I just got a note from a friend that said that AI disease can be helped, sometimes greatly by taking antihistamines on a regular basis. Since they help me sleep so well, I decided, "Why not try using them as a program?" I just began taking one in the morning now, with the rest of my regimen. Been taking them for about 3 days now. It seems to be helping overall. I had been dealing with Plantar Fasceitis, and some of the pain has gone away, but I also put my arches into my shoes, which helps a lot.
Hi RJQ,
I've got A1 Diseases overlapping autoimmune diseases and alot of drugs help but also harm the disease more.
This link on A1 Diseases and meds is interesting.
http://rheumatology.oxfordjournals.org/content/38/10/917.full
Thanks for the link! This is very interesting. I even sent it to my husband and daughter, so they would get more of an idea of what goes on with me. I have both forms of Lupus, so it is interesting to say the least to learn about it.
Hello,
I take an antihistamine occasionally called Vistiril, (not sure if that is the real or generic name) but my doctor prescribed it for me as a non-narcotic anti-anxiety drug. It is somewhat adequate for this purpose.
It does sometimes slightly relax my muscles. I have muscle as well as joint pain.
Some people use it as a sleep aid, but it hasn't ever made me sleepy. Sleep is extremely difficult for me though.
Emma - Yes, after many years you could have built up an immunity. Maybe there is another one your doc could work you over to for a while? Then you could go back to the Zyrtec after a few months to get the good results you had before? Be worth asking him maybe?
RJQ - If this helps you, do it and let your doc know that you tried it and it worked!! That way you won't have to worry about running out of your RX! I recently ran out of some non-narcotics and had a bad experience, I'm warning everyone now! ;)
Hugs - Draginfli/Ang
Hello RJQ,
How you feeling now since adding your thread and are you still taking the antihistamines because although we think sometimes that meds can help they can also harm but sending the link to your hubby and daughter will give them a broader out look regarding Lupus.
((Hugs Terri)) xxx
RJQ said:
Thanks for the link! This is very interesting. I even sent it to my husband and daughter, so they would get more of an idea of what goes on with me. I have both forms of Lupus, so it is interesting to say the least to learn about it.
I take the over the counter one a day anti histamines every day, I find that they help with my symptoms which include red prickly and itchy palms and soles of the feet
I chatted with my consultant about it, as they weren't being as effective as before - he said that you can take "up to" 4 of them a day safely, so on bad days I take 2 (have never needed more than that though)
Hope this helps
I'm new to the site, the reason I joined is that I saw a discussion about red itchy palms and got so excited that there's someone out there with this affliction - all that the hospital said to me was "oh, it's the Lupus" and couldn't/wouldn't elaborate further!
Hello Anne,
I've done some hunting on this issue about all the itching plus added this info to "lupusmomof2's" Discussion also and although you only have Lupus...fibro and Lupus are identical in symptoms.
So i hope this info helps and there's no harm in asking your specialist about it either.
It's to do with your central nervous system and is called "Paresthesia" and i hope this link helps you.
http://chronicfatigue.about.com/b/2011/08/20/extreme-itch-in-fibrom...
Love Terri xxx
Hi there, Terri!
I do seem to be feeling a little more energy, which is very crucial in my case, and probably most Lupus cases. The swelling isn't as bad as before, I have lost a little weight (hallelujah!) not retaining quite as much water. Now, I had switched for the most part over to a mostly vegetarian diet, which really is helping the acid reflux I have. Plus, my GP put me back on 5mg of Prednisone, which seems to be helping with some leg pain I was experiencing. I have been taking the benedril for probably 2 1/2 to 3 weeks. Sometimes I take the antihistamine that is in the Nyquil, and that knocks me out so I get some sleep. I plan to stay on the diet and lose some more weight, as I have a feeling that if I can lose enough weight, I can shake some of that tendency to hold the water weight. That SEEMS to be what is happening, but time will tell.
