I have been having severe loss of appetite and it almost seems to be a precursor to a flare up. Between my appetite being gone and other abdominal issues I lost 15 pounds in about 8 weeks. I have now begun working out again and watching what I eat, but the appetite loss seems to be back.
Have any of you experienced this and does it get better with time? Are there any tricks to dealing with it? I want to lose weight, but not like this….
No, I haven’t…but glad u wrote this. I’ve had a few times where I’ve lost my appetite…which is odd for me!!! 
But I’m going to see if I follow with anything as you mentioned.
I am glad you brought this up too. I have felt this same way, though I never correlated it with flares. I’ll definitely be paying attention from now on. I did notice however that before my lupus was really controlled, I would have a hard time keeping my weight on. I don’t really have that problem much anymore since I’ve been on Prednisone for a very long time 
I completely lost my appetite right before/during a flare recently. Went down to 95 lbs before they admitted me to the hospital. I’m now on a ridiculous amount of prednisone so it’s creeping back up. Have they checked your ESR levels?
I go loss of appetite frequently with rapid weight loss, then cycles of gaining weight almost as quickly as I have taken it off. I don't know if it is a flare or if its just my digestive tract being attacked. During the times of weight loss I drink supplemental shakes to assist with gaining weight.
Thank god for u guys. I loss about 20 pounds in January in about 2 weeks. I didn’t know what was wrong with me. I has constipated had burning sensation in my stomache and had lost my appitie. My doctor thought it might be ibs or ulcers. But when I told him I heard and felt fluid in my stomach he prescribed prevacid and I also began to eat a high fiber diet. It seemed to have worked along with a minimal dose of anti depressant s. I’ve gained my weight back but I’m always hungry. I cut back the steroids to 5 mg. I can’t win for losing but I remain as optimistic as possible. Thanks again it feels good to know I’m not alone in this situation.
Weight loss came when I started cell-cept. It was an acceptable side effect for me. I was carrying ab extra ten that I didn’t need so welcomed this. I am always thinking now that food is fuel and try to choose wisely. When I eat crappy I feel crappy!
I get loss appetite too. Especially in the mornings, have a very hard time getting my first meal down. I’m down 20 lbs. sometimes I think it’s the meds. I find that if I don’t take them I have better appetite, it’s like a double edged sword.
I’ve been going thru a bad weight loss time,5’4",93lbs now! It’s really hard, combination of Lupus, IBS, meds and relate to trying to get an appetite ! Gonna increase fiber,Miralax and coping skills from anyone would help! REALY struggling with this issue!!
Yes, I have dealt with this for the last 3 years. While I don’t normally have much of an appetite anyway, my stomach began getting nauseous or upset when I was first put on different meds. When I went off of them, my stomach issues did not improve. In the last 3 years I have lost 40 lbs. I am very tall, so depending on what I wear…it will really be obvious or - not so obvious. As a nurse, I wear scrubs intermittently and those really hide your true weight. At first, all I could do was drink chicken broth and eat some crackers. For the really bad times my doctor gave me a prescription for phenergan (pills-not suppositories). This is a med given for nausea and vomiting. If you take it early enough, it helps tremendously (or, at least it did me). Gradually I have been able to eat regular food, but have found only certain foods will work. This makes for a boring diet, but I am still not usually hungry, so I make myself eat something.
It hasn’t mattered if I was going to have a flare up or not. Made no difference.
I only experienced this one time and it was a precursor to my kidney flare. Hopefully you are getting labs done and your doctors are on top of things.
Peace and Blessings!
Tee
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