The change in season in scotland has hit me hard this year and all the stress from ym family and friends is realli catching up on me this year. I am in so much pain to even move these days and my rash is becoming worse day by day with the red patches and spots. I guess i just need other lupies to talk to as i have noone who understands what my daily life is like !
I'm sorry your feeling so down. Of course you're in the right place here, with people who understand what you're going through.
Hope things will get better for you.
Jen
Dear Linzi, Amazing we are so many miles apart but feeling and dealing with the same. Wish i could give you a big hug but i guess for now it will just have to be virtual. Just know there are those of us who do understand and care. I hope your day gets better.
Healing hugs, love & peace, ~Mare
Hi Linzi,
Big Hugs to you, we understand how you're feeling..
ty for the hugs everyone and yeah it is amazing that we are so many miles away from each other but all going threw it all together X iv added u all as a friend and hope to talk soon and again ty for the hugs even a virtual hug makes you feel a litle better x hugs back to you all
Hi Linzi, Hugs from Tulsa, Oklahoma USA. It is still morning here I had a slow start because I was unable to sleep well last night. Yes us Lupies suffer the same way all over the world we are always here to support each other day or night maybe I will start loging in this site in the middle of the night from now on when I can't sleep.
Hugs & Kisses
Ms. P
Linzi Kyle said:
ty for the hugs everyone and yeah it is amazing that we are so many miles away from each other but all going threw it all together X iv added u all as a friend and hope to talk soon and again ty for the hugs even a virtual hug makes you feel a litle better x hugs back to you all
Linzi,
This is always a good place to come and have people understand what your dealing with. I am sorry you are going through this difficult thing. I am also in constant pain and misery from Lupus. I hope you find some relief from the pain soon. Know we are all here for you to vent to.
Creekbank
Yes, def feel your pain! ***hugzzz*** from a probable lupie "living it up" in Florida! :)
Nic out! :-D
aww ty Ms.P
Ms. P said:
Hi Linzi, Hugs from Tulsa, Oklahoma USA. It is still morning here I had a slow start because I was unable to sleep well last night. Yes us Lupies suffer the same way all over the world we are always here to support each other day or night maybe I will start loging in this site in the middle of the night from now on when I can't sleep.
Hugs & Kisses
Ms. P
Linzi Kyle said:ty for the hugs everyone and yeah it is amazing that we are so many miles away from each other but all going threw it all together X iv added u all as a friend and hope to talk soon and again ty for the hugs even a virtual hug makes you feel a litle better x hugs back to you all
hi creekbank ty those words touched my heart as did ur hugs and kisses x
Creekbank said:
Linzi,
This is always a good place to come and have people understand what your dealing with. I am sorry you are going through this difficult thing. I am also in constant pain and misery from Lupus. I hope you find some relief from the pain soon. Know we are all here for you to vent to.
Creekbank
thank you so much lone wolf and i am sending hugs back to u as well x
lone wolf said:
Hi All:
The comments here are always supportive and heartfelt. Consider yourselves hugged from the Lone Wolf.
Be Well,
LW
who ever has repleyed to this can u please add me as a friend so i can talk to everyone X thank you xx
I know what your going through, I have been feeling the same way. I have been kind of down because I have been struggling to work and no one understands how sick I feel. I have been coming home and getting in bed. I feel so guilty that I can't be more active. I feel like no one understands, I feel alone. Im sorry your going through this.
sorry to hear your having a rough time,we all understand,this is such a great support group,i aslo have the skin lupus,and i hate it,ive always loved the outdoors,now i have to stay in most of the time,ive been pretty sick sence dec of last yr,lots of face pain,nerve damage it sucks,but theres always someone out there thats a little worse,hang in there and try not to stress that makes it worse,your in my prayer,it does get better/big hugs for u,
Linzi Kyle said:
who ever has repleyed to this can u please add me as a friend so i can talk to everyone X thank you xx
Wow, I had bouts of the same low energy levels that comes and goes. I haven't visited my Grandkids in months because all I want to do is sleep when I get home from work and I only work part time but I'm still tired. My last lab test showed that I am low on vitamin D3 which we get from the Sun but because I have the Skin and joint Lupus I can no longer spend time in the sun so he put me on 4,000 units of D3 this also helps with depression which is another thing that robs us of our energy and boy did it really help me. I am able to do more now, with the D3 and my depression meds I can do more now I even cook and clean the house now. My levels of Pain is up and down I do take Oxycodone and Tramadol for pain I usually need it twice a day. I haven't had a flare in over a year now I think thats because I really pay attention to my body and only do what I feel that I am able to do and not over do. I think that Lupus is heritetary because I have two cousins who also have it. One of them passed away 2 yrs ago from complications of the Lupus she developed Cancer but she beat it but because her Docs placed her on Steroids they distroyed her immune system and it left her defenseless to fight off any virous that attack her body and she was too weak to fight it off and she died. My other cousin has had Lupus alot longer than I have told me to always listen to your body, do not do too much and to rest, rest, rest when at all possible to do so.
