I read a lot of the discussions on here and try to respond to the best of my knowledge. We are all here for the same thing, support and understanding. I don’t feel it is fair for anyone to be judged on their lifestyles or how they cope with what they live with. I have been living with this disease for almost 19 years now and I am not getting any better because I am not on treatment. i am having huge problems with my major organs right now. I am very proud of myself for everything I am able to accomplish. I cook, I clean and do everything it takes to take care of a house. I do not use my illness as a crutch but I refuse to be a maid in my own home. I do all the thurough cleaning and expect help with messes I do not create. I came here for understanding and it really is nonsense that someone would be allowed to critisis me because I expect help from the peope who dirty my house. I am really hurt that someone who hasn’t even experienced half of what I have, can come on here and tey to insult me andd my judements. If we can’t come here to help eachother survive this then what is the point? Be all means expresswhat helps you during this rough time but please do not critisis me for how I cope with what I have going on. I don’t only have Lupus, I have kidney diseas as well. I just want people to be aware that if you have something and want awarenss then maybe you should start within yourself. EVERYONE HERE HAS THEIR OEN SET OF SYMPTOMS AND ISSUES DUE TO IT. Please consider that when you comment on other peoples discussions. Thanks a lot and stay blessed.
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