I have been telling my husband how badly we need a new mattress...its jst becuase of needing the extra money I havent purchased one yet. But it is on my list of prioroties.
I totally know that the pressure your matress delivers backto yo body is why we wake up mostly feeling like somebody HIT US WITH A DUMP TRUCKthe next day eeven if we slept a few hours!
My doc has been super tight with releasing meds.... maybe becuase he knows that once ur on them..its so hard to get off... or increase doses.. etc.
I realy think he is trying to support my decision when i told him i wanted to limit my meds as much as possible in asafe manner. But that was years ago!!!! LOLOLOL!
Now i say... make my life comfortable!!!! NOW!!!
:)
so i need to go to a reg doc... not lupus doc.
maybe he isnt comofrtable treating those symptoms in lupus.....
hmmmmm....thinking.....
artchick said:
xanax relaxes my crazy thoughts and worries about the next day, and the flexeril relieves the tension that often comes with the anxiety and lupus. And, I am so surprised at how much difference a new mattress can make! I hope you can find a combo that works for you! HUGS!
LIFEwithLupus said:
xanex sounds great/
i seriously started having anxiety atuacks.. in this last year.
totally new to me.
Omly when i described to someone what happens-- they mentioned anxiety attacks.
I just associated it with stres...and lupus reaction.
Anyhow.....
my hands are hurting so let me out the PC down.
But until next time.....
artchick said:
I think the combination of xanax and flexeril and a new mattress have helped me immensely!
update everyone......
I had my first night with Lunesta... small dose of 2mg.
and it works just like another Member here said.. 4-5 hours max.
but I WILL take those hours.. becuase i was knocked out .... in a deep sleep.
i do feel rested today.
Mymood is stable.... i dont feel all over the place like i did yesterday.
Mood swings and angry...irritated. all of the above.
but whew! today is a new day...
#laughter
#blessings
#thanksforlisteningANDsharing
Hey Life! I had my old mattress for almost 20years! I noticed I would wake up with whichever side I was on would be in so much pain. The bed was just too firm. I got my new mattress online for about $300. It is so comfortable! Even hubby is happier with how well he sleeps now.
300 is do-able!
what website?
artchick said:
Hey Life! I had my old mattress for almost 20years! I noticed I would wake up with whichever side I was on would be in so much pain. The bed was just too firm. I got my new mattress online for about $300. It is so comfortable! Even hubby is happier with how well he sleeps now.
Your right! u r so right...
i wnt all raw for a while too... just to help the inflammation. and yes it helped bu it didnt cure.
and i still was on meds... and still had sleep propblems.
So the sleep issue is real. regardless.
Beverly L. said:
Hello, they really don't understand why we have changed from the normal things that we use to do. The problems that we have are something that can't just go away in a matter of days or hours . It is really hard for us , especially not able to sleep at nite!!! And the doctors seem to think we are over reacting and say "it will pass in a couple of days, just try to relaxe as much as possible. Changing the way we eat don't help either, I have tried eating more vegetables and less red meats, more fish and really it don't help either but my engery level through the day has changed alot, am able to do more things longer than I was able, that's a good thing but I can't sleep sometimes at nite. So now I just read or write in my journal most of the time- but there are some nites that I just lay still and look at the ceiling and the wall ( day dream ). Hopefully someday there will be a cure for Lupus and all the other things that people have that's a problem for us to live with, so in mean time we have to do the best that we can !!! Holding on to our self will to beat "Living with Lupus"......Beverly L./>
LIFEwithLupus said:
@KIRA
Seriously!! too many people suffer w/ lac of sleep.
if they controlled this issue we probley woul dbe healtheir. have more pain when i watch the sun rise every morning and never closed these eye lids!!! grrrr.
So update......
You know how we have to .... (change words) .... how we attempt to work WITH the Rhuemy- not against them..? meaning.... they want you to try a drug that you feel will not work for you. but u do it anyhow just to show your trying things there way also.???????
Thats horrible... but sometimes you just dont wanna fight about it/
Well they called in Lunesta... and I just finished reading the post on LUNESTA.... so I have no high hopes.
But i am sure the first few days will be nice. just because its a new med. My system is completely used too Ambien at 10mg.... and knows ow to fight the sleep.
YES //// MY BODY fights sleep likea 2 year old who won't nap.
I just refuse to close my eyes sometimes.
I have no clue why.
Anyhow.
WIsh me luck tonight everyone.
I have beent he grumpiest person -- short fused person --- angry person...
and i am sure its a lack of sleep. mixed with pain.
--Cynthia
Kira said:
Seriously, you would think that we are just a small percent of all the people that have this problem. Why can't they figure out a way for us to get some sleep already?