Well I just needed to talk to someone .
Thanks for listening if you are there.
Ms. P
JAZZYDIAMOND7 said:
I know what your going through, I have been feeling the same way. I have been kind of down because I have been struggling to work and no one understands how sick I feel. I have been coming home and getting in bed. I feel so guilty that I can't be more active. I feel like no one understands, I feel alone. Im sorry your going through this.
jazzydiamond7 what iv learned from posting this we are never alone we have each other and together we are stronger and we can help each other threw anything x
JAZZYDIAMOND7 said:
I know what your going through, I have been feeling the same way. I have been kind of down because I have been struggling to work and no one understands how sick I feel. I have been coming home and getting in bed. I feel so guilty that I can't be more active. I feel like no one understands, I feel alone. Im sorry your going through this.
Ms.P noone else in my family has lupus and thts y i feel so alone and depression is a horrible thing i hate it so much and only started the sighs last year and the doctors are agenst me being on medication for it. im glad u got ur lab results back and got the help you needed and i hope ur grandkids can get the benefit of that too xx xhugs and kisses from scotland xxx
Ms. P said:
Wow, I had bouts of the same low energy levels that comes and goes. I haven't visited my Grandkids in months because all I want to do is sleep when I get home from work and I only work part time but I'm still tired. My last lab test showed that I am low on vitamin D3 which we get from the Sun but because I have the Skin and joint Lupus I can no longer spend time in the sun so he put me on 4,000 units of D3 this also helps with depression which is another thing that robs us of our energy and boy did it really help me. I am able to do more now, with the D3 and my depression meds I can do more now I even cook and clean the house now. My levels of Pain is up and down I do take Oxycodone and Tramadol for pain I usually need it twice a day. I haven't had a flare in over a year now I think thats because I really pay attention to my body and only do what I feel that I am able to do and not over do. I think that Lupus is heritetary because I have two cousins who also have it. One of them passed away 2 yrs ago from complications of the Lupus she developed Cancer but she beat it but because her Docs placed her on Steroids they distroyed her immune system and it left her defenseless to fight off any virous that attack her body and she was too weak to fight it off and she died. My other cousin has had Lupus alot longer than I have told me to always listen to your body, do not do too much and to rest, rest, rest when at all possible to do so.
Well I just needed to talk to someone .
Thanks for listening if you are there.
Ms. P
JAZZYDIAMOND7 said:I know what your going through, I have been feeling the same way. I have been kind of down because I have been struggling to work and no one understands how sick I feel. I have been coming home and getting in bed. I feel so guilty that I can't be more active. I feel like no one understands, I feel alone. Im sorry your going through this.
aww i sure do hope it gets better this is my first flare since i was little that has made me feel so bad all i want to do is go out and be a normie but i cant lol it sucks huh but atleast we have each other us lupies stick together xx hugs and kisses from scotland xxxx
foreverhopeful said:
sorry to hear your having a rough time,we all understand,this is such a great support group,i aslo have the skin lupus,and i hate it,ive always loved the outdoors,now i have to stay in most of the time,ive been pretty sick sence dec of last yr,lots of face pain,nerve damage it sucks,but theres always someone out there thats a little worse,hang in there and try not to stress that makes it worse,your in my prayer,it does get better/big hugs for u,
Linzi Kyle said:who ever has repleyed to this can u please add me as a friend so i can talk to everyone X thank you xx
Hi
We're all feeling bad for you. The change in weather usually doesn't help. You are not alone. Does the weather start to get cold this soon in the season. Any time you want to vent you know where to go.
Cindy
hi cindy yeah in scotland the weather has its own plans and its getting cold already but i love my country its so beautyful yet cold lol x x hope you well xxx linzi
freightliner said:
Hi
We're all feeling bad for you. The change in weather usually doesn't help. You are not alone. Does the weather start to get cold this soon in the season. Any time you want to vent you know where to go.
Cindy