I was tapering off and got to 5mg and my symptoms came back with a vengeance!! Joint and muscle pain, brain fog, rash, nausea… The lot… So my rheumatologist has told me to go back up to 10mg 
I know it will make me feel better but I feel like it’s a big step back!! I don’t want to be on steroids anymore but I can’t cope with my symptoms without them
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Has your rheumatologist discussed any other med he might try. I am also back on prednisone and am tapering I take 10mg for the next 3 days then tapper down till I am off. I started with 40mg. I hope you can find something to help soon.
Are you tapering off too quickly for your body, and having a tremendous rebound effect perhaps? This is something I have had to deal with, going down as little as one half milligram a day. Long term prednisone use is linked to osteoporosis, and other things I can't think of right now. My understanding is it is best short term, to help knock a flare down enough so your body can function better. There are ways to cope besides the heavy side effect medications. I'm betting if you take a look around with the search or in the natural health group, you could find simple, less traumatic ways to help your self.
I just began high dose prednisone, against my will and better judgement, and it's 3:40 a.m., have yet to sleep. Not a happy gal. I have enough food in me to make me need to fast for a week. don't eat very much. I so feel for you, need the terrible Pred rigt now too. Otherwise would be fully bed bound. Not an option in my mind snd heart.
I hope you feel much better soon. Can you access a book or nutritionist to learn what food cause worsening symptoms for you, and which would be a help? I have t o avoid nightshades this include potatoes (not sweet potatoes though), tomatoes, eggplant, peppers, and more. Also my food allergens like corn, and a lot more.
im feeling much better now ive been back on the prednisone for 10 days... i have very little joint pain now and my rash is going but leaving behind yet more scars... im scared that when i try to come off again ill just go back to how i was again... will i ever get off the steroids?? im too scared to try other medications because of the side effects... im on plaquenil aswell and anti sickness... maybe im just on a long flare and it will eventually go or something...
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