I hope the Lunesta does the trick for you. Two things have really helped with sleep for me -- Amitriptyline and a 30 minute walk daily. Before starting the amitriptyline, I had a lot of trouble falling asleep, then I would often wake up at about 4 am and not be able to go back to sleep. The Amitriptyline has made a huge difference both in falling asleep and staying asleep. Now, if I do wake up in the middle of the night, there is usually a reason for it (have to pee, fingers numb, etc.), and I am usually able to get right back to sleep. The walk isn't always easy, but I try to do it every day unless the pain/fatigue is just too much.
i do usually go for a walk. its the onl exercise we get.. me and our small dogs.
My husband is active in gym. He tells me to come with him/ But as some of u know.
We sometimes feel less than competant around all these bouncy bubbly healthy folks.
CAN you HEAR the sarcasm in my voice? or is that jealousy? LOL. LOL!!!
No really... really healthy people make me a little envious. Because i remember those days... wheni was went to the gym at 6am.. and made my breakfast daily..etc.
But anyhow... NOW is now. And I just dont want to go to the gym right now.
Okay. I must take that topic to our ladies page.... becuase I know i am opening a can of worms for myself.. and probley others
Gym is great... but sometimes being around everyone who really pushes themselves so hard makes me so envious that i start feeling depressed or less than becuse of my inabilities.
HORRIBLE
but its the truth... for me.
ranin02 said:
I hope the Lunesta does the trick for you. Two things have really helped with sleep for me -- Amitriptyline and a 30 minute walk daily. Before starting the amitriptyline, I had a lot of trouble falling asleep, then I would often wake up at about 4 am and not be able to go back to sleep. The Amitriptyline has made a huge difference both in falling asleep and staying asleep. Now, if I do wake up in the middle of the night, there is usually a reason for it (have to pee, fingers numb, etc.), and I am usually able to get right back to sleep. The walk isn't always easy, but I try to do it every day unless the pain/fatigue is just too much.
Yes I can picture myself like at the start of this Lupus stuff!! I can totally relate to you, and that’s not even saying it in a bad way or anything, just seeing others do the things that we can’t do bothers me at times also. But hay we try to stay sane over this matter -hard at some moments, we find the strength from somewhere to do other things in which we can ,even if it only walking the dog-LOL. Don’t get worked up about it cause a Flare , just do what you can and keep it moving…Beverly L.
Thank you Beverly. Honesty is my best policy. And i feel like if i am honest abousomething... i can move forward from it...
so i guess i have the horrible task of joining the Gym soon.
I must conquer this feeling of being inadequate.
God has a sense of humor for sure!
but you said it Bev (can i call you that??)-- KEEPMOVING!! yessss!
Beverly L. said:
Yes I can picture myself like at the start of this Lupus stuff!! I can totally relate to you, and that's not even saying it in a bad way or anything, just seeing others do the things that we can't do bothers me at times also. But hay we try to stay sane over this matter -hard at some moments, we find the strength from somewhere to do other things in which we can ,even if it only walking the dog-LOL. Don't get worked up about it cause a Flare , just do what you can and keep it moving....Beverly L.
You are welcome!! That is why we are here to give support and comfort to one another.smile. We are here for reasons that the heavenly father have for us , so am not complaining at all!!! Talk with you later…Beverly L.
LIFEwithLupus said:
Thank you Beverly. Honesty is my best policy. And i feel like if i am honest abousomething… i can move forward from it…
so i guess i have the horrible task of joining the Gym soon.
I must conquer this feeling of being inadequate.
God has a sense of humor for sure!
but you said it Bev (can i call you that??)-- KEEPMOVING!! yessss!
Beverly L. said:
Yes I can picture myself like at the start of this Lupus stuff!! I can totally relate to you, and that’s not even saying it in a bad way or anything, just seeing others do the things that we can’t do bothers me at times also. But hay we try to stay sane over this matter -hard at some moments, we find the strength from somewhere to do other things in which we can ,even if it only walking the dog-LOL. Don’t get worked up about it cause a Flare , just do what you can and keep it moving…Beverly L.
Glad that you got a goodnite sleep!! Beverly L.
LIFEwithLupus said:
update everyone…
I had my first night with Lunesta… small dose of 2mg.
and it works just like another Member here said… 4-5 hours max.
but I WILL take those hours… becuase i was knocked out … in a deep sleep.
i do feel rested today.
Mymood is stable… i dont feel all over the place like i did yesterday.
Mood swings and angry…irritated. all of the above.
but whew! today is a new day…
#laughter
#blessings
#thanksforlisteningANDsharing