Was diagnosed on July 25. I have been telling my GP for 3 years that something just wasn't right. I practically had to force him to order labs to test for Lupus (after a number of acquaintances recommended I do so). He insisted that I was just aging and starting Menopause and that he was certain it wasn't Lupus. Next thing I know, he's sending me to a rheumatologist, who basically told me the same thing...until he got the test results back. When will doctors start believing that people know when something isn't right?
Hi Jazmin,
I totally agree with you. But my rheumatologist is still saying that nothing is wrong with me despite the years of problems and the positive tests. She tells me that I “only” have fibromyalgia and that if I would just exercise, I would be running marathons in no time. That’s not gonna happen for many reasons, including the fact that I have had three knee surgeries and am running out of cartilage, I have no desire to run a marathon, and, lets see, what was the other one? Oh yeah, I can’t even mow my yard without having to go to bed for several days. So how am I going to run a freaking marathon? My rheumy is the second of two rheumy’s in this area. The first one was even worse. (He couldn’t see joint destruction so I was fine.) I am going to my PCP today. Maybe steroids would help me get out of this flare? Doesn’t hurt to ask, I guess. I have never been on steroids before. Whoops, I digressed from your topic. Suffice it to say, I am sick to death of doctors thinking they know more than we do when we live in our bodies and KNOW when something is wrong.
I have worked with doctors for many years and some times it is very hard for them to think you know something that's why educating our selves is so important.
I believe we have to just listen to our body. I was told I had a sinus infection. It was the schools nurse who dignoised mind through bloodwork.
Isn't it odd that many of us, when diagnosed, do not fall apart? And that the diagnosis just becomes validation for what we already knew?
I pray that someday doctors will listen to people and not, as they have so many times, unreliable test results.
I went through the same thing! I had to tell my GP to order the blood work and then I was sent straight to a rheumy. The rheumy believed me, thankfully. I just wish they would all understand that we know our bodies and know when something isn't right.
Yeah this is what makes it a the more a pain not only do you have to fight the disease but you have to fight drs. to even treat it or admit that there is even anything wrong.
I would love for all doctors to see what low opinions we have of most of these idiots. One told me that anyone who writes on the internet about doctors is just talking sour grapes. I left him after two visits and wrong meds that put me in the ER. I think my opinion about his treatment is not sour grapes only. And I am sure a lot of you feel the same way.
Wow...thank you for all of the responses! Its great to know that I'm not the only one who has had to deal with this problem! Honestly, I was beginning to think I was just lazy and crazy! I used to have SO much energy and drive...For the past couple of years, it's been a struggle just to get out of bed. It takes forever to just load the dishwasher. I have to sit down and rest every few minutes!