Tez_20 said:
Hello RJQ,
How you feeling now since adding your thread and are you still taking the antihistamines because although we think sometimes that meds can help they can also harm but sending the link to your hubby and daughter will give them a broader out look regarding Lupus.
((Hugs Terri)) xxx
RJQ said:Thanks for the link! This is very interesting. I even sent it to my husband and daughter, so they would get more of an idea of what goes on with me. I have both forms of Lupus, so it is interesting to say the least to learn about it.
Thanks Terri, the comments under the article are very interesting ... lots of things to research for me I think
Honestly, I've learned more in the 2 days I've been a member here, than the two years since my diagnosis!
I've always been wary of mentioning Fibro to my consultant, things like extreme fatigue and sleep disturbance can easily be batted away as being part of my shift working pattern as much as my Lupus or any other condition, maybe I should get them to do further tests?
Tez_20 said:
Hello Anne,
I've done some hunting on this issue about all the itching plus added this info to "lupusmomof2's" Discussion also and although you only have Lupus...fibro and Lupus are identical in symptoms.
So i hope this info helps and there's no harm in asking your specialist about it either.
It's to do with your central nervous system and is called "Paresthesia" and i hope this link helps you.
http://chronicfatigue.about.com/b/2011/08/20/extreme-itch-in-fibrom...
Love Terri xxx
Hello RJQ,
Sorry i'm late getting back to you had a couple of days with a slow head.
Well i'm pleased your feeling you have more energy where that's a good bonus where we're concerned...well CONGRATULATIONS with your weight, sounds like you've got bonus's coming with it.
Rather you than me with a vegetarian diet but if it helps your acid reflux that's the main thing which counts as suffering with acid is terrible...the reason why i could'nt go veggie is because if my hubby does a salad he adds loads of lettuce and i alwys throw half away and tell him i don't resemble a rabbit.lol...it's weird how my body works because i have days where i crave colder foods and other days for hot, can't get my head around that one what so ever.
Well if your pleased with the amount of meds your taking and knowing they're helping that's all that counts besides taking the Nyquil and feeling ok with it besides your other stuff your on...then you should be ok because you sound at piece with your body at the moment besides losing the weight...you may get alot lower as Roni as done it really well, it's like looking at another woman from when she started.
Well all i can say is fingerscrossed from this end and just keep we updated regular please especially with your weight besides because it does give members something to look on besides.
Thinking of you dearly. xxx
RJQ said:
Hi there, Terri!
I do seem to be feeling a little more energy, which is very crucial in my case, and probably most Lupus cases. The swelling isn't as bad as before, I have lost a little weight (hallelujah!) not retaining quite as much water. Now, I had switched for the most part over to a mostly vegetarian diet, which really is helping the acid reflux I have. Plus, my GP put me back on 5mg of Prednisone, which seems to be helping with some leg pain I was experiencing. I have been taking the benedril for probably 2 1/2 to 3 weeks. Sometimes I take the antihistamine that is in the Nyquil, and that knocks me out so I get some sleep. I plan to stay on the diet and lose some more weight, as I have a feeling that if I can lose enough weight, I can shake some of that tendency to hold the water weight. That SEEMS to be what is happening, but time will tell.
Tez_20 said:Hello RJQ,
How you feeling now since adding your thread and are you still taking the antihistamines because although we think sometimes that meds can help they can also harm but sending the link to your hubby and daughter will give them a broader out look regarding Lupus.
((Hugs Terri)) xxx
RJQ said:Thanks for the link! This is very interesting. I even sent it to my husband and daughter, so they would get more of an idea of what goes on with me. I have both forms of Lupus, so it is interesting to say the least to learn about it.
Hello Ann,
I am glad it's of some use because i find it we don't personally research...you never really get the full story of your rheumo, unless you've dropped on a good one and is honest like a friend....well that's what i've found through the years seeing differnt specialists.
