i know seems like i only come on here to vent…but even if no one reads it, it makes me feel better!
My joints have been bad for a few months off and on. My head has been pounding for 2 days. Yesterday i woke up with a red sore on my eyelid. By yesterday afternoon every muscle was aching and I was exhausted. Today I woke up with a “cramp” in my right side, a pain in my right armpit, my muscle aches, headache and joint pain are still there and now I have a burning sensation across my lower back! I feel like I’m going crazy! Can I just get one thing to let up before something else starts!! I’m frustrated! I was at the doctors last week and felt pretty good. Why can’t these issues appear when I go to the doctor? My next appointment is 2 months away!! I’m very frustrated!!
I haven’t been able to use the treadmill in several days. I don’t want this to stall my weightloss.
Hun I know how u feel about the venting. It just feels sooooo good to be able to get it all out. I do the same sometimes. It is hard for others to understand how this disorder can just turn on you in a second. I am so sorry u have to deal with all of this. I have been on 20mg of prednisone and havent had any issues with the lupus other then tiredness. I am getting off it within the next 2 weeks. I am dreading it.... I have been having muscle cramps real bad too. I had one in my side the other day and it was so bad it made me nauseated. I had to get in a real weird possition to make it go away....
Thank you all! Not sure why venting helps but it always make me feel better!
Rachel - Good advise, I did take pictures so i can show the rhuemy when i go.
Janice - you are always so supportive and we’re lucky to have you!
Sunshine - i hope it goes well when they reduce the prednisone…it’s a love hate relationship i’m sure! Makes you feel good but the side effects are scary!!!
Catharine - that seems to be the case with me every time! It is so frustrating!! If my tests didn’t come up with bad results my doctor would have me labeled as a hypocondriac!!