My mom was tested 4 years ago for lupus. The test came back negative. When I was dignoced a few months ago. I told her she had all the symptoms. She got tested again and they said she might have it. Now they are saying.g she has it. Test test test. When they tested me they thought I had a blood clot going to my heart
Not lupus. After.many doctors and many tests. They know now. And in fact I’m going to have tests done tommarrow for my thiroid because my mother… visits every 10 days and they can’t find out why. I’ve had my tubes tied. Yes I know all the draw backs. But what I am trying to get at is. If you feel something isn’t right. Keep going till it does feel right
Hi!, Welcome! The family and friendship here is truely great!i’ve been on this site for 3years now-knowing that am not Alone , really takes the top off alot of things for me, I enjoy, even when I don’t want to reply!! Or make comments .smile to know there are people all around the world , that I may never see in my Life, that they are dealing with things like me and I won’t be judged for saying am in Pain, and complaing hour by hour and day by day! Hope that you stay and enjoy what I (myself)and others have also!? Welcome once again,…Beverly L.
WOW-your right - get the heart thing out of the way and internalist dealing with thyroid-or RA doc. can test sounds like your on the right track I found I had a heart thingy going on in the middle of the Immune diagnoses so there are factors that may cause other outcomes- one at a time. good luck-Lupus Hater
chelle9323 said:
My mom was tested 4 years ago for lupus. The test came back negative. When I was dignoced a few months ago. I told her she had all the symptoms. She got tested again and they said she might have it. Now they are saying.g she has it. Test test test. When they tested me they thought I had a blood clot going to my heart
Not lupus. After.many doctors and many tests. They know now. And in fact I'm going to have tests done tommarrow for my thiroid because my mother... visits every 10 days and they can't find out why. I've had my tubes tied. Yes I know all the draw backs. But what I am trying to get at is. If you feel something isn't right. Keep going till it does feel right
there isn't a lupus blood test- not one that can definitely tell you "yes" or "no." I don't know why doctors are getting all weird about teh ANA having to be positive. that has never been true. you can be positive or negative and have lupus, positive or negative and NOT have lupus. it's only one piece of the puzzle. symptoms matter most. that's why it's important to kep track of your symptoms and bring the info to your appointments.
Makes me perturbed that doctors are basically misleading the public and their patients, acting like it's a blood test that determines a lupus diagnosis. no, it's labs plus symptoms, relying heavily on symptoms.
chelle9323 said:
My mom was tested 4 years ago for lupus. The test came back negative. When I was dignoced a few months ago. I told her she had all the symptoms. She got tested again and they said she might have it. Now they are saying.g she has it. Test test test. When they tested me they thought I had a blood clot going to my heart
Not lupus. After.many doctors and many tests. They know now. And in fact I'm going to have tests done tommarrow for my thiroid because my mother... visits every 10 days and they can't find out why. I've had my tubes tied. Yes I know all the draw backs. But what I am trying to get at is. If you feel something isn't right. Keep going till it does feel right
Welcome to the group. I’ll be praying for you. Love and encouragement given out daily here.