You've just said it all learning more here in 2 days.lol and you will though because you get so many symptoms with one autoimmune disease and when it comes to A1 diseases there's so many autoimmune diseases connected with that...it's the same as looking at Lupus in an whole factor of what follows suite concerning the disease....each and everyone one of us as so many issues to point out it's so unbelieveable.
I'd get them to do furthur tests to make sure but just remember that Lupus and fibro plus Lyme are the only diseases identical in everyway.
Hugs Terri xxx
BBAnne said:
Thanks Terri, the comments under the article are very interesting ... lots of things to research for me I think
Honestly, I've learned more in the 2 days I've been a member here, than the two years since my diagnosis!
I've always been wary of mentioning Fibro to my consultant, things like extreme fatigue and sleep disturbance can easily be batted away as being part of my shift working pattern as much as my Lupus or any other condition, maybe I should get them to do further tests?
Tez_20 said:Hello Anne,
I've done some hunting on this issue about all the itching plus added this info to "lupusmomof2's" Discussion also and although you only have Lupus...fibro and Lupus are identical in symptoms.
So i hope this info helps and there's no harm in asking your specialist about it either.
It's to do with your central nervous system and is called "Paresthesia" and i hope this link helps you.
http://chronicfatigue.about.com/b/2011/08/20/extreme-itch-in-fibrom...
Love Terri xxx
Hi everyone! I seem to be constantly getting better, just by a hair at a time, tho! But, better is better! I sure can say that my swelling is staying down. I do take an OTC water pill every day, too, tho. That helps, plus I drink about 8 to 10 oz of negative ion water, ie. Kagan water. Don't have the kagan type machine, just one I bought that does the same thing, but you have to wait for the water to "cook", then store it in a glass jar, and keep it in the fridge. I love it, because it is so hot here these days.
Anyway, I have to say that at this time I am about 15% better than when I began using the antihistamines as a regular thing. I've been on the veggie diet for about 5 mos or so, although I do eat some meat in Chinese food. It doesn't seem to be enough to comepletley kick in the acid reflux if I do that, but not for too many days, or it comes back. I like salads the best, myself.
As for weight loss, that seems to be going but very slowly. I did finally move down a pant size. That is always cool, when you weigh so much!
Hi Terri, sorry to hear about your slow head. I know just what you mean! Hope you can keep out of it for awhile. Have you tried taking antihistamines? Now that I am thinking of it, I haven't had brain fog for some time, either.
Hello RJQ,
Lovely to hear off you...and i am pleased your slowly getting there because like you say better is better. I'm pleased also your swelling is keeping down and taking a water tablet daily sounds like it's helping a fare bit...i've started on the waterlike yourself got no joice now because my system needs it more plus i'm eating better.
Well RJQ 15% is better than nothing mate and i think your doing really well besides keeping to what your doing plus with your food besides....i like salads like yourself but had to cut out peppers and tomatoes as they kick my IBS off terrible.
Drinking Asples cyder vinegar is good for you, it clears out bacteria and also makes you lose weight besides...i used to take it then my hubby blocked me being thin enough, then i used to have garlic daily and apparentley that's no good for Lupus.
Well i think it's brill how you've just moved down one pant size because look at it like this your doing well with everything and with some people weight only moves slowly and if your one of them..it's better than nothing.
Love Terri xxx
RJQ,
I can't afford to take any other meds that i'm taking, as i do have to becareful through my seizures but i get the slowness and less concentration just out the blue and it like deadens me to anything i want to do...so i keep away from things till my mind builds itself back up...actually i think it's foggyness off the Lupus and a partial seizure kicking in together.
If i watch the tele sometimes i can see the programmes but what's being said does'nt calculate and when i mentioned it to my neuro she told me my head was having a partial seizure.
Thank you for getting intouch and letting we know how your doing and i for one are so proud of your good efforts and devotion your putting into it. xxx
RJQ said:
Hi Terri, sorry to hear about your slow head. I know just what you mean! Hope you can keep out of it for awhile. Have you tried taking antihistamines? Now that I am thinking of it, I haven't had brain fog for some time, either.