Thanks to Tony L Sydney (member of AVM Survivors Community), for initiating this discussion "Helping Hands". It received several great responses in the AVM Community.
How about you? Is there someone here, or in your family or in your workplace - who has helped you in your journey? If your journey has just begun, is there someone riding the storm with you now, who you would like to thank?
We love to hear your stories.
I would really like to thank my husband for standing by me. My diagnosis came right after our first anniversary. It has not been easy - because he can't accept that having pain is 'normal' for me. When I try to open a lid and get a shooting pain he wants to fix it for me and he can't. He looks out for and is over protective at times. And I love him for it....
My "helping hand" is the amazing man who has shared my journey for over 24 years. He has been with me from the "mysterious undiagnosed illness" through the "you've got lupus and what it means" discussion with my rheumy, and the many years since. He knows before I do when I'm heading for a flare. He understands that plans need to be flexible and that last minute cancellations will happen. I jokingly call him the "Warden" when he suggests that I may be over doing it, but he is always spot on. I love him so so much. I am truly blessed.
my friend Grant. He visited me in the hospital even though he barely knew me (we are both songwriters). He brought me to songwriter meetups, and we wrote songs together and was a wonderful listener as I worked through the difficult process of getting back on my feet after a stroke. He is one in a million.
Hi!!, this sound pretty good to Thank those who has helped along the way! I have to say my oldest son has been with me ever since day one, (my other two kids , they try also but not like the oldest son), he has been so wonderful and understanding along with going to my appointments with me, he really make things easier for me and help me deal with my personal business and explain to others about What am going through with Lupus . He is so great-I love him dearly , not saying that I don’t love the other two,maybe it is because they have kids of their own and really can’t spend alot of time doing things for me like the oldest son can , he has no kids . He moved back here from California to help me , but now he says that he is going back to California soon, he wants me to go with him!!! We talk about this on a regular base and I have not made up my mind yet-smile everything I know is here in Georgia, and I never been to California, and don’t know no one there! Which is not a problem, cause I am a people person, I can make friends any where. I did tell him that I would go for a couple of months but I not forSure if I will be completely staying there(I might do 6 months there and 6months here?) , I really don’t know yet . But I do know one thing , Am not changing doctors !! I will have to come back when it is time for my appointments with my doctor s whom I’ve had since day one . He just smiles and then hugs me. But anyway I give Thanks to my son for deling with this with me, Thank you son …Beverly L.