I hate to be the bearer of bad tidings, but it can take anywhere from 8 to 14 months for Plaquenil to get the full effect.
Sorry, gentle hugs to you,
Shelly
Potslupus said:
Bernice- how long till Plaquinil took effect..? Ive been on it since Mid may - and I feel like CRAP
Sorry had to go to Dr's....LOL....speaking of Dr....I go on plaquinil for about 7 mos. I don't stay on long....I don't stay on any medication long...I don't think it is wise these days....the Plaquinil, when really strong bothers my stomach and makes me sick....cut it down, thats all you have to do. If it still bothers you don't take it at all. Plaquinil takes about 2 to 3 mos before you feel results but keep taking it to see if it does help.
I used to exercise all the time, but now I only swim, because I don't want the pain to return....if you had it once you don't want it again....swimming is great...you just float it takes all stress from your system...
Also fresh pineapple, eat it everyday ....if your anything like myself and the rest of us...inflamation will set in like a dirty dog...and that is a killer itself....but pineapple (fresh)
stops the inflamation from beginnging....believe me I have tried everything....also looked up everthing...but it is still great to hear everyone's story even though we are the same we are all so different....listen to your body and be kind to it, it goes through so much....it will tell you alot....
I hope you start feeling better ....real soon...
Bernice
wow Celeste, it sounds like your doing everything possible to stay in survival mode!
I am looking Into the shots except the Benlysta has been taking those painsand stiffniss away.
I hope it continues.
without benlysta I would need injections.
I finally contacted a pain specialist office here in AZ. I am going to be off of pain meds 80% is what my goal is. I do sleep with braces on sometimes....that helps me too.
Celeste, your my hero. and such a champ. I read yuour post and was like wow. See after so long...for me... I couldnthandle it anymore. it took a toll on me emotionally and mentally.
so I know ur strong to keep doing what ur doing to make life work.
celeste said:
Potslupus ,My hands started hurting me in high school,35yrs ago,I'm now getting my left wrist fused,I haven't been able to bend it in 3yrs,I started getting steroid injections in my wrist and 2 knuckles,and my middle finger a few years ago,just to be able to do simple tasks,Im not able to unscrew lids,buttons,scissors,things people take for granted,most mornings my husband helps me dress..on top of my lupus I'm a diabetic with pots syndrom and fibromyalgia,I sleep with oxygen and I take to many meds..I wear hand braces to drive and I do use voltaren gel on my hands a few times a day,Ask your dr about it..it does help.I hope you get to feeling better soon..celeste
Oh, I'm going to try fresh pineapple today! :)
bern said:
Sorry had to go to Dr's....LOL....speaking of Dr....I go on plaquinil for about 7 mos. I don't stay on long....I don't stay on any medication long...I don't think it is wise these days....the Plaquinil, when really strong bothers my stomach and makes me sick....cut it down, thats all you have to do. If it still bothers you don't take it at all. Plaquinil takes about 2 to 3 mos before you feel results but keep taking it to see if it does help.
I used to exercise all the time, but now I only swim, because I don't want the pain to return....if you had it once you don't want it again....swimming is great...you just float it takes all stress from your system...
Also fresh pineapple, eat it everyday ....if your anything like myself and the rest of us...inflamation will set in like a dirty dog...and that is a killer itself....but pineapple (fresh)
stops the inflamation from beginnging....believe me I have tried everything....also looked up everthing...but it is still great to hear everyone's story even though we are the same we are all so different....listen to your body and be kind to it, it goes through so much....it will tell you alot....
I hope you start feeling better ....real soon...
Bernice
ive been having this for the last couple years, dog groomer and secretary for 20 years plus i thought done it to me and im sure it had some to do with it but i guess it is just one more symptom, going to see a orthopedist next month see if he can do anything thinking i probably have nerve damage. i have carpel tunnel and neurothapy