LOL!!! Keep up the good work! LOL LOL
KOURTNEY, DON'T YOU KNOW PEOPLE ARE MEAN, WHEN YOU ARE NOT IN A WHEELCHAIR AND YOU HAVE A PHYSICAL PROBLEM BUT LOOK NORMAL TO MOST PEOPLE. YOU CAN NOT LISTEN OR LOOK AT PEOPLE LIKE THAT. THEY ARE IGNORANT!!!!! BELIEVE ME.
I HAVE BEEN HURT SO MUCH. I HAD A FRIEND THAT PASSED AWAY ABOUT A YEAR AGO AND THEY SAID YOU SHOULD HAVE DIED YOU HAVE LUPUS. BECAUSE THE MUTAL FRIEND DIED BEFORE ME, THEY ARE ANGRY.
INSTEAD OF SAYING THANK GOD MICHELE YOU ARE STILL LIVING!!
PEOPLE ARE NUTS.
TAKE CARE
ALWAYS MICHELE AND RUSH
Michele!!!!! Those people DO NOT DESERVE TO BE IN YOUR LIFE!!!! JUST SAY NO TO TOXIC PEOPLE!!!! I used to get the "just pray about it" speech from my Grandmother....she actually banned me from family gatherings on her side of the family because of the way I looked...."people were talking about me." I finally let her have it one day and I feel at peace now.....she's worried about me attending her funeral because I have tattoos on my back and she wants me to cover them up....AT HER FUNERAL....I told her not to worry...I won't be attending her funeral!
Lupus did kill me last year....it finally woke them up and they can't deny how sick I am.
Toxic people aren't worth it....do all you can to stay away from them!
I think I will print out little cards that explain what SLE is so I don't have to keep repeating myself.....
Much love,
Lori
PEOPLE THINK WE ALL SHOULD BE PERFECT UNTIL THEY LOOK AT THEMSELVES WHEN THEY ARE EATING A IN AND OUT HAMBURGER AND LOTS OF FRIED FOODS. BUT, BECAUSE WE ARE PHYSICALLY LIMITED I GUESS WE ARE NOT SUPPOSE TO ENJOY WHAT OTHER PEOPLE ENJOY.
SO, I AM OVERWEIGHT BY 50 LBS. IT COULD BE WORSE. I TRY TO EAT RIGHT AND WITH THE HOLIDAYS YOU KNOW I AM NOT EATING EVERYTHING I WISH I COULD EAT.
I NEED WILL POWER AND THAT IS WHAT I LACK. SO, PEOPLE HAVE A PROBLEM IT IS NOT US!!
THEY ARE STUPID AND LACK COMPASSION.
ALWAYS MICKEY AND RUSH
Hello!, hang in there ? remember Living with Lupus is a hard job! There is sooooooooooooooooo much that we have to dal with - Staying HEALTHY and PAIN FREE ! stress is not a factor , Yes it is hard, not to hear somethings that will cause that moment of stress , i , myself only hear positive things !!!! No! It was not easy to get to this stage , so what am say " Somethings don't need to be heared - ignore thoses moments !!!!" It makes it so much easier. People in the world today are not as caring as past time , try not to pay attention or respond ?Take care and prayers go out ...Beverly L.
Eagle41 said:
I understand. Earlier this year I was in the hospital for 10 days. 40 mg prednisone and ACTHAR shots. I am still on prednisone but thankfully now on 8mg. I am still swollen and flushed and of course have gained 20 lbs. I had to work so after missing a total of 3 weeks at work I had to go back. It was hard just to physically be there. But it didn't make it easier when my customers would constantly ask "what happened to your face?!" Or worse yet didn't even recognize me at all. I never thought of myself as vain, but it is hard.
HA!HA!HA!HA!HA! That is a good one !!!!! I hit the floor on this - that was funny to imgaine...Beverly L.
reet said:
That is exactly what I would have done! Good for you Kourtney!
Kourtney said:thanks guys..haha its hard for me to not to be mean back sometimes. lol ..or when the lady at bath and body works asked if it was contagious and I just pretended to cough on her and said ya but don't worry only stuoid people can catch it lol. thanks to all of you guys it does make me feel better to know im not alone
The prednisone made me gain weight in the abdomen and I swelled up right away....used to have people asking if I was pregnant and when was I due..."in about two years"...you should have seen the look on their face! My rheumy says all of the swelling will go away as soon as I'm off of the steroids, but we can't seem to get there. I have the moon face, too, and my former coworkers always remarked on it...."oh, look at your moon face!".....I worked in a medical dept. and interacted with doctors and nurses all day long. Even they couldn't keep their mouths shut!
Lori
Hi
What happened to respect?? What happened to "don't hurt peoples feelings" Am I the only mother that taught that.
Ciindy
Yes Ciindy! I was taught manners too! If your gonna talk about someone at least wait until they leave the room and can’t hear you. I was taught if you can’t say anything nice don’t say anything at all! I would never have the nerve to ask a person why does your face look wierd? Or why are you in a wheel chair ect…
Hello!, now my family Understand , but it was not easy the first 6-8months!! Please ! I don’t Never want to re live that moment of Living with Lupus-NEVER! God ! My prayers go out to all who family and friends are at the start …Beverly L.
freightliner said:
Good Morning everyone:
I don’t understand people not understanding our disease. When I was diagnosed some of my friends and family went to the "net: to find out what Lupus is. Doesn’t anyone elses family do that??? I have never had a problem with my family or friendsThey understand if I can’t go to the mall and walk thru all the stores, I can only walk thru a couple. I guess you HAVE to ignore the stares and whispers, or you will make yourself crazy .
Have a good day and don’t let people GET to you.
Cindy
No! You are the only one! But I know am tired of asking that question also!smile the world has become cruel …Beverly L.
freightliner said:
Hi
What happened to respect?? What happened to “don’t hurt peoples feelings” Am I the only mother that taught that.
Ciindy