So it was about two months of not eating, and running several tests before getting anywhere. They did an EGD and colonoscopy to see if they could figure out why I couldn't eat. All that it showed was inflammation, I wish it had shown something so I could eat! My PCP finally put me on reglan and as long as I take it I am ok, miss a dose and I am in trouble. I am just tired of pills!!! Also it has now been 3 months since working off the prednisone. I have been going down 1mg every month I am finally at 7mg. It feels great getting off. Yet the past few weeks I am feeling more "just not right" and my symptoms are worse. I am not sure why, is it from the prednisone or something else? Its getting harder and harder to keep going.
I move into the handicap accessible apartment in a few weeks, I cant wait! I can now actually move around in my wheel chair when I cant feel my legs, I can even wheel right into the shower! Its keeping my mind busy and off of being sick. I also was able to buy a living room set which I am very excited for! So there are a few ups with all the downs. The school is also doing a 5k this Saturday and so I have a friend who is going to take me and push me in my chair. I am truly blessed with amazing friends! I feel so spoiled! They also want to do another run with me in the fall, which I can not wait for!