So the past two days have been filled with follow up appointments with my PCP and Kidney doctor. This was the first time seeing my kidney doctor after my flare up and all the things I have been going through. He finally agreed there is something going on and even said the Lupus word, He didn't out right agree but he couldn't dismiss that I really do have a problem. It was reassuring. I told him I have good days and bad days. One day I might be able to clean up my apartment and the next day I am laid up. He said that you do still have to have a life. I was so happy to hear those words! My PCP even said today that sometimes it takes years for the full picture to show up but in the mean time we need to still help the patient to have a life and live as normal as possible. I was so happy to see them both backing me up and helping do all I can to live as normal as I can. I told them the hardest thing for me is not to push and do. Which is so hard being so young, I just want to do and be a normal human being.
My labs today hadn't changed from 3 weeks ago so I still have to go down 1mg of pred, every month. He was hoping they would have improved and I could have gone down to 5mg. but sadly no. :( I am waiting to hear from a new rheumy. to see when I can get in. I am excited to see what he will have to say my PCP really likes him so I am hoping he is good! I feel like we are getting places now!
I am not sure whats going on but I have been feeling so ditsy, crazy, weird not normal. My friends and even my mom have noticed. They said you are normally weird/strange but never this bad! :/ Not sure what to think the only thing that has changed is being on mobic.... I just get into laughing fits over something so stupid. My mom said she likes seeing this side of me. She said its a lot better than seeing the crying, wanting to give up side of me.
Louters, I am glad your doctors are listening and supporting you. I am also glad about the laughing fits -- it's good for you. :) Thank you for sharing.
See a therapist too, be careful your not going into a depression. The concentration issue and uncontrollable laughter worries me. Depression looks different in everyone, be careful.
It seems like when I'm the most worried and thus need it the most, I end up having laughing fits. It often is triggered by something my hubby will say or do. He likes to give me a comical, wide-eyed look and say, "You never know!" meaning he never knows what will set me off into giggles. It seems to me that the more I need the release of laughter, the longer/louder I laugh. So don't feel too weird about laughing like that... embrace it and let it be a natural release valve for all those feelings rattling around inside. I can't think of a time when I did not feel better after having a laughing fit. They are a gift.
I'm also glad it sounds like you are starting to get the acknowledgment and verification from your doctors that you deserve. It's horrible to not be believed when you tell any doctor that something is wrong. Hang in there hon, and keep smiling (and laughing)!
I have been really worrying about school and all. So the thought up being worried and just needing to release all the stress makes a lot of sense! Your husband sounds like my friends. They always know how to trigger my funny side. When I get laughing really hard I dont breath and start gasping for air. So they are like breath, breath you need to breath. It doesnt help it makes me laugh more. I am thankful for my friends and the amazing medicine they are to me! It is amazing what 5 mins, of laughter will do to the body! :)
Talencia said:
It seems like when I'm the most worried and thus need it the most, I end up having laughing fits. It often is triggered by something my hubby will say or do. He likes to give me a comical, wide-eyed look and say, "You never know!" meaning he never knows what will set me off into giggles. It seems to me that the more I need the release of laughter, the longer/louder I laugh. So don't feel too weird about laughing like that... embrace it and let it be a natural release valve for all those feelings rattling around inside. I can't think of a time when I did not feel better after having a laughing fit. They are a gift.
I'm also glad it sounds like you are starting to get the acknowledgment and verification from your doctors that you deserve. It's horrible to not be believed when you tell any doctor that something is wrong. Hang in there hon, and keep smiling (and laughing)!