When I went to rhuemy today, I saw for the first time my “diagnosis” or should I say lack of one?
#1 other and unspecified nonspecific immunological findings
#2 780.79 Other malaise and fatigue
#3 719.40 Pain in joint, site unspecified
Nice way of saying its all in my head?
Was this your first visit to this rhuemy ? Did they not explain anything to you ? Do you have another appointment with them for further testing ? It is hard to get " The Diagnosis". It took years to get mine. Please hang in there and know we are here for you. Hugs, Love and Prayers to you. Sandy
Hi Sandy. No, I’ve been seeing her for years and she just gives me meds and repeats bloodwork and says "come back for a follow up"
She says my symptoms point to lupus, but my anti dsdna is negative, so…,
I went to the ER during bout #4 with pluerisy last year and the ER doc said he never heard of telling someone they have an unknown autoimmune disease and to find a new dr.
Guess that’s laziness on my part, but I don’t want to go through another dr to be looked at like a hypochondriac again.
Thanks for your supportive words
The immune disorders are very complex and a final diagnosis may be years in the making At least your rheumy recognizes that your immune system is not functioning properly I would disagree with your ER doctor- apparently he is the one without advanced knowledge in the immune disorders.
My rheumy told me that he gave me the "Undifferentiated Connective Tissue Disease " diagnosis for now, because there is nothing definitive enough to point to lupus or sjogren's. He says that it's probably one of those, but he can't say for sure at this point, so that is why he hasn't put lupus on the actual documentation. However, when we discuss my issues, he says lupus, so it's kind of weird.