3 yrs now. I have to be close to a bed so I can lay down on short notice. ((hugs))