I’ve just past my first yr and the summer seems to be worse. My feet swell up and my hands are in pain most days. The colder weather was hard but nothing like the summer, the sun beats down and gives me migraines and then I get blister like rash that takes forever to heal. My Dr. also tells me to go on living life as if I don’t have lupus because my levels are low. I feel ignored and will be changing Dr soon. Try using organic creams to deduce joint pain. I just started using one with thc in it and it helps alot.
I have been diagnosed with UCTD, BTW - whathappensinvegas, I had a positive ANA.
Anyway, I am having my worst flare EVER! And the weather here is beautiful right now! A few really hot days but better than it has been. It started with the mouth sores; they lasted about a week and are now just lingering. Then I got hit with an exhaustion that was unbelievable, which kept me in bed for two days sleeping. Now, I'm dealing with joint pain in my knees, hands, wrists, shoulders, neck and pain all over my body. The fatigue has continued and I have been freezing cold even though it is warm. I am two weeks into this and I just need to feel better because I have so much to do. The thing is, I dread the cold because of the pain I get but this has really got me this time and it's summer time!
I hope everyone feels better soon :)
Becka,
I have dealt with the same kind of doctor. I have an appointment with a new doctor. I can't get in until December but if he listens, it will be worth it.
Cathy In MD
Becka said:
I've just past my first yr and the summer seems to be worse. My feet swell up and my hands are in pain most days. The colder weather was hard but nothing like the summer, the sun beats down and gives me migraines and then I get blister like rash that takes forever to heal. My Dr. also tells me to go on living life as if I don't have lupus because my levels are low. I feel ignored and will be changing Dr soon. Try using organic creams to deduce joint pain. I just started using one with thc in it and it helps alot.
Hi! I definitely have fibro and don't know about lupus. Just like you, my knees became more painful, stiff and swollen when the warm weather hits! Once it became cooler, the knees stopped hurting as much. Now that's not the normal progression of things with fibro, so I am coming here to see if what I have sounds like lupus.
I thank you so much for starting this topic so I can also read the responses. I hope you (and I) get good info to help you out.
I live in Boone,NC and can say the cold weather kills me, summer I definitely fare better. My Rheumy says some people are worse in the heat and some are worse in the cold. Like everything else with this disease it is unpredictable.