I’m a Mich soccer mom that finds it impossible to keep up with my family anymore, and haven’t worked in 11 yrs. My lupus has affected my nervous system, brain, muscles, joints, and seizures as of 6 yrs ago. Has anyone had similar events?
Having lupus is hard enough as it is, but having a family to take care of makes it ten times harder. I had a hard time keeping up with taking care of my family, 3 dogs, household chores and working all the while dealing with severe headaches, brain fog, arthritis, muscle pain, visual difficulties, breathing difficulties and low-grade fevers. After 4 years of this I gave up working so I could better handle my illness and home life. I haven’t worked in 8 months. At this point I feel like I’m in remission. I think it’s because I eliminated 1 stressor from my life which was working. I couldn’t handle it all. I now know that quitting was the best thing I could do for my particular situation. My kids are young adults now, so aren’t dependent on me as those with younger children such as yours are. I can understand why you find it impossible to keep up with your family. I ask for help when I need it now. It took some getting used to, but my family has accepted that things have changed permanently. They still don’t always cooperate and can be inconsiderate at times, but I don’t let that stop me from asking for help when I need it. Maybe you could arrange for friends and relatives to help you out with the kids from time to time.
Lupus is a cruel disease that you look healthy on the outside and we know what it is like inside. With that said it makes it impossible for anyone to know what we are going through. Ironically last night my husband
and I were discussing how I need to get over my fierce independence and start asking for help. Not realizing how much stress he’s under worrying about me since 5 mo. ago I had grand Mal seizure while driving, thank God the only thing hurt were 2 cars scraped, and three trees run over. I promised days I’m feeling off, I’ll ask for help.
Hi I’m new to all of this support groups although I have had lupus for almost 26 years. I do have problems with cognitive issues ,muscular pain. The cognitive can get very frustrating as well as the muscular aches and pains. It feels like I have the flu all the time. I have to constantly write things down to remind myself. I also had to quit work about 3 yrs ago. I know this is short but I Am learning the ropes. Glad I found this sight. If anyone has problems with chronic pain. Let me know. I do understand a lot of the problems I have read on this website. It is good to finally express ourselves and help each other out.