lately- both hands feel half numb. kinda hurt. Knuckles kill... wrists and elbows hurt almost like carpal tunnel and tennis elbow. sometimes hands feel slightly numb...
headaches- and sinus pain ...
Sorry to hear you feel this way. My fingers get numb and painful on the tip and my wrist hurts and slight headache on top of head. Told by my Doctor your Nervous System and arthritis can cause this. The sinus pain can possible be a sinus infection.
we're twins! ; )
Oh ....my yes I can relate, for 7 years I had this not during the day, but as soon as I came home from work...at first I thought this is so wierd...it hurt so bad, no one could touch my wrists or elbows and my feet oh....forget those poor things....I would put my wrists under my breasts at night...I know might sound gross ...but the warmth was wonderful. Finally I found a good Dr. put me on Plaqinil....and It really did help...then I moved to a warmer location, and I mean warmer....Las Vegas...maybe to warm LOL....Right now I am going through other things, but I know exactly what your going through....I also have chronic sinisitis....thank you Lupus....you know I should hate Lupus ....but I dont....every time I come down with something new I just start meditating and get my body prepared as best I can....I have had SLE since 1985....a long time....You take care girl....my thoughts and prayers are with you.....
Bernice
Bernice- how long till Plaquinil took effect..? Ive been on it since Mid may - and I feel like CRAP
I am always aching like I have the flu but some days I do notice my wrists and fingers are way sensitive. I feel like I can't even make a fist. I have to say that an electric blanket is my best friend some days. Heat really helps me.
Hope you find something that works for you.
Take care,
Do you know of any good information for meditating?
bern said:
Oh ....my yes I can relate, for 7 years I had this not during the day, but as soon as I came home from work...at first I thought this is so wierd...it hurt so bad, no one could touch my wrists or elbows and my feet oh....forget those poor things....I would put my wrists under my breasts at night...I know might sound gross ...but the warmth was wonderful. Finally I found a good Dr. put me on Plaqinil....and It really did help...then I moved to a warmer location, and I mean warmer....Las Vegas...maybe to warm LOL....Right now I am going through other things, but I know exactly what your going through....I also have chronic sinisitis....thank you Lupus....you know I should hate Lupus ....but I dont....every time I come down with something new I just start meditating and get my body prepared as best I can....I have had SLE since 1985....a long time....You take care girl....my thoughts and prayers are with you.....
Bernice
I have severe knuckle pain in my right hand by the way im right handed I cant pick up a coffee cup by the end of a work day I just want to scream it hurts so bad. They say its the beginning of trigger finger im not sure I have had that surgery on my thumb. But I do understand and wish you luck.
I wear arthritis gloves, use a warming pad, and yes put my hands compleyely under my breast like Bernice. There are days I keep them cradled close to my body because they hurt so bad. Good luck with yours.
I found this link to be very helpful with different symptoms.
Plaquinil can take 2 to 3 months before you feel results. Its takes awhile to build up in your system.
Potslupus said:
Bernice- how long till Plaquinil took effect..? Ive been on it since Mid may - and I feel like CRAP
I can relate. My hands have always hurt, in the past I would practically beg the nurse not to put an IV in the top of my hand. I've had carpel tunnel surgery on both my hands, but my left hand still goes to sleep on me at night. My wrist pain is hurts and its unpredictable - I can pick up something light and it could hurt me worse than picking up something heavier. Just depends on the way I grip I guess.
I can def relate to all of those symptoms. I was just diagnosed with lupus two weeks ago, but have been dealing with the symptoms for over a year.
yes...the first few years of having lupus these were all of my symptoms. jOint pain was the most serious and debilitating part for me.
I needed help dressing, getting out of a tub, opening water bottles, butting my jeans, turning the key in the door.
so yes....to stop all of this spread of disease activity is to slow it down with good treatment. make sure you get on some meds uickly to slow it down.
if your liver is not weak....for now...800 ibuprofens 3x a day with meals may help. it did for me in the beginning.
best wishes
add ibuprofen 3 times a day if your liver is okay. it will help major with inflammation, thts the pain your feeling. ask doc about 800 ibuprofens ASAP...... and take ONLY with food.
Trisha said:
Plaquinil can take 2 to 3 months before you feel results. Its takes awhile to build up in your system.
Potslupus said:Bernice- how long till Plaquinil took effect..? Ive been on it since Mid may - and I feel like CRAP
Here's a link to meditation for beginners. Hope it helps! http://meditation.org.au/class1.asp?mobilecheck=true
Susan
Yes my right hand it’s numbed all the time,my knuckles hurts my wrist hurts bad too.
Plaquenil gave me a lot of side effects ,made me really sick not everybody tolerates medications the same way ,I say you should go see your doctor and tell about how you are feeling.
LIFEwithLupus said:
add ibuprofen 3 times a day if your liver is okay. it will help major with inflammation, thts the pain your feeling. ask doc about 800 ibuprofens ASAP… and take ONLY with food.
Trisha said:Plaquinil can take 2 to 3 months before you feel results. Its takes awhile to build up in your system.
Potslupus said:Bernice- how long till Plaquinil took effect…? Ive been on it since Mid may - and I feel like CRAP
I personally didn't like plaquenil either.... I went on it til I felt better... through diet exercise and gym 5 days a week... only ate what I cooked.
but that's before kids.......now I unable to take such strong measures with small children.
and the plaquenil is used in the EARLY stages of the disease. give it a chance... if it holds back the progress of the disease stick with it.... give it the 3-4 months... get pain meds if needed. but at least try. because once I started on stronger meds..... there was no way going back. the lupus went even stronger in my body when I jumped around with treatment. it went Crazy/
melissaramirez37 said:
Plaquenil gave me a lot of side effects ,made me really sick not everybody tolerates medications the same way ,I say you should go see your doctor and tell about how you are feeling.
LIFEwithLupus said:add ibuprofen 3 times a day if your liver is okay. it will help major with inflammation, thts the pain your feeling. ask doc about 800 ibuprofens ASAP...... and take ONLY with food.
Trisha said:Plaquinil can take 2 to 3 months before you feel results. Its takes awhile to build up in your system.
Potslupus said:Bernice- how long till Plaquinil took effect..? Ive been on it since Mid may - and I feel like CRAP
Potslupus ,My hands started hurting me in high school,35yrs ago,I’m now getting my left wrist fused,I haven’t been able to bend it in 3yrs,I started getting steroid injections in my wrist and 2 knuckles,and my middle finger a few years ago,just to be able to do simple tasks,Im not able to unscrew lids,buttons,scissors,things people take for granted,most mornings my husband helps me dress…on top of my lupus I’m a diabetic with pots syndrom and fibromyalgia,I sleep with oxygen and I take to many meds…I wear hand braces to drive and I do use voltaren gel on my hands a few times a day,Ask your dr about it…it does help.I hope you get to feeling better soon…